So normal, I don't know what is going on….TEX?

Feel free to discuss any topic of general interest, so long as nothing you post here is likely to be interpreted as insulting, and/or inflammatory, nor clearly designed to provoke any individual or group. Please be considerate of others feelings, and they will be considerate of yours.

Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh

Post Reply
Leah
King Penguin
King Penguin
Posts: 2533
Joined: Thu Feb 02, 2012 10:16 pm
Location: San Francisco Bay Area

So normal, I don't know what is going on….TEX?

Post by Leah »

Hi ALL I've been wanting to update and also ask opinions. For those of you who remember, radiation really put my remission to the test. About two weeks after I was done with it, my gut calmed down again. Then I started taking Tamoxifen AND i also started using magnesium lotion daily.
For the last month now, I have had the most perfect, formed, painless BMs of my life! I have also been able to eat things I normally could not. I even ate watermelon the other day ( and that would normally send me running to the bathroom within 20 minutes)! I cheated and ate something with butter and…. nothing. I have eaten regular chocolate with soy in it and … nothing. I've had Thai food that I also think had GF soy sauce in it. …. nothing. Tonight, I am testing tomato sauce on GF pasta. We'll see. It usually would give me pain.

I don't know what has made me so much better, but it seems like I am producing enzymes that I wasn't before. Food is just digesting better. ALSO, when I feel my right mid drift area, I use to always have a "hard" area that sometimes even stuck out like a lump ( I'm thin). Now, I only have a tiny area that is more in the middle under my bellybutton and my right side is flat.

What the heck is going on? Don't get me wrong, I'm loving it, but could magnesium make that big of a difference? Can Tamoxifen ( blocks estrogen receptors) have any effect?

Leah
User avatar
Gabes-Apg
Emperor Penguin
Emperor Penguin
Posts: 8332
Joined: Mon Dec 21, 2009 3:12 pm
Location: Hunter Valley NSW Australia

Post by Gabes-Apg »

Leah
I vote for the Magnesium,

in the past month I have had a couple of meals with dairy, soy, gluten, lettuce and various ingredients that I have not ingested for almost 5 years, and had next to no reactions. in my case, getting balance on histamine inflammation, taking the right supplements, (the right amounts of the supplements) and getting my metabolism working alot better has helped alot. This is the best my digestion has been in over 10 years.

wonderful news, hope the wellness continues
xo
Gabes Ryan

"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
lisaw
Adélie Penguin
Adélie Penguin
Posts: 168
Joined: Mon Nov 26, 2012 9:27 pm
Location: Chicago

Post by lisaw »

Leah:

So glad to hear it! You give lots of people hope!

Lisa
User avatar
tex
Site Admin
Site Admin
Posts: 35071
Joined: Tue May 24, 2005 9:00 am
Location: Central Texas

Post by tex »

Leah,

I have no idea. It could be either one of those, or a combination, because MC responds to hormones, and to magnesium.

But you are right — never look a gift horse in the mouth, and above all — enjoy.

Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
sseven
Little Blue Penguin
Little Blue Penguin
Posts: 31
Joined: Mon Aug 25, 2014 12:21 pm
Location: Lincoln, NE

Post by sseven »

Leah, that is really great news! Obviously, you are doing something right and that keeps us encouraged for our own journey through MC. Way to go!

Lisa is correct in saying that you give hope to so many of us (as do others on this board) and thank you for that.

Have a great day.

Sharon
User avatar
Zizzle
King Penguin
King Penguin
Posts: 3492
Joined: Thu Jul 22, 2010 9:47 am

Post by Zizzle »

That's great news!! My vote is on the lack of estrogen, but who knows. Maybe the radiation fried some of the pesky antibody producing lymph nodes? :wink: Enjoy the variety in your diet!!
1987 Mononucleosis (EBV)
2004 Hypomyopathic Dermatomyositis
2009 Lymphocytic Colitis
2010 GF/DF/SF Diet
2014 Low Dose Naltrexone
User avatar
Lesley
King Penguin
King Penguin
Posts: 2920
Joined: Sat Sep 03, 2011 11:13 pm
Contact:

Post by Lesley »

Leah, whatever it is - enjoy it!!
User avatar
nancyl
Rockhopper Penguin
Rockhopper Penguin
Posts: 780
Joined: Wed Dec 29, 2010 4:42 pm
Location: Massachusetts

Post by nancyl »

Hi Leah,
That is great news! Hmmm, maybe I'll have the same result when my radiation is complete and I begin taking Femara.

Nancy
Sheila
Rockhopper Penguin
Rockhopper Penguin
Posts: 1150
Joined: Wed May 18, 2011 5:10 am
Location: Palm Beach Gardens, Fl

Post by Sheila »

That's wonderful news, Leah. It's also amazing that the radiation and tamoxifen aren't effecting you adversely.

Maybe you have finally reached remission of your MC. I've noticed lately that a little butter, a little stress, perhaps some soy have had NO effect on me. It's been 3 years, off Entocort for several months, strict GF diet and I'm almost normal. Perhaps I've reached remission as well.

Thank you for sharing. It is always interesting to know how we are all doing, who's feeling better, who's not and why.

Sheila W
To get something you never had, you have to do something you never did.

A person who never made a mistake never tried something new. Einstein
User avatar
humbird753
Rockhopper Penguin
Rockhopper Penguin
Posts: 1014
Joined: Mon Nov 28, 2011 4:44 pm
Location: Wisconsin

Post by humbird753 »

Leah - I'm glad to hear you're doing so good.

I take magnesium in pill form, but have heard so many say the lotion is better. May I ask what brand you're using? Thank you.

Paula
Paula

"You'll never know how strong you are until being strong is the only choice you have."

"Life is not about waiting for the storm to pass... It's learning to dance in the rain."
Marcia K
Rockhopper Penguin
Rockhopper Penguin
Posts: 1397
Joined: Thu Apr 03, 2014 10:39 am
Location: PA

Post by Marcia K »

Good for you, Leah. I hope it continues! :smile:

Marcia
User avatar
carolm
Rockhopper Penguin
Rockhopper Penguin
Posts: 1346
Joined: Fri Sep 02, 2011 7:27 pm
Location: Kansas City

Post by carolm »

Hi Leah, So happy to hear you are doing well in all ways.

Carol
“.... people will forget what you said, people will forget what you did, but people will never forget how you made them feel.” Maya Angelou
Post Reply

Return to “Main Message Board”