Hi,
Newbie to the site. Couple quick questions:
1. How long should I expect it to take before the budesonide takes hold? It's been two weeks since I started and no change as of yet.
2. Have people generally experienced that exercise makes things worse? I thought I was making some progress and then worked out relatively hard on Friday and awoke to a Saturday morning that was one of my worst yet.
3. I've seen the posts about stopping all supplements except vitamin D. Does that include Bifido and L-Glutamine? (Am I correct that Bifido and L-Glutamine are common supplements for people with our challenge?)
Thanks,
Butch1224
Questions: Exercise, Budesonide, Bifido and L-Glutamine
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UkuleleLady
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Hi Butch,
Welcome. It took me a few months to get relief while on Budesonide, and that was with going gluten/dairy free. Others have had relief within a few days of taking Budesonide, so it can go either way. Hopefully you're one of the luckier ones and it will start helping soon. I recommend focusing on eating mostly meats, some mushy green veg and a non gluten carb that you can handle to calm the digestive tract.
I was getting certified as a personal trainer when the MC really hit last year. It was hard to diminish my exercise routine. I found that I couldn't handle running anymore, and reduced my strength routine to a maintenance program of squats, pull-ups, pushups, planks and lunges. That was pretty much all I could handle, 20 minutes or so of basic strength to keep my muscle tone. I'm better now after a year and a half and have resumed my running, but I'm never going to win any races. I just like to maintain my cardiovascular health as it keeps the asthma at bay.
As far as your 3rd question, I did stop all supplements except sublingual B12 and VitD. I also got a lot of sun to hopefully create more VitD.
Best wishes.
Nancy
Welcome. It took me a few months to get relief while on Budesonide, and that was with going gluten/dairy free. Others have had relief within a few days of taking Budesonide, so it can go either way. Hopefully you're one of the luckier ones and it will start helping soon. I recommend focusing on eating mostly meats, some mushy green veg and a non gluten carb that you can handle to calm the digestive tract.
I was getting certified as a personal trainer when the MC really hit last year. It was hard to diminish my exercise routine. I found that I couldn't handle running anymore, and reduced my strength routine to a maintenance program of squats, pull-ups, pushups, planks and lunges. That was pretty much all I could handle, 20 minutes or so of basic strength to keep my muscle tone. I'm better now after a year and a half and have resumed my running, but I'm never going to win any races. I just like to maintain my cardiovascular health as it keeps the asthma at bay.
As far as your 3rd question, I did stop all supplements except sublingual B12 and VitD. I also got a lot of sun to hopefully create more VitD.
Best wishes.
Nancy
If you want others to be happy, practice compassion. If you want to be happy, practice compassion. ~The Dalai Lama
Budesonide
It never helped me.......I went on LDN on July 18th and am hoping for results soon.
DISCLAIMER: I am not a doctor and don't play one on TV.
LDN July 18, 2014
Joan
LDN July 18, 2014
Joan
Hi Butch,
Welcome!
The Entocort will take hold faster if you go GF and DF. It could be many months if you continue eating gluten and dairy. I think I had solid stool in three days and constipation in 3 weeks but I was eating the few foods regimen by that point.....chicken, rice, and overcooked veggie and that is all I ate for several months.
I had to cut back on my exercise regimen. It didn't make things worse but the fatigue was mind numbing.
Suggest stick to just the D for awhile. (Until you get solid stool.)
Brandy.
Welcome!
The Entocort will take hold faster if you go GF and DF. It could be many months if you continue eating gluten and dairy. I think I had solid stool in three days and constipation in 3 weeks but I was eating the few foods regimen by that point.....chicken, rice, and overcooked veggie and that is all I ate for several months.
I had to cut back on my exercise regimen. It didn't make things worse but the fatigue was mind numbing.
Suggest stick to just the D for awhile. (Until you get solid stool.)
Brandy.
Hi Butch,
Welcome to the discussion board. You've already received some good suggestions, so I'll just address your last question.
When treating MC, less is typically better than more. IOW, most of us tend to do better if we consume less supplements (and certainly avoid the inflammatory foods that cause us to react). After we are in remission, then we can add additional supplements if we feel that we need them, and work on eating a more balanced diet. While we are still in recovery though, the goal is to achieve remission as quickly as possible, and the less variety we ingest, the easier it is to avoid irritating or inflammatory ingredients, so the faster we are likely to recover. A few of us can tolerate probiotics, but they typically don't help most of us while we are still reacting, and for many of us, probiotics can make our symptoms worse, or prevent us from reaching remission. Like a lot of things, in the real world probiotics rarely provide the benefits that are claimed by the ad writers.
Possibly 2 or 3 members here have posted that L-glutamine has helped them, but despite it's claimed muscle-healing properties, it rarely seems to help in most cases. After we are in remission there may be a better possibility that it might have benefits.
Again, welcome aboard, and please feel free to ask anything.
