Success with Entocort

Updates from members who have been successful in controlling their symptoms.

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Nancy
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Success with Entocort

Post by Nancy »

I have been on Entocort since Nov. Started on 9 mg. a day for 2 months. Went off and the D came back so was able to find generic at AllDayChemist for a very reasonable price and started up again at 9 mg for a month, down to 6mg a day for a month, then 3 mg a day for a month and now I am taking 3 mg a 4 days a week, next month it will be 3 days a week, then 2 days a week then 1 day a week and then I'll be off. So far I have not had a return of D while reducing my dose. So thankful this medication has helped me so much.
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UkuleleLady
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Post by UkuleleLady »

I'm very happy for you, Nancy. Stay well.
Best wishes.
If you want others to be happy, practice compassion. If you want to be happy, practice compassion. ~The Dalai Lama
Nancy
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Post by Nancy »

Thanks. It has been years since my digestive system has functioned this well. 17 years to be exact. I think the Entocort has allowed my gut to heal and of course a very strict diet.
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tex
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Post by tex »

Nancy,

That's good news. When you finally complete the Entocort dose tapering, if you find that the consistency of your BMs deteriorates, try 1 or 2 antihistamines each day. Many members here have found that antihistamines can help to prevent D in that situation, as the body becomes accustomed to doing without the corticosteroid again. Be sure to select an antihistamine that does not contain a lactose ingredient (such as lactose monohydrate).

Thanks for the update, and I hope that your recovery continues to go smoothly.

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Heady
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Post by Heady »

Happy for your success. Hang in there, the future's lookin bright!
Diabetic DX June 2012
Diverticulosis/ MC DX Feb.2014

I am thankful for my struggle because without it I wouldn't have stumbled across my strength.

What are you willing to let go of so you can live the life you know you deserve?
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nerdhume
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Post by nerdhume »

Good News! We are all encouraged by the success stories.
Theresa

MC and UC 2014
in remission since June 1, 2014

We must all suffer one of two things: the pain of discipline or the pain of regret. ~Jim Rohn
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Chrisdat
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Post by Chrisdat »

Nancy, Thanks for posting an update. It is so encouraging. I am still on 9 MG. A day. It's nice to look, Lord willing, at my future - may it be like yours. - Chris
Diagnosed April 2014, after losing 50 lbs. in 6 months.
Delzicol April 2014 (no effect, after 3.5 weeks-removed)
Endicort April 2014 - helping, but still losing.
Pepto-Bismal 9 a day - May 2014
Thankful for support!
CathyMe.
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Post by CathyMe. »

Great news Nancy. Thanks for the update. I too found success with tapering down with Entocort over a long period of time. Glad that you're doing well!
lisaw
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Post by lisaw »

Nancy, so glad it's going well for you. I just started Entocort 2 weeks ago, and am seeing pretty good results.
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coryhub
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Post by coryhub »

Happy to hear of your success with Entocort. You are tapering down in a correct and cautious manner. I had similar good results with this drug. It is like a miracle drug to me. I only take it now, 1 pill a day, for vacations (twice a year) and it has given me peace of mind to enjoy my vacation. Let's hope the pharmaceutical companies don't stop making it for lack of profit.
CoryGut
Age 71
Diagnosed with Lymphocytic Colitis Sept. 2010
On and off Entocort(Currently Off)
Leah
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Post by Leah »

Great news Nancy. I too had great results tapering as you are. Good job!
Leah
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nerdhume
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Post by nerdhume »

So far so good 10 days since I stopped the Uceris cold turkey. Will see my GI tomorrow. I am sooooo thankful I found this group and got my diet under control. I read sometimes on a couple of UC groups. Many people on there don't think diet makes a difference and several have said they will just have surgery rather than try changes to the diet. I just don't understand that way of thinking, but we each have to follow our own path.
Theresa

MC and UC 2014
in remission since June 1, 2014

We must all suffer one of two things: the pain of discipline or the pain of regret. ~Jim Rohn
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