Bone density

maestraz · Post by **maestraz** » Mon Jun 16, 2014 7:14 pm

Hi folks,
I have had a recent flurry of diagnosed inflammatory issues (rotator cuff tendinitis, ilio-tibial syndrome, which is basically hip/groin/leg/lateral knee) that have been getting in the way of my exercise. After my rheumatologist laid those two things on me, she raised the bone density issue, based on my FRAC (fracture risk assessment) which is high for the hip and overall, just as my GYN had last month. Both of them want me back on some sort of bone density meds. I remain wary of them, having ditched Fosamax during my initial LC year. They are talking about non-oral meds.

Any thoughts specifically from any of you who are dealing with the bone density question? My osteopenia score on bone density tests has been stable for two years using vitamin D and calcium citrate alone. The rheumatologist apparently doesn't buy that.

Keep in mind that this rheumatologist told me today that I could have cortisone shots for five different things, which I passed on.

Gabes-Apg · Post by **Gabes-Apg** » Mon Jun 16, 2014 7:27 pm

Suze
after all my recent readings about Magnesium, bone health is not just about Vit D3 and Calcium, Magnesium is just as important as the other two.

The spray/lotion option provides very cost effective way of getting high doses of the Magnesium with low risk of causing increase motility/D

Magnesium will also help reduce the inflammation

nerdhume · Post by **nerdhume** » Tue Jun 17, 2014 3:47 am

Have you considered Strontium? I've been taking it for a couple of years since stopping the IV bone density meds. I have noticed less pain, but haven't had a bone density test since taking it. There are a lot of good reviews about it.

Polly · Post by **Polly** » Tue Jun 17, 2014 6:54 am

Suze,

I also have osteopenia and am wary of those meds. Of course, weight-bearing exercise helps the bones immensely, so I am wondering if you think you will be able to resume your exercise regimen full steam? Would stretching help your problems? Or physical therapy?

I think it is good news that your scores are stable. I agree with Gabes that you may want to supplement additional minerals known to build bones and with nerdhume that you may wish to consider strontium. Gloria here used strontium with documented improvement in her scores over time.

One thing that scares me is the adverse effect of jaw bone necrosis. I have had enough trouble over the years with teeth and gums, so if anyone would experience this nasty problem, it would probably be me. I even "rejected" an implant to the consternation of my dentist!

Let us know what you decide to do.

Love,

Polly

nerdhume · Post by **nerdhume** » Tue Jun 17, 2014 7:33 am

One thing that scares me is the adverse effect of jaw bone necrosis.

Polly, that was my big concern, my dentist refuses to do extractions, root canal, etc on anyone that has EVER taken those meds. So if I need and invasive procedures I will have to go to another professional.
Also, my previous PCP said after Obamacare the IVs were costing him more than Tricare or medicare would pay.
I am trying to be more active now that I am in remission. Previously I felt so tired I would be worn out by noon and spend the rest of the day in my recliner cross stitching. I know I am more out of shape than ever after 6 months of that type of behavior. I also wonder if that is what has caused my heart rate to increase from the 60s to 70s then 80s up to 90 this morning.

Post by **tex** » Tue Jun 17, 2014 8:58 am

nerdhume wrote:I also wonder if that is what has caused my heart rate to increase from the 60s to 70s then 80s up to 90 this morning.

Is it possible that you might be having an allergic response to something? Yellow pollen has caused me to have hay fever symptoms for virtually all of my life. I have no idea whether this might be connected, but for some reason or other, yellow dye #5 significantly boosts my heart rate within 10 minutes or so after I ingest it.

Tex

nerdhume · Post by **nerdhume** » Tue Jun 17, 2014 10:45 am

Thanks Tex, I will check into the yellow dye, I know I have immediate WD from red dye in the flavored waters. Allergies are a year round problem in the piney woods of East Texas.

Pat · Post by **Pat** » Tue Jun 17, 2014 11:05 am

I work in a dental office and the only instances of osteonecrosis that my dentist is aware of is from IV bisphosphenates, not the oral bisphosphenates for osteoporosis. I would recommend weight bearing exercise, magnesium, Vit D, and calcium, and maybe the Strontium rather than meds any day though.

Pat