Dizziness

Maryse · Post by **Maryse** » Wed Aug 13, 2014 3:10 pm

Has anyone experience vertigo with this condition? Could dizzy spells be linked to MC? I'm asking because my daughter experiences them once in a while and they are so far completely unexplained (after much testing). Thank you!

Post by **tex** » Wed Aug 13, 2014 5:03 pm

Maryse wrote:Has anyone experience vertigo with this condition? Could dizzy spells be linked to MC?

I had that problem back when I was still reacting. Some mornings when I would get out of bed the room would be spinning so badly that I couldn't walk without running into walls and various other objects. Most of the time, I could lie back down, and in 15 or 20 minutes it would pass, or at least improve enough that I could get up and go about getting dressed, etc. Occasionally though, It would take a few hours to maybe half a day before it would let up enough that I could get back into circulation. The problem disappeared after I eliminated all of my food sensitivities from my diet.

I'm pretty sure that like most of the other "satellite" symptoms of the disease (the ones that most GI specialists don't even realize are connected with the disease), this one is caused by the leaky gut syndrome associated with gluten and other food sensitivities, that allows gluten peptides into the bloodstream, to be circulated to, and deposited in, many other organs, including the brain (gluten can cross the blood/brain barrier).

Tex

JamesEcuador · Post by **JamesEcuador** » Wed Aug 13, 2014 5:19 pm

Hi Maryse

Yep, I get dizziness combined with nausea as soon as I wake up and most of the time it dies off after 30 minutes. Sometimes it can continue for most of the day - especially when I'm constipated. I've totally cut out my food intolerances and only eat a bland diet with a few ingredients and things have improved but it still happens in some shape or form every morning. Very annoying!

Deb · Post by **Deb** » Wed Aug 13, 2014 5:21 pm

I had it pretty badly especially while lying down in bed. Mine has improved but I think it is from treating my thyroid more than my MC.

C.U.B. girl · Post by **C.U.B. girl** » Wed Aug 13, 2014 7:45 pm

Yes -- Most recently was when my current flare was at its peak a month or two ago. It seems to be worse after I've been on antihistamines for many days in a row -- almost as if any fluid in the inner ear "thickens" and doesn't drain, so it triggers the vertigo. If I stop the antihistamine and take Mucinex for 2-3 days, it usually goes away. Hard to find the right balance (no pun intended

) since I need to take an antihistamine for mast cell issues.

I have a theory that antihistamines may be why so many people have sinus infections --- the drying effect on mucous keeps it from draining, so it causes infection and inflammation as it remains in the sinuses. Of course, I have no scientific proof of that ---- just a lot of opportunity to observe the cycle over and over in family members who have allergies, and take antihistamines. They usually end up with a sinus infection, which results in antibiotics, and then they go back on the antihistamines and the cycle repeats itself….. And on occasion, they also suffer bouts of vertigo…..

Or, as Tex would say, I could be all wet….

Post by **tex** » Thu Aug 14, 2014 10:50 am

Cindy,

Hmmmmm. Interesting theory. At one time, I can remember saying that antihistamines are possibly the only medication that may not have significant side effect risks. But in the past few months we've become aware of a rebound effect from antihistamines, that apparently causes some of the very symptoms that antihistamines are thought to prevent. And now we begin to see even more of the dark side of antihistamines. Say it isn't so.

I'm fortunate that I don't have sinus problems, so I have no experience with that, but I'm well aware that sinus issues are common and can be not only miserable, but quite serious. You may be on to something, so we definitely need to keep our eyes and ears open for others who might have supporting or dissenting evidence.

Many members here who have a history of sinus issues have had excellent success at preventing sinus problems with regular use of neti pots. Have any of your family members ever tried one?

Tex

Gabes-Apg · Post by **Gabes-Apg** » Thu Aug 14, 2014 2:42 pm

At one time, I can remember saying that antihistamines are possibly the only medication that may not have significant side effect risks. But in the past few months we've become aware of a rebound effect from antihistamines, that apparently causes some of the very symptoms that antihistamines are thought to prevent. And now we begin to see even more of the dark side of antihistamines. Say it isn't so.

Not a dark side per say, they are way less harmful than majority of the medications being prescribed.

Antihistamines are a bandaid, they block the reactions, not treat the root cause.
We need a small amount of histamine for digestion, there are times we need small amount of inflammation.
Too much inflammation is harmful, long term blocking of natural processes causes other issues, affects the bodies natural process of filtering and detoxing. (As cindy mentions)

Post by **tex** » Thu Aug 14, 2014 4:27 pm

Tex

MaggieRedwings · Post by **MaggieRedwings** » Mon Aug 18, 2014 5:01 am

I am one of the dizzy ones. Entocort made the condition worse. Recently it has seemed better but looking up - bad for a birder - and lying in bed are the worse.

Love, Maggie