My second colonoscopy since being diagnosed w/MC 4years ago.

showstopa · Post by **showstopa** » Sat Sep 06, 2014 1:26 am

Hello to my MC family. I would like to share that I am scheduled for my second colonoscopy next week. My first one was October 1 2010 when I was initially diagnosed with MC. In May of 2012 I had to discontinue treatment due to the fact that I was laid of from my job and lost my insurance. Thanks to the Obamacare option that covers low income individuals, I am now able to see a doctor in hopes of working towards bringing my body to a more stable and dependable condition. I am a 37 year old male.

Having said that I want to know if there is any advice that you guys may want to share to help me help the doctor to help myself.

For the last couple of years I have been self medicating the MC situation due to the fact i could not afford anything else. I maintain a gluten free, dairy free, egg free, chocolate and caffeine free diet, spice and high frucose corn syrup free diet. This is just to avoid staying out of the emergency room.

I am still plugued with random bowel movemonts ranging from extreme constipation one week and the next could be extreme diaria. I use metamucil and pepto for extreme cases. I also stuggle with vomiting, nausua, and upperbody pain. I struggle with being functional for my partime job and in class i am at a disadvantage most days. I really want and need to be able to take care of myself.

I don't have any family aside from my cat and dog

. I find it hard to be functional like I was prior to the situation. I am planning to fight this with all i have in order to get my life back in order. So please if you guys can give me any advice to assist me to help myself. Thank you guys in advance my MC famiy!

TXBrenda · Post by **TXBrenda** » Sat Sep 06, 2014 1:48 am

Someone else will reply also. Have you tried eliminating soy? Soy gives my daughter fits but it doesn't seem to bother me. I only eat it in processed foods that I know of. Good luck on your healing journey.

nerdhume · Post by **nerdhume** » Sat Sep 06, 2014 3:59 am

Soy is the worst for me, and it's in almost everything processed, canned or frozen.

ldubois7 · Post by **ldubois7** » Sat Sep 06, 2014 6:08 am

You might want to try an elimination diet. After removing soy, eat a very simple diet of chicken or turkey & cooked squash to see if things calm down. The less variety right now, the better.
Your gut needs time & the right foods to heal. We have all been there & understand your struggles.
Keep asking questions until you find answers!

Martha · Post by **Martha** » Sat Sep 06, 2014 7:57 am

Dear Showstopa,

I too suggest eliminating soy from your diet. I never had nausea or vomiting, but soy makes me so exhausted I can hardly move.

As Theresa said, soy is in almost everything, so eliminating soy pretty much means you have to cook all your own food from scratch. It sounds hard, but there are actually still a lot of things to eat; just not processed things.

Broth is very healing. I make chicken broth by putting the bones of Kroger savory rotisserie chicken (I know this one is free of gluten, dairy and soy) in a crockpot, adding a tablespoon or so of vinegar (apple cider or white) and cooking it for 24 hours. I start it on high, and after it comes to a boil, I switch it to low. That makes a nice broth that can be used plain, or as a base for soup. I often add grated vegetables to a small pot of broth, and have a quick and easy soup.

The best of luck as you try to find your path to healing.

Martha

lisaw · Post by **lisaw** » Sat Sep 06, 2014 4:09 pm

Do you eat a low fiber diet? Raw veggies and most fruits can be difficult. Veggies should be well cooked. If you eat legumes, they can be problematic as well. You are on the right track.

Entocort helps some people here, but if your dr suggests it and you take it, you will want to stay on it at least 6 months, to avoid relapse. You may not be able to determine more intolerances at the highest dose, but should be able to, once you begin weaning down.

I know all of this must seem overwhelming. Hang in there, and hope you begin to see improvement soon!

Lisa

Lilja · Post by **Lilja** » Sun Sep 07, 2014 3:06 am

I cook broth from bones of lamb, chicken and cows. I let it simmer for at least 24 hours, and drink a couple of glasses of broth every day.

The broth contains a lot of gelatine, which make wonders to our intestines !

I also had an improvement in my D problems, when I started to take B-12 sublingual tablets, and also when I started to spray mangesium oil (100% pure fluid Magnesium Chloride) from Zechstein Seabed, on my stomach.

I wish you the best of luck!
Lilja

showstopa · Post by **showstopa** » Fri Sep 12, 2014 5:29 am

Thank you everyone for your replies. I had my colonoscopy yesterday morning and I meet back with my doctor in 2 weeks. My new doctor mentioned that my symptoms sound more like IBS. But my first colonoscopy revealed that I in fact have MC 4 years ago. The test should reveal a definitive answer. And hopefully my new doctor will have a strategy on how to handle this better. I reported for the midnight work shift the evening of my colonoscopy and was haunted with diarrhea that caused me pain, vomiting and nausea. So it looks like my system is right back to causing trouble even with hardly anything in my colon. I had rice salmon and mixed frozen veggies and GF oatmeal for breakfast.

BTW during my process of elimination of foods I realized soy did not give me problems ironically. I have issues with gluten, diary, caffeine, fried or spicy foods, chocolate, eggs, & high fructose corn syrup.

Thanks again for all of your replies