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Discussions on the details of treatment programs using either diet, medications, or a combination of the two, can take place here.

Moderators: Rosie, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh

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Gabes-Apg
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Post by Gabes-Apg »

Keep eating the bland foods, small amounts and be patient and give the gut time to heal..

Not all practitioners are familiar with MC, it is not the same as other IBD's.
Gabes Ryan

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Adele13348
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Post by Adele13348 »

Hey Tex~
I met with the dietician today and it was actually a good visit. I was able to work out a number of things that I wasn't sure of and she was very open to what I had learned here. Haven't heard back from my dr. re: the referral for the food allergy test but it may be he has to refer me to a larger hospital to get that done (we're near Cooperstown - population 2500). But if he won't do it, I have another option. We will be leaving here Jan 1 and heading for Arizona so I COULD order the test from there. Next question - how much does the EnteroLab tests cost? Approximately. Thanks again. I continue to make progress but am still very tired most of the time.
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tex
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Post by tex »

Hi Adele,

That's certainly good news about the visit with the dietician.

The EnteroLab tests that most members here choose are the combination of the A1 and C1 tests. That combination is discounted to $539, and it tests for the 15 most common food sensitivities for MC patients. Or, the A1 tests, which tests for the 4 most common food sensitivities (gluten, dairy, soy, and eggs), costs $269. Here's a link to a description of the tests. If you scroll down a bit, you can see the A1 tests listed separately.

https://www.enterolab.com/StaticPages/T ... #PanelA1C1

If you call or email the lab, they will be happy to give you the insurance codes for the tests. Then if you call your insurance company, they can tell you if your policy covers those test codes, and/or whether a doctor would need to order the tests in order for them to be covered by insurance.

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Adele13348
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Post by Adele13348 »

Well, its been about 10 days and I thought I'd let you know that I haven't starved to death. I have taken all your advice (thank you, thank you) and can now eat potatoes, ground lamb (thanks for the tip!), carrots, bananas and........let's have a drum roll here........WHITE WINE!! I feel so much better that I'm now getting cabin fever from spending too much time at home. It's my "safe place". Not good since we have several holiday parties plus my husbands retirement coming up within the next month. I have to figure out how I'm going to survive those things.

Re: my dr. and the food allergy testing referral, I finally had a lengthy discussion with him last evening wherein it became apparent that he had no idea what I was asking him for or how to go about getting it for me. It seems like he spent more time trying to convince me that Enterolab and food allergy testing in general was voodoo medicine or at least lacking in validity. My husband who is a PA has also been pooh-poohing the testing although he has been supportive of my food consumption (until he brought home pizza last night and I called him a bad name.....he later apologized).

At any rate, I am working the program and feel better.... physically, at least. I can't wait til the holidays are over and we can head south. BTW, we got about 2 inches of snow last night here in upstate NY and the high temp today was about 34. Yuck.....
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tex
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Post by tex »

Hi Adele,

That's definitely good news that you're doing better.

Since most mainstream medical professionals don't have the foggiest idea how to properly treat MC, it's not surprising that they wouldn't understand or recommend tests that work for us. That's one of the reasons why they can't figure out how to treat the disease. :roll:

This is a pretty good little cool spell for so early in the season. Our high yesterday (way down here in Central Texas) was 39, but it managed to get up to 47 today. I hope this isn't a preview of what winter holds in store for us, because as early as it seems to be getting started, it could be a real bear by January. :sigh:

Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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