Monique,
So sorry to hear you are having to go thru yet another health problem (like MC isn't enough).
Will keep you in my thoughts and prayers for a good outcome and speedy recovery.
An Antihistamine Discovery
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Monique, do take your time in finding a skilled surgeon. Mine was excellent and I am thankful. One of my parathyroids was severed during the thyroidectomy but was successfully transplanted back into my shoulder muscle. All four are still doing their job. I've had no calcium issues or vocal problems. I was never concerned about the scar but some people are sensitive to it but it healed well and doesn't look bad. I was given the option to have one lobe removed depending on the findings but I insisted it all be removed. It's a truely personal choice but I didn't want to risk the cost and heal time of a future second surgery. I also read it can be more difficult to regulate meds with one lobe but I imagine that is also an individual thing too.
I had several totally encapsulated papillary mico carcinomas that were removed and no further treatment was needed. I will still have to do followup ultrasounds to monitor the area and bloodwork but that's doable. I feel fortunate I didn't need RAI and am not sure if I would have went through with it if asked. Mine was caught early and by accident in my attempts to get the docs to look at my "normal" thyroid. It is controversial about removing the thyroid for such small nodules when it seems to be trending towards the "wait and see" approach. I don't regret having mine removed. Now it's just waiting to find a doctor who isn't opposed to T3 meds!
It is overwhelming but you're one tough cookie and will do great! I wish you all the best. Keep us up to date.
I had several totally encapsulated papillary mico carcinomas that were removed and no further treatment was needed. I will still have to do followup ultrasounds to monitor the area and bloodwork but that's doable. I feel fortunate I didn't need RAI and am not sure if I would have went through with it if asked. Mine was caught early and by accident in my attempts to get the docs to look at my "normal" thyroid. It is controversial about removing the thyroid for such small nodules when it seems to be trending towards the "wait and see" approach. I don't regret having mine removed. Now it's just waiting to find a doctor who isn't opposed to T3 meds!
It is overwhelming but you're one tough cookie and will do great! I wish you all the best. Keep us up to date.
Deb
"Do not follow where the path may lead. Go instead, where there is no path, and leave a trail.
-Ralph Waldo Emerson
2007 CC
2013 thyroid cancer- total thyroidectomy
2013 Hashimoto's - numbers always "normal"
2017 Lyme's Disease
"Do not follow where the path may lead. Go instead, where there is no path, and leave a trail.
-Ralph Waldo Emerson
2007 CC
2013 thyroid cancer- total thyroidectomy
2013 Hashimoto's - numbers always "normal"
2017 Lyme's Disease
Marcia,
I hope the results turn out to be just fine.
You and I apparently feel the same way about the TSH test used by the medical community. As far as I'm concerned, it may well be the most counterproductive medical development in history, as far as the health of thyroid patients are concerned.
Tex
I hope the results turn out to be just fine.
You and I apparently feel the same way about the TSH test used by the medical community. As far as I'm concerned, it may well be the most counterproductive medical development in history, as far as the health of thyroid patients are concerned.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Mastocytosis
humbird753
Paula,
I don't know if I'm doing this procedure right but I wanted to send you a message.
I have just been discovering that I have a problem with mast cells. I was diagnosed with hay fever many years ago and I have had allergies all of my life. Doctors have told me since then that I have perennial allergic rhinitis. That's about all that they told me about it. I did do the 23 and me gene analysis and I do have a lot of mutations.
In addition to MCC I also have CTCL which is a non-Hodgkin's lymphoma. Tex was questioning if that dr. ever looked at mast cells. They did not. I had a biopsy that told them I had mycosis fungoides.
Jean
Paula,
I don't know if I'm doing this procedure right but I wanted to send you a message.
I have just been discovering that I have a problem with mast cells. I was diagnosed with hay fever many years ago and I have had allergies all of my life. Doctors have told me since then that I have perennial allergic rhinitis. That's about all that they told me about it. I did do the 23 and me gene analysis and I do have a lot of mutations.
In addition to MCC I also have CTCL which is a non-Hodgkin's lymphoma. Tex was questioning if that dr. ever looked at mast cells. They did not. I had a biopsy that told them I had mycosis fungoides.
Jean
You might think you understood what I said but what you don't realize is that what I said was not what I meant!
