A Painkiller That Works? Any Ideas?

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wmonique2
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A Painkiller That Works? Any Ideas?

Post by wmonique2 »

Hello friends,

Anyone can recommend a pain killer for my hip/knee that works? Not an NSAID please. Topical is good. Natural is good. Must be anti-inflammatory.

Thanks,

Monique
Diagnosed 2011 with LC. Currently on Low Dose Naltrexone (LDN)
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tex
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Post by tex »

Monique,

Some LDN capsules use lactose as a filler, and that is notorious for causing muscle or joint pain such as you describe. Have you checked the ingredients in your capsules?

About the only "safe" painkiller options we have with MC is acetaminophen, tramadol, or narcotic-based products.

Tex
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wmonique2
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A Painkiller That Works? Any Ideas?

Post by wmonique2 »

Thanks Tex.

I don't use LDN caps. I use topical (transdermal). I've had this much longer than I've been using LDN but when I exercise rigorously it gets worse. I am trying to avoid acetaminophen which is not an NSAID (if I am correct). I am afraid to use any of the products you mentioned. Trying to see if anybody has used a topical that works or a natural remedy that might do the trick.

I have done the research but I want to hear what has worked for others.

Love,

Monique
Diagnosed 2011 with LC. Currently on Low Dose Naltrexone (LDN)
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Post by maestraz »

Hi Monique,
I use Voltaren gel (topical NSAID) and Lidoderm patches. Both are by prescription. I've had no problems with either one.
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Post by Sheila »

Hey Monique,
Pennsaid is a topical consisting of DMSO and voltaren. It works well. The RX is expensive if insurance doesn't cover it. Ask your doc for samples. I used samples until I was sure it worked.

How is the new book coming along? Looking forward to it.

Sheila W
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Post by garina »

Hi Monique,

I have severe osteoarthritis of the ankles and knees, and I periodically use Arnicare Gel for pain relief. It is OTC at the Health Food Store, and I think it is around $10-15. It is not a cure, but a temporary relief from time to time. I also use Voltaren topical and find that both work about the same.

I hope you find relief from your pain.

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Post by Spline Girl »

I have used: Lidocaine patches, diclofenac and ibuprofen in topical gel form (bought in Europe, but Voltaren should be the same). As for the pills: tramadol (or narcotics - I had to use oxycontin and lortab after surgery).
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Post by brookevale »

Hi Monique,

For my neuropathy my neurologist prescribed a cream I had to have compounded. I don't really use it anymore but it did help a little. It had baclofen, amitriptyline, and lidocaine in it. I have heard a cream compounded with ketamine is very helpful. Though in its IV or pill form, this drug ("special k") gets you high, in the cream form it doesn't have the same effect. The key is to find a saavy rheumatologist or other doctor who can come up with a good concoction. I know a lot of folks getting relief from compounded creams or gels.

I feel for you. I have had a raging tooth ache for 3 weeks, just had a root canal, and am STILL in pain. I ran out of codeine and took one 200 mg ibuprofen. Huge mistake! I have had normans for several months and had terrible stomach pains and diarrhea today. It wasn't worth it. :sad: I would NEVER put an NSAID on either. I tried Voltaren gel a few times and somehow it managed to upset my GI system.

I agree with Tex about the Tramadol. I use that occasionally and it helps my aches and pains and neuropathy. There's also neurontin/gabapentin. People don't think of that but it acts as a pain reliever on the GABA receptors as opposed to the opiate receptors. Some muscle relaxers help too. My husband has knee problems and can take Ibuprofen but he said the Skelaxin muscle relaxer he was recently prescribed helps.

Let us know what you end up doing.

Brooke
Strongly believe I have a form of MC that began to flare December 27, 2013.
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Post by CathyMe. »

Tramadol works wonders for my back/neck aches and no negative side effects for me.
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Post by brandy »

Hi Monique,

Topical:

bags of frozen peas as ice packs

Morton unscented epsom lotion, from Walmart, next to the epsom salts on shelf. Love this stuff. I've been getting a lot of sports injuries lately. Apply to area 4 x per day.

cold immersion pool at gym (I meet a lot of single guys there LOL.)

Dit Da Jow----this was somewhat dangerous. I think I got gluttened or soyed at jury duty first part of January. I could not bend my fingers after that. Immediately switched to voice recognition software for work and spent about 3 hours a night teaching my computer to understand my southern twang. (Microsoft voice recognition speaks "midwestern".) I went to the gym icy cold immersion pool for three weeks and immersed my arms to reduce inflammation. I met a guy at the cold immersion pool he told me to see an Indian healer (Seminole) for some Dit Da Jow that she sells in her shop. I went over to Otter's shop the next night. She is a Seminole healer. I was impressed with her. Immediately she told me to go GF, DF and soy free. I told her I was. She told me to eliminate nightshades. (I had not thought of that so I immediately eliminated nightshades.) She told me to change my mouse to something more ergonomic. She talked about everything we talk about on here. Told me to avoid corn due to the GMOs.

Then we moved onto the Dit Da Jow training. This product is traditionally used by karate guys to put on their hands after they karate chop through a board to reduce inflammation. I got a roller ball applicator (kind of like an Avon perfume applicator) and some Dit Da Jow. She told me it was critical to cover my hands with cotton gloves after application as the Jow was a poison if injested and a poison if I got it in my eyes.
One of the ingredients was grain alcohol. I wasn't sure about the "grain" part but I was in such severe pain I thought I'd give it a try. My finger pain was a level of 10 out of 10. Within 2 days of using the Jow my finger pain was a 2/10. By day 3 my finger pain was pretty much gone. Was the product a placebo? Did talking with Otter give me placebo effect? I felt much better after talking with her. Had the 3 weeks of icy cold plunge pool finally kicked in? Did eliminating night shades for two days eliminate the pain? The Dit Da Jow stuff was kind of dangerous......the fumes were strong.....i.e. I felt like I needed safety googles when applying due to the fumes, I smelled like a brewery, etc. The jow stains so if applying to knees you would need to wear old sweat pants on top.

NOTE TO MCers: I would try everything on this thread before trying Dit Da Jow as it is really strong stuff and somewhat dangerous. No way would I buy it on the internet. I'd check around at karate places and see if anyone is making it locally and pick some up local.

I'm going to have my Doc prescribe some of this so I have it on hand.
I use Voltaren gel (topical NSAID) and Lidoderm patches.
Last time we had this discussion I had my Doc give me a prescription for Tramadol which I have not used yet.

Brandy
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