Newbie with more questions

Brief answers to many questions about Collagenous Colitis, Lymphocytic Colitis, Microscipic Colitis, and related autoimmune issues, can be found here. These concepts are covered in much greater detail elsewhere in these forums.

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Jetlange
Posts: 5
Joined: Sat Aug 09, 2014 12:18 pm

Newbie with more questions

Post by Jetlange »

Hi Everyone,
I haven't been on for awhile I've been reading Tex's book and reading again!
I have been DF & GF for months but have now removed soy too.
Won't be able to do testing for awhile just took my daughter to college. So I will
have to do elimination for now. I am entering my 4th month on Entocort doing 3mg every other day & ready to be off it do to side effects.
So on to my questions-
Has anyone used proflavanol to help with histamines?
Low-dose naltrexone is listed as being used for Crohn's & Ulcerative- does anyone have experience or info with this?

Thanks all! Julie
JLH
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Joined: Tue Jun 17, 2008 9:34 pm

Post by JLH »

YES, some of us are on LDN. We have a secret group on Facebook. PM me here if you would like to join us.

I have nothing to report either positive or negative so far. I was on 1.5 for a month, now on 3.0 and will go higher tonight or tomorrow.

See Monique's post on LDN. http://www.perskyfarms.com/phpBB2/viewt ... ht=miracle
DISCLAIMER: I am not a doctor and don't play one on TV.

LDN July 18, 2014

Joan
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tex
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Location: Central Texas

Post by tex »

Hi Julie,

I'm not aware of anyone here who has used proflavanol. Rather than to use supplements such as that, most of us do much better trying to control histamines by avoiding them in our diet, and using antihistamines, histame, or cromolyn sodium (Gastrocrom).

LDN seems to work best for MC patients who have other preexisting AI issues that are preventing diet changes from bringing remission from MC symptoms. Patients who do not have other significant AI issues typically do not seem to respond to LDN.

When everything else fails though, and remission is still elusive, it usually doesn't hurt to try LDN.

Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Jetlange
Posts: 5
Joined: Sat Aug 09, 2014 12:18 pm

Post by Jetlange »

Thanks for the reply. I haven't discussed what is next with my Dr she seems to feel that
I will drink Questran for the rest of my life to treat my LC. This is why I am trying to find
out all that I can before my next appt. The LDN was suggested by a compounding pharmacist
that is very involved in MS research.
Thanks all!

Julie :smile:
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