Henry,
In the past 4 months or so I have had good results using high doses of Vit C, Magnesium, Zinc, to balance histamine/mast cell inflammation.
I went from taking antihistamines 5-6 days out of 7, to none.
If you are interested let me know.
HI from Holland!
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
HI Henry. read as much as you can on this forum. You may want to order Tex's book. Just click on the picture of it in the upper right hand corner of this page. big Help,
Everyone here has given you good advice. I was on entocort for 6 months…… slowly weaning down the dose. You must change your diet to be able to get off the drug. The biggest offenders is gluten, dairy, soy, and eggs. I decided to keep eggs in,, but got rid of the rest . I also got rid of the "irritants" which are foods that can cause issues on an inflamed gut, but can be tested back into the diet after you are off the drugs and feeling better. Those include : fiber foods. RAW FRUITS AND VEGGIES, salads, acid foods like tomato products and citrus, caffeine, chocolate, processed foods…etc. Eat simply. …. Cooked proteins, well cooked veggies, white rice, sweet potato, GF Chex cereals with almond milk…. you get the idea.
It it the fastest way to get better. Like I said, once you are off the drug, you can test each food back in for three days to see if you are OK with it. When your gut is inflamed, it's best to keep it simple.
good luck
Leah
Everyone here has given you good advice. I was on entocort for 6 months…… slowly weaning down the dose. You must change your diet to be able to get off the drug. The biggest offenders is gluten, dairy, soy, and eggs. I decided to keep eggs in,, but got rid of the rest . I also got rid of the "irritants" which are foods that can cause issues on an inflamed gut, but can be tested back into the diet after you are off the drugs and feeling better. Those include : fiber foods. RAW FRUITS AND VEGGIES, salads, acid foods like tomato products and citrus, caffeine, chocolate, processed foods…etc. Eat simply. …. Cooked proteins, well cooked veggies, white rice, sweet potato, GF Chex cereals with almond milk…. you get the idea.
It it the fastest way to get better. Like I said, once you are off the drug, you can test each food back in for three days to see if you are OK with it. When your gut is inflamed, it's best to keep it simple.
good luck
Leah
Welcome Henry. I am currently in remission. I am one that took the 'short route'. Meaning from dx to remission only took me about 4 months.
I had the enterolab tests, then took Uceris for a couple of months while going GF, DF, SF, EF and eliminating all raw food other than banana & avocado. I ate meats and well cooked, easily digested veggies.
As I began to heal I got off the Uceris and added some foods back in.
The tests will tell you what foods to avoid and will do it much quicker than the elimination diet. Also taking Uceris (Entocort or other steroids) for a short period of time while you get the diet right will help speed things along. Just remember the meds only mask symptoms, the only way to have long term success is to stop eating whatever is causing the inflammation.
I had the enterolab tests, then took Uceris for a couple of months while going GF, DF, SF, EF and eliminating all raw food other than banana & avocado. I ate meats and well cooked, easily digested veggies.
As I began to heal I got off the Uceris and added some foods back in.
The tests will tell you what foods to avoid and will do it much quicker than the elimination diet. Also taking Uceris (Entocort or other steroids) for a short period of time while you get the diet right will help speed things along. Just remember the meds only mask symptoms, the only way to have long term success is to stop eating whatever is causing the inflammation.
Theresa
MC and UC 2014
in remission since June 1, 2014
We must all suffer one of two things: the pain of discipline or the pain of regret. ~Jim Rohn
MC and UC 2014
in remission since June 1, 2014
We must all suffer one of two things: the pain of discipline or the pain of regret. ~Jim Rohn
Just wanted to let y'all know that things are going well! I have been off the Entocort for 4 months now and since I started taking anti-histamines (3 months ago) the situation stabilized. So happy that after 3 years I am finally of the Entocort!
I am now slowly tapering the anti-histamine and see if I can do without in the future. Next month I will have my blood examined. Hopefully certain levels are up to normal again!
I am now slowly tapering the anti-histamine and see if I can do without in the future. Next month I will have my blood examined. Hopefully certain levels are up to normal again!
Welcome henry.
Everyone here has given you great advice. Tex has written a book that is pictured in the upper right corner of this page. if you click on it, you can order it. It's a great source of information.
I am three years out from my Dx and want to be the voice of hope :) Yes, at the beginning, I stuck to a diet of mostly cooked meats,eggs, cooked veggies, white rice and rice products, corn tortillas , GF Chex cereals with almond milk, almond butter, avocados, olives…. and after six months, tested and then added potatoes ( yay). Only drank water and decaf tea and only used olive or coconut oil. And yes, it was hard and a bit depressing, but the diet combined with Entocort worked like a charm. I was able to slowly wean down and then off of the drug within 6 months. Slow and steady wins this race.
The good news is that as time has gone on ( with some setbacks along the way), I have been able to add many foods back into my diet. I can now eat raw veggies again and some fruit also. So happy to have salad back! I can also have some beans. SF chocolate is a treat as well as Jelly Bellies. Sugar doesn't seem to bother me anymore. A healed gut is the goal for you right now. If you do the hard work now, your future will be brighter :)
PS OTC Antihistamines have also helped with my remission.
Good luck
Leah
Everyone here has given you great advice. Tex has written a book that is pictured in the upper right corner of this page. if you click on it, you can order it. It's a great source of information.
I am three years out from my Dx and want to be the voice of hope :) Yes, at the beginning, I stuck to a diet of mostly cooked meats,eggs, cooked veggies, white rice and rice products, corn tortillas , GF Chex cereals with almond milk, almond butter, avocados, olives…. and after six months, tested and then added potatoes ( yay). Only drank water and decaf tea and only used olive or coconut oil. And yes, it was hard and a bit depressing, but the diet combined with Entocort worked like a charm. I was able to slowly wean down and then off of the drug within 6 months. Slow and steady wins this race.
The good news is that as time has gone on ( with some setbacks along the way), I have been able to add many foods back into my diet. I can now eat raw veggies again and some fruit also. So happy to have salad back! I can also have some beans. SF chocolate is a treat as well as Jelly Bellies. Sugar doesn't seem to bother me anymore. A healed gut is the goal for you right now. If you do the hard work now, your future will be brighter :)
PS OTC Antihistamines have also helped with my remission.
Good luck
Leah
Hi Henry,
Thank you so much for the update. It's always very enlightening to learn what has worked for others, and what has not worked. That's one of the most important benefits of this discussion board, in my opinion.
I hope that your remission continues, and you feel better with each passing day.
Tex
Thank you so much for the update. It's always very enlightening to learn what has worked for others, and what has not worked. That's one of the most important benefits of this discussion board, in my opinion.
I hope that your remission continues, and you feel better with each passing day.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.