Problems with mouth sores

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Grahm
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Problems with mouth sores

Post by Grahm »

Does anyone have suggestions for this. They are mostly on my tongue, small white, not really blisters but sore. I've just started on the generic for entecort 3 days ago. I already had this so it is not the meds. My test to check for vitamin deficiency is at the post office ready for me to pick up tomorrow and I sent my test back to Enterolab for testing Wednesday. I'm ready to beat this!! Thanks for any help. Connie
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Gabes-Apg
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Post by Gabes-Apg »

From my experience, mouth and gum issues are linked to Vit C and/or Zinc deficiency.
If you can get good quality liquid zinc and rub it into the gums (or use toothbrush and clean your gums with the liquid zinc) this will make healing faster.
or gargle a bit of salt water.

be cautious of mouth rinses etc, they tend to contain ingredients that are not MC friendly...
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kayare
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Post by kayare »

Hi Connie,

I agree with Gabes. I had mouth sores for so many years! I tried so many remedies. What helped me the most was the most simple - to keep my mouth very clean. Gently brushing and flossing my teeth immediately after meals followed by a salt water rinse helped a lot! I rarely get a mouth sore now. What a gift. You will beat this! Hang in there!

Kathy
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Post by Grahm »

Thank you both so much. Where should I get the liquid zinc from?
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Gabes-Apg
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Post by Gabes-Apg »

good quality compounding pharmacy, health food store, online

i saw some on amazon...
double check the inactive ingredients before purchase.
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tex
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Post by tex »

Hi Connie,

Mouth sores are somewhat common with MC. I had them back when I was still reacting. MC can affect any part of the digestive tract, from mouth to anus. IMO, mouth sores are an indication that the mouth is also involved. Mouth sores (again, IMO) are a response to excessive mast cell activity (IOW, mast cells degranulating when they shouldn't).

The remedies suggested by Gabes and Kathy should certainly help. And Gabes' warning about mouth rinses is right on target. My first warning of things to come (as far as sensitivities are concerned) occurred decades ago, when I suddenly became allergic to a mouth rinse that I had been using for years. One morning when I sloshed it in my mouth, the lining of my mouth suddenly felt as if it were on fire.

This may sound like a nutty suggestion, but knowing what I know now, if I developed mouth sores today, I would take 1 or 2 antihistamines each day, to help simmer down the unruly mast cells.

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Heady
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Post by Heady »

Stress is a huge part of aphthous ulcers(canker sores). Is that what the sores look like. Salt water rinse works to clean, usually they have a 2 wk course to run. There is an oral salve we prescribe here called kenalog in orabase to put on them to relieve discomfort. Not sure how MC would respond to that but that's my 2cents. Maybe tex can tell us if that is safe, or if it is canker sore or something else???
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Post by nerdhume »

I haven't had one of those in many years. When I was younger and did get one I put powdered alum on it for a quick cure. I don't even know if they still sell that or not. We used it in pickling and got it in the spice section of the grocery store.
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tex
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Post by tex »

Heather,

Yes, Kenalog is one of many brands of triamcinolone, which is a topical corticosteroid. So it should not cause any adverse MC issues. And since corticosteroids are effective for treating mouth sores, then it follows (IMO) that antihistamines should also work (since corticosteroids work by suppressing mast cell numbers and activity).

And yes, you're quite correct that the mouth sores that many of us sometimes experience with MC are indeed aphthus ulcers, aka canker sores. They can appear on the tongue and the mucus linings of the cheeks, lips, and throat. They're typically either white, gray, or yellow (usually with a red border).

Note that these are not the same as fever blisters (cold sores). Fever blisters are caused by herpes virus, and they're contagious, whereas canker sores are caused by stress (as you pointed out) and mast cell activity (for those who are genetically susceptible) and they are not contagious.

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Post by Grahm »

Thanks, I think the saltwater has already helped some. I still may order the liquid zinc too.
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Post by Grahm »

Oh, and I'm taking a 24 hr Alegra each day with a Benadryl at bedtime.
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tex
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Post by tex »

:thumbsup:

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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