Mast cells
Tex,
Thank You! I wish that I had a doctor nearby that knows half of what you know. I get most of my information from this website. When I was first diagnosed with the MCC after about 50 years of suffering from it, the gastroenterologist did not even bother to tell me the report from my colonoscopy. It was two years later that I asked them for a report and it was in there but I had not been told. Then the clinic told me that it did not matter what I ate. It was this Forum that led me to the information to get the testing that confirmed what I thought. Later when I told a doctor that I had perennial allergic rhinitis as I had been told by another doctor, and she said "no you have seasonal allergies!" And the beat goes on!
Jean
Thank You! I wish that I had a doctor nearby that knows half of what you know. I get most of my information from this website. When I was first diagnosed with the MCC after about 50 years of suffering from it, the gastroenterologist did not even bother to tell me the report from my colonoscopy. It was two years later that I asked them for a report and it was in there but I had not been told. Then the clinic told me that it did not matter what I ate. It was this Forum that led me to the information to get the testing that confirmed what I thought. Later when I told a doctor that I had perennial allergic rhinitis as I had been told by another doctor, and she said "no you have seasonal allergies!" And the beat goes on!
Jean
You might think you understood what I said but what you don't realize is that what I said was not what I meant!
Jean,
You're very welcome. It's a real shame that most doctors apparently don't take this disease seriously enough to feel it worth their time to try to learn a lot more about it.
Many don't understand allergies very well, either. And most don't understand food sensitivities at all.
Tex
You're very welcome. It's a real shame that most doctors apparently don't take this disease seriously enough to feel it worth their time to try to learn a lot more about it.
Many don't understand allergies very well, either. And most don't understand food sensitivities at all.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Antihistamines
Thanks again Tex. I had been going mostly with the gluten-free but now I am discovering that's probably just the tip of the iceberg. I know that I have a lot of different problems and they are probably autoimmune and my allergies are certainly not least of the matter.
My histamine levels have been high and I was just reading that I should eat less protein and concentrate that on fish beans soy and dairy. Swell. That from Dr. Weil on the Internet. I had just made a new effort to stay away from dairy and soy and leafy vegetables like they want you to eat.
Jean
My histamine levels have been high and I was just reading that I should eat less protein and concentrate that on fish beans soy and dairy. Swell. That from Dr. Weil on the Internet. I had just made a new effort to stay away from dairy and soy and leafy vegetables like they want you to eat.
Jean
You might think you understood what I said but what you don't realize is that what I said was not what I meant!
Hi J.,
Welcome to our Internet family. An antihistamine taken to treat MC should show results (improvement) by the next day if it's going to work for you, but just taking an antihistamine is not likely to resolve MC by itself. You have to have changed your diet to avoid all the food sensitivities that are causing your inflammation first. And it usually takes weeks or months for the inflammation to decline after the diet is changed. Antihistamines can be effective later in the treatment cycle for most people, especially when ending a budesonide treatment regimen.
Again, welcome aboard, and please feel free to ask anything.
Tex
Welcome to our Internet family. An antihistamine taken to treat MC should show results (improvement) by the next day if it's going to work for you, but just taking an antihistamine is not likely to resolve MC by itself. You have to have changed your diet to avoid all the food sensitivities that are causing your inflammation first. And it usually takes weeks or months for the inflammation to decline after the diet is changed. Antihistamines can be effective later in the treatment cycle for most people, especially when ending a budesonide treatment regimen.
Again, welcome aboard, and please feel free to ask anything.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Hi Tex,
I'm not sure this is how I respond to your post! I hope so.
Thank you for the information about antihistamines. i'm in the process of trying to figure out this whole MC thing! I greatly appreciate all that you have done to help with this search! I have changed my diet, and also I'm going to send for lab results through enterolab. I'm currently gf, no dairy, almost no fruits and vegetables, and I do food grouping. I'm intrigued by the idea of antihistamines, because I do have some allergy symptoms.
Thanks, again!
I'm not sure this is how I respond to your post! I hope so.
Thank you for the information about antihistamines. i'm in the process of trying to figure out this whole MC thing! I greatly appreciate all that you have done to help with this search! I have changed my diet, and also I'm going to send for lab results through enterolab. I'm currently gf, no dairy, almost no fruits and vegetables, and I do food grouping. I'm intrigued by the idea of antihistamines, because I do have some allergy symptoms.
Thanks, again!