That was me 3 years ago when I was first diagnosed with MC I found this website, but could not believe there were so many food intolerances. I then decided to do the Pepto plan, without diet changes, and relapsed after the 8 weeks, then I went on Asacol for 9 months and progressively got worse, then 6 months on Entocort with no taper down. After all of the medication trials and no diet changes I continued to have significant MC symptoms. It was a year ago that I read Tex's book and re-found this website. I then realized the medical professionals and medication were not as helpful as making diet changes. I am doing much better with diet changes and no prescription medication.Regarding the popularity of diet changes for treating health issues, I'm just guessing at the statistics here obviously, but I have a hunch that probably at least 90 % of the people who first find our site, enthusiastically read a few posts, frown, shake their heads, and move on. Because there's no way they would consider such drastic diet changes when their doctor has told them that they can either control their symptoms by taking a pill, or by simply waiting for the symptoms to resolve on their own (citing flawed research articles that show that MC resolves without intervention after approximately 3 years.
Collective experience of MC patients everywhere?
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Tex wrote:
Donna
Diagnosed with CC August 2011
Diagnosed with CC August 2011
Yes there's that stubborn part BUT if a person has even a basic understanding of statistics they would be persuaded to make diet changes. I'm almost 3 years from my diagnosis and I can still clearly recall coming home from my colonoscopy, plopping down in bed and booting up my laptop to look up 'lymphopathic colitis' (which is what my surgeon told me he predicted I had as soon as I woke up from the colonoscopy). I did the search, found this site and then started reading the statistics: 95% of us have to be gluten free and diet changes are necessary to get into remission. I remember asking myself 'why would I be any different?' and that afternoon I declared I'd be gluten free. I knew if the vast majority of people here had achieved remission with this method then I needed to join them. Again, the numbers don't lie.Some other types may lurk here for a while but IMO only those of us that are still here are obviously stubborn enough to think we can cure ourselves, and willing to do what it takes to get our lives back.
Carol
“.... people will forget what you said, people will forget what you did, but people will never forget how you made them feel.” Maya Angelou
Carol,
I've often wondered where that statistic comes from....95% of all with MC....95% on this group?I did the search, found this site and then started reading the statistics: 95% of us have to be gluten free and diet changes are necessary to get into remission.
Theresa
MC and UC 2014
in remission since June 1, 2014
We must all suffer one of two things: the pain of discipline or the pain of regret. ~Jim Rohn
MC and UC 2014
in remission since June 1, 2014
We must all suffer one of two things: the pain of discipline or the pain of regret. ~Jim Rohn
That number comes from an analysis of EnteroLab test results listed on this site, after adjustment. Adjustments include members who apparently received a false negative result (either because they were diagnosed with selective IgA deficiency, or because their own experience proves that they are definitely sensitive to gluten), and on the other side of the ledger, one or 2 members who thought that they had MC, received negative results on biopsy analysis.
A current analysis shows that the percentage is running at 92.5 % these days, if I didn't miscount.
Tex
A current analysis shows that the percentage is running at 92.5 % these days, if I didn't miscount.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
