Thank- You
Star
JUST DIAGNOSED WITH CC HAVE QUESTIONS PLEASE HELP
Moderators: Rosie, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
JUST DIAGNOSED WITH CC HAVE QUESTIONS PLEASE HELP
HI all I'm new to this site and have some questions I hope you can help me with. I've had CC for over 2 yrs. it was horrible still is. I'm on Entocort 3mg 2x per day now. My question is does any one else with CC have canker sores and get pink eye with flare ups. I would like a detailed description of all symptoms that come with this diesease. I've had the canker sores from day one, but with this flare up which is really bad entocort not helping much, this time I have pink eye too. HELP any information is appretiated.
Thank- You
Star
Thank- You
Star
thank-you
Thank-You mfor your answers I appreciate it.This is all new to me and I want to know every thing I can about this disease. I'm so very glad I found this site, sometimes I feel really alone and most people don't understand what I'm going through. I'm blessed that there is this site with people who know exactly what I'm going through thank you.
Star
Star
Star,
I moved our responses to your post on the Main Message Board, where everyone else was responding. You can find them all there. If you're not sure where that is, this link will take you there:
http://www.perskyfarms.com/phpBB2/viewtopic.php?t=10336
I felt the same way before I found this great group of people, years ago - I felt all alone, and hopeless. No one really understands MC, unless they have the disease.
We're very glad that you found us, and I hope we can answer your questions.
Tex
I moved our responses to your post on the Main Message Board, where everyone else was responding. You can find them all there. If you're not sure where that is, this link will take you there:
http://www.perskyfarms.com/phpBB2/viewtopic.php?t=10336
I felt the same way before I found this great group of people, years ago - I felt all alone, and hopeless. No one really understands MC, unless they have the disease.
We're very glad that you found us, and I hope we can answer your questions.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Re: thank-you
It does help immensely to know you aren't alone in this.starz123 wrote:Thank-You mfor your answers I appreciate it.This is all new to me and I want to know every thing I can about this disease. I'm so very glad I found this site, sometimes I feel really alone and most people don't understand what I'm going through. I'm blessed that there is this site with people who know exactly what I'm going through thank you.
Star
There is so much information on this forum it is hard to absorb it all, I am still looking around and finding out all sorts of things. You might just stumble on something that will click and make sense for you and make you better.
Deb
Hypothyroid 06/01
LC 12/06
Dwell on the positive.
Happiness is a result of a decision to be happy.
LC 12/06
Dwell on the positive.
Happiness is a result of a decision to be happy.
Dear reader,
Sorry for my English....
I am a member since a few years, but it is so difficult for me to read evything in the right way. I am Dutch. I saw that there are about 6 or 7 members in the Netherlands, but they were not on line in 2014. I would like to contact them. is that possible?
I think i can get a lot of information from the potty people, but it's so difficult to find it.
I was diagnosed in january 2011 with lc and started with entocort; sometimes I stopped and I managed to keep control. But since half a year it does not work any more (D.). I was tested for gluten intolerance in may 2014 and this was negative. My specialist suggested last week that i shoud skip the gluten for 2 or 3 weeks and see what happens. And now, after 4 days, i have already a positive result!!!! I am amazed and wonder what else i should skip.......
I also use hormons (estradiol / dydrogestrion) since december 2012 with good results for my hormonal problems, but now I saw the information about hormons......
Is there anyone with simular problems? I would like to get advise, thank you in advance.
Sonja
Sorry for my English....
I am a member since a few years, but it is so difficult for me to read evything in the right way. I am Dutch. I saw that there are about 6 or 7 members in the Netherlands, but they were not on line in 2014.
I would like to contact them. is that possible? I think i can get a lot of information from the potty people, but it's so difficult to find it.
I was diagnosed in january 2011 with lc and started with entocort; sometimes I stopped and I managed to keep control. But since half a year it does not work any more (D.). I was tested for gluten intolerance