Blueberry,
Thanks for posting the link for that test kit.
Tex
Colonoscopy
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Patricia,
Thank you for sharing your opinion on Prepopik. That's good news, and very helpful for decision-making in the future.
FWIW, your colon was described in exactly the same way as mine (tortuous and redundant).
Tex
Thank you for sharing your opinion on Prepopik. That's good news, and very helpful for decision-making in the future.
FWIW, your colon was described in exactly the same way as mine (tortuous and redundant).
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
aquilegia
That sounds like my father! He's turning 70 next month and has excitedly joked a few times recently about the medical tests he will no longer need to do. One of his lunch friends is a retired physician. He apparently talks with the guys about tests to do and what to avoid.
Tex- thanks! I've been thinking I'd try the new test myself some day.
That sounds like my father! He's turning 70 next month and has excitedly joked a few times recently about the medical tests he will no longer need to do. One of his lunch friends is a retired physician. He apparently talks with the guys about tests to do and what to avoid.
Tex- thanks! I've been thinking I'd try the new test myself some day.
Tex - LOL! Interesting - interesting word!
Tests for adrenal fatigue? Are you kidding? She is so backward in her approach it's not funny. So is the Mayo clinic BTW, so I don't expect much more from her. The interesting thing is they say that symptoms of AF could actually be an "accepted DX" like FMS! Ha! I remember when I was told over and over that my FMS symptom were in my head because there was no such thing!
When I said that on one website for PPS people 90% of them had decreased motility problems she pooh poohed it (pun intended). Her dad had polio and had horrible sequelae. He didn't have poor motility, therefore it couldn't be true.
I had a hearing test the other day (my tinnitus is driving me nuts). The audiologist has digestive issues, and got no more joy from the GIs or her PCP than I ever have. She is also dealing with it via diet.
I am sure I still have inflammation in my system. If not all in my colon (and I know there must be some there because, although I am not having almost daily spontaneous BMs which are WAY better than they used to be, I am still getting floaties, some mucous, occasional pencil thin ones etc.) then in different joints etc. My back alone must be inflamed given the pain.
I think I told you about my D3 use when I got that result. You told me then that I must be using the D I am taking to help me deal with the inflammation, which is why I did a mental face palm when she said that. And telling me that no one needs their level to be more than 20? Everything she or my GI tell me contradicts what I learn here and through trial and error. 4 years of it.
Makes me SO tired!
Tests for adrenal fatigue? Are you kidding? She is so backward in her approach it's not funny. So is the Mayo clinic BTW, so I don't expect much more from her. The interesting thing is they say that symptoms of AF could actually be an "accepted DX" like FMS! Ha! I remember when I was told over and over that my FMS symptom were in my head because there was no such thing!
When I said that on one website for PPS people 90% of them had decreased motility problems she pooh poohed it (pun intended). Her dad had polio and had horrible sequelae. He didn't have poor motility, therefore it couldn't be true.
I had a hearing test the other day (my tinnitus is driving me nuts). The audiologist has digestive issues, and got no more joy from the GIs or her PCP than I ever have. She is also dealing with it via diet.
I am sure I still have inflammation in my system. If not all in my colon (and I know there must be some there because, although I am not having almost daily spontaneous BMs which are WAY better than they used to be, I am still getting floaties, some mucous, occasional pencil thin ones etc.) then in different joints etc. My back alone must be inflamed given the pain.
I think I told you about my D3 use when I got that result. You told me then that I must be using the D I am taking to help me deal with the inflammation, which is why I did a mental face palm when she said that. And telling me that no one needs their level to be more than 20? Everything she or my GI tell me contradicts what I learn here and through trial and error. 4 years of it.
Makes me SO tired!
If she actually requires every patient to have every possible symptom before making a diagnosis for any disease, I'll bet she doesn't diagnose many diseases.Lesley wrote:Her dad had polio and had horrible sequelae. He didn't have poor motility, therefore it couldn't be true.
Yes, if my vitamin D level was in the 20s, I would be very uneasy. That level may work for someone who doesn't have any AI issues, but for us, a level that low is asking for trouble, IMO.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
He didn't take any biopsy samples (this was over 14 years ago, back when GI docs thought that only "middle-aged women" developed MC), so he couldn't find anything wrong with me (even though I was so sick that I was down to hide and bones). At my last followup with him he told me that there was nothing wrong with me, and suggested that I might want to see a psychiatrist, so probably he did consider me to be tortuous and redundant.aquilegia wrote:Tex, it is better that he described your colon, not you, as tortuous and redundant.
Bless his ignorant heart.Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
I just looked up my test results. My vitamin D, 25-Hydrox was 18.3 ng/ml when they tested it at the beginning of this month ':shock:'tex wrote:
Yes, if my vitamin D level was in the 20s, I would be very uneasy. That level may work for someone who doesn't have any AI issues, but for us, a level that low is asking for trouble, IMO.
Tex
Patricia,
Yes, as I suspected in the other thread (without knowing your actual vitamin D blood level), that seems to confirm why the Entocort is losing efficacy for you. Having an adequate vitamin D level is very important for recovery from MC (and for preventing the development of other autoimmune diseases).
