Well, it's been a very long road but it is finally culminating in parathyroid surgery tomorrow. A year ago last February I was no longer able to work and didn't know what was wrong with me. I was sent to an endocrinologist who diagnosed me with Hashimoto's disease (very high antibodies). I have been hypo for a decade and the new med that was prescribed although helped, there were still lingering symptoms that just didn't fit the Hashi's diagnosis. On a blood test my primary doctor did it showed both my parathyroid hormone and calcium were at elevated levels. Since then I've been through 3 endo's and two surgeons before a very skilled and experienced surgeon took me under his wing and through testing has determined that I do in fact have primary hyperparathyroidism. Nuclear scans are indicating there is one para embedded in my right thyroid and a CT scan showed another possible para in my thymus. Not sure what I will end up without after the surgery as my other thyroid gland has nodules and an 8mm lesion with ill-defined borders. I also have what they believe is a large lymph note up against the jugular vein. I'm very excited to get this over with and begin my recovery. I had been on LDN for 4 weeks but had to discontinue it until after the surgery. I'm amazed at how much more alive and alert I felt on naltrexone. Will keep you all posted as to the outcome.
Linda
Surgery Tomorrow!
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Hi Linda,
I hope that everything goes smoothly.
Thanks for the update, and please keep us posted whenever you feel up to it.
Tex
I hope that everything goes smoothly.
Thanks for the update, and please keep us posted whenever you feel up to it.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
I will be thinking of you Linda! I felt the same way when I had my thyroid removed. I wanted to get it over with so I could get on with getting well.
Best wishes.
Best wishes.
Deb
"Do not follow where the path may lead. Go instead, where there is no path, and leave a trail.
-Ralph Waldo Emerson
2007 CC
2013 thyroid cancer- total thyroidectomy
2013 Hashimoto's - numbers always "normal"
2017 Lyme's Disease
"Do not follow where the path may lead. Go instead, where there is no path, and leave a trail.
-Ralph Waldo Emerson
2007 CC
2013 thyroid cancer- total thyroidectomy
2013 Hashimoto's - numbers always "normal"
2017 Lyme's Disease
Thanks everyone. I'm a little nervous over this procedure but am excited to get this over with and also being vindicated. Too many doctors have ignored what I was trying to tell them. I want the surgeon to take a picture of the offending tumor(s) once they're out as there are a few doctors that I want to send it to.
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MaggieRedwings
- King Penguin
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- Location: SE Pennsylvania
Made it through to the other side! Gave birth to triplets :o . Surgery was 3 hours and I don't know all of the particulars but I do know there were 3 tumors removed and one was located in my thymus. Feeling a little beat up but I am so happy this surgery has finally happened. I never talked to the doctor post op but hubby did. No instructions given though regarding supplemental calcium other than the general info that says I may need some but didn't receive any scripts. Up until the time they took me in for surgery I had serious doubts that he would find anything. Hoping my last para wakes up quickly and takes over. The surgeon also removed a couple of thyroid nodules but luckily, the tumors were not embedded in the thyroid and I was able to keep both lobes! I was also able to keep my thymus too. Really feeling blessed to have the surgeon I had. When I asked hm how many surgeries he had done and he. Told me that between thyroid and parathyroid somewhere between 13,000 to 14,000. Now that's some experience!