Tex
Welcome to the discussion board. You've already received some good suggestions, so I'll just address your last question.
When treating MC, less is typically better than more. IOW, most of us tend to do better if we consume less supplements (and certainly avoid the inflammatory foods that cause us to react). After we are in remission, then we can add additional supplements if we feel that we need them, and work on eating a more balanced diet. While we are still in recovery though, the goal is to achieve remission as quickly as possible, and the less variety we ingest, the easier it is to avoid irritating or inflammatory ingredients, so the faster we are likely to recover. A few of us can tolerate probiotics, but they typically don't help most of us while we are still reacting, and for many of us, probiotics can make our symptoms worse, or prevent us from reaching remission. Like a lot of things, in the real world probiotics rarely provide the benefits that are claimed by the ad writers.
Possibly 2 or 3 members here have posted that L-glutamine has helped them, but despite it's claimed muscle-healing properties, it rarely seems to help in most cases. After we are in remission there may be a better possibility that it might have benefits.
Again, welcome aboard, and please feel free to ask anything.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
I agree. If you cut gluten and dairy along with taking the budesonide, you will probably see results faster. I was down to one BM a day within three days of taking the drug…. but I went on a pretty restrictive diet at the same time. This drug can do wonders in letting you almost live your life again, but if you don't address the food issue, you are only masking symptoms that will only come back again once you are off the drug.
Good luck.
Leah
Good luck.
Leah
Thank you all very much for your quick responses.
I am on the elimination diet and have been GF/SF/DF for 2 weeks. (Need to find out what EF is.) I am feeling better generally but no change in the digestive tract. The elimination diet includes things like pumpkin seeds and almonds in my breakfest. I am now reading more about the autoimmune diet which tells me to eliminate both, and to ensure I eat as much, if not more, fish versus chicken or else risk having a very unfavorable Omega 6 to Omega 3 ratio. This particular author promotes continuing to take fish oil supplements to help bring that ratio more in balance. Thoughts??
This may all be addressed in Microscopic Colitis. I downloaded the Kindle version of the book to my iPad yesterday and plan to read it today.
Thanks again,
Butch
I am on the elimination diet and have been GF/SF/DF for 2 weeks. (Need to find out what EF is.) I am feeling better generally but no change in the digestive tract. The elimination diet includes things like pumpkin seeds and almonds in my breakfest. I am now reading more about the autoimmune diet which tells me to eliminate both, and to ensure I eat as much, if not more, fish versus chicken or else risk having a very unfavorable Omega 6 to Omega 3 ratio. This particular author promotes continuing to take fish oil supplements to help bring that ratio more in balance. Thoughts??
This may all be addressed in Microscopic Colitis. I downloaded the Kindle version of the book to my iPad yesterday and plan to read it today.
Thanks again,
Butch
Re: Questions: Exercise, Budesonide, Bifido and L-Glutamine
Hi Butch,Butch1224 wrote:Hi,
Newbie to the site. Couple quick questions:
1. How long should I expect it to take before the budesonide takes hold? It's been two weeks since I started and no change as of yet.
2. Have people generally experienced that exercise makes things worse? I thought I was making some progress and then worked out relatively hard on Friday and awoke to a Saturday morning that was one of my worst yet.
3. I've seen the posts about stopping all supplements except vitamin D. Does that include Bifido and L-Glutamine? (Am I correct that Bifido and L-Glutamine are common supplements for people with our challenge?)
Thanks,
Butch1224
EF is egg free. I had to cut out eggs from my diet, in addition to GF, DF and SF and that helped me immensely. I have recently been able to add them back in. I did not find glutamine to be helpful at all. Entocort was a life saver for me and it took a little over a week of my taking it to decrease my WD from 10-15 bouts a day to 1-2. I continued to exercise but my fatigue did make me lessen my weights and the intensity of my workouts. I would've gone crazy if I couldn't work out. It is a major stress reliever for me so I just listened to my body and made changes if needed.
Butch,
Fish oil is good. Just don't overdo it because like many oils, too much can cause D. I take a 1,200 mg capsule daily, and 1,000 mg of flax seed oil. Members who have tried 2 or 3 times that much have complained of D. But as always, YMMV.
There's not much point in worrying about a balanced diet until we have controlled our symptoms sufficiently to be able to do a decent job of absorbing nutrients again. Once we have some healing in place, then fine-tuning our nutritional balance will be much more helpful.
Tex
Fish oil is good. Just don't overdo it because like many oils, too much can cause D. I take a 1,200 mg capsule daily, and 1,000 mg of flax seed oil. Members who have tried 2 or 3 times that much have complained of D. But as always, YMMV.
There's not much point in worrying about a balanced diet until we have controlled our symptoms sufficiently to be able to do a decent job of absorbing nutrients again. Once we have some healing in place, then fine-tuning our nutritional balance will be much more helpful.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.