Tex
Yes, as I suspected in the other thread (without knowing your actual vitamin D blood level), that seems to confirm why the Entocort is losing efficacy for you. Having an adequate vitamin D level is very important for recovery from MC (and for preventing the development of other autoimmune diseases).
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Patricia,
I have been taking 15,000 ius daily, and I live in CA. Couldn't get it above 45. I am waiting for my current results. If things have improved I will lower my dose.
Tex - you got that right! I remember when Polly suggested PPS as a reason for my motility problems it made SO much sense. I have had C ever since I can remember. I don't have breathing problems and her dad did. Does that make it less valid? I was never in an iron lung because polio didn't get to those motor neurons for me. Still got to others.
She makes me feel that I am, how to say this, a bit of a whiner hypochondriac? She didn't believe I had a dx of MC until I made her find it. And when I broke my back she refused to believe I was in as much pain as I said I was. It's a hassle to change her and I don't have the energy to invest now. I will if she continues to pooh-pooh me, and I said that intentionally, of course.
My vit b12 count is 1244. Am I taking too much? She will tell me yes, but I do not pay attention to her.
I have been taking 15,000 ius daily, and I live in CA. Couldn't get it above 45. I am waiting for my current results. If things have improved I will lower my dose.
Tex - you got that right! I remember when Polly suggested PPS as a reason for my motility problems it made SO much sense. I have had C ever since I can remember. I don't have breathing problems and her dad did. Does that make it less valid? I was never in an iron lung because polio didn't get to those motor neurons for me. Still got to others.
She makes me feel that I am, how to say this, a bit of a whiner hypochondriac? She didn't believe I had a dx of MC until I made her find it. And when I broke my back she refused to believe I was in as much pain as I said I was. It's a hassle to change her and I don't have the energy to invest now. I will if she continues to pooh-pooh me, and I said that intentionally, of course.
My vit b12 count is 1244. Am I taking too much? She will tell me yes, but I do not pay attention to her.
.jpg){kind=avatar}
Lesley,
My family practice doc who is pretty supportive of most things I do did think I was overdoing it on the vitamin D. I was taking 5000iu and my vitamin D level that I had tested was 75. She said my level was too high and I should reduce the amount of D I took in half. Well I didn't reduce it and this last test my vitamin d level had fallen to 58. I am going to up my vitamin d. She also said that unless there is reason to suspect a deficiency (I can't remember what she said were good reasons) doctors are no longer even ordering tests for people. Sometimes (and sometimes most of the time) the only thing you can do with doctors is ignore them. Considering people hypochondriacs and whiners is a longstanding medical tradition utilized when the doctor doesn't know what's wrong with you.
I am glad you have had some improvement. I am hoping you see even more.
Jean
My family practice doc who is pretty supportive of most things I do did think I was overdoing it on the vitamin D. I was taking 5000iu and my vitamin D level that I had tested was 75. She said my level was too high and I should reduce the amount of D I took in half. Well I didn't reduce it and this last test my vitamin d level had fallen to 58. I am going to up my vitamin d. She also said that unless there is reason to suspect a deficiency (I can't remember what she said were good reasons) doctors are no longer even ordering tests for people. Sometimes (and sometimes most of the time) the only thing you can do with doctors is ignore them. Considering people hypochondriacs and whiners is a longstanding medical tradition utilized when the doctor doesn't know what's wrong with you.
I am glad you have had some improvement. I am hoping you see even more.
Jean
I doubt that there are any health risks involved at that level, but it might not hurt to back off on the dosage a little bit. Because I have peripheral neuropathy, I like to keep my level up at the top of the so-called "normal" range. It's been so long that it's been checked though, that for all I know my level might be higher than yours.Lesley wrote:My vit b12 count is 1244. Am I taking too much? She will tell me yes, but I do not pay attention to her.
I read somewhere that the body is supposed to eliminate any unneeded amounts, but apparently that doesn't always happen.Of course most so-called "normal" ranges are usually rather conservative, and they're determined for "normal" people. The last time I checked, neither you nor I were "normal".
MC and other issues have booted us out of the "normal" category long ago. Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
She might have mentioned obvious symptoms of rickets in a patient as a reason to check vitamin D level, but considering all the cases of childhood rickets being misdiagnosed as child abuse these days, I seriously doubt that most doctors would recognize rickets if it bit them on the end of their nose.Jean wrote:She also said that unless there is reason to suspect a deficiency (I can't remember what she said were good reasons) doctors are no longer even ordering tests for people.
Taking a vitamin D supplement without a diagnosis of rickets is apparently almost as sinful as adopting a gluten-free diet without a celiac diagnosis.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
My doc seems to think the only thing not normal about me is that I "think" I am sick. Next time I get that attitude I am going to call her on it.
Another interesting thing is that my sodium has gone up into the normal range for the first time for many, many years! LDN? My energy has improved to. Probably connected?
Oh, and BTW - she told me that "they" have relaxed the guidelines re: BP. older people can have BPs of 150/90 and it's perfectly safe.
I wish she would accept the same things of cholesterol, of which mine is still too high, though better.