Enterolab Credibility

[lsedels]

Larry,
I'm sure none of us intended to hurt your feelings. The fact is we each must find our own way of dealing with this, and it is a lot to deal with.

As with any other group of people and advice....take what you need/want and leave the rest.

We don't all follow the same plan, we have one thing in common....we want to be in remission while taking the least harmful medication possible.

Best wishes to you and your mom.

Agreed, Theresa. Thanks for your post.

[lsedels]

Larry,
I had several of the same feelings about the test and the expense. My family and friends got mad at me for being on the internet....I was a mess. I would say .....the support group says and everyone would roll their eyes. I did do the testing as I was desperate. I came back sensitive to gluten, soy and casein. I eliminated those from my diet and struggled with weight loss. I went on Endocort which had worked beautifully in three years ago. After 5 months of struggles things gradually got better. I stopped the Endocort, maintained a strict diet, went on 10 Elavil at bedtime and Questran during the day (both have side effects of constipation) - my internist's recommendation. Something worked....I am not sure that there was a magic bullet, but I continue with the diet and have cut back on the meds. I went back to the GI and she asked "did the diet cure you?" I said "not sure, but something has helped me manage this stupid disease! " and now that's what I do is MANAGE.....and BALANCE. I have dropped to every other day with Elavil, I have cut out Questran, but on days that I feels digestive distress I take it...I throw in an Imodium here and there if I am going out for dinner. I am extremely careful of what I eat in the morning as that is my "bad" time (sometimes). If I am going to walk which I do almost daily, I walk and then eat breakfast. I eat most meats, veg, rice, quinoa and eggs. I use Udi bread and earth balance butter. I read labels. All these things I have learned by observing, keeping a journal, and experimentation and reading suggestions from this site.
This disease confuses the best of us and we are all different and have to find out what works for us.
As somebody said before - take what you like and leave the rest. Hopefully, you will find out what works for your mom. Patience and persistence pays off with this disease. Good luck.

Thank you.

[dfpowell]

Larry,

It took me several years to accept the need for diet changes, I have a medical background and decided to follow the advice of the doctors, including one from Mayo Clinic, and took the medication they prescribed for 18 months. When the medication lost its effectiveness, meaning I was again dealing with all of the MC symptoms, I decided the advice of those in this group had more credibility than the doctors telling me this disease is only a minor inconvenience and all you need to do is take medication.

I think it is good that you ask about Enterolab's credibility, I have also had a similar skepticism, but went ahead with the test because I needed some quicker answers than an elimination diet. I have found by following the diet suggestions, my symptoms are very minimal and better managed than when I was on medication. Sometimes I have tried adding different foods back into my diet, only to have my symptoms increase, meaning more diarrhea, and when I take them out again the diarrhea goes away, so I have seen a cause and affect with diet and my MC symptoms.

Is the medication your mom has been prescribed for MC helping? Perhaps at her age that is the best that can be done.

[lsedels]

Larry,

It took me several years to accept the need for diet changes, I have a medical background and decided to follow the advice of the doctors, including one from Mayo Clinic, and took the medication they prescribed for 18 months. When the medication lost its effectiveness, meaning I was again dealing with all of the MC symptoms, I decided the advice of those in this group had more credibility than the doctors telling me this disease is only a minor inconvenience and all you need to do is take medication.

I think it is good that you ask about Enterolab's credibility, I have also had a similar skepticism, but went ahead with the test because I needed some quicker answers than an elimination diet. I have found by following the diet suggestions, my symptoms are very minimal and better managed than when I was on medication. Sometimes I have tried adding different foods back into my diet, only to have my symptoms increase, meaning more diarrhea, and when I take them out again the diarrhea goes away, so I have seen a cause and affect with diet and my MC symptoms.

Is the medication your mom has been prescribed for MC helping? Perhaps at her age that is the best that can be done.

Thanks for your post.

I completely understand your position.

Yes, the Uceris is making a big big difference, thankfully. But it is not clear to us whether she will have to come off it or not, or whether if she takes it long enough, it will lose its efficacy.

[JLH]

A small group of us, for whom the diet and meds (or combo) did not work, are doing the very same thing all over again! We ARE trusting doctors and patients on the internet! There has been success, too.

http://www.perskyfarms.com/phpBB2/viewt ... ht=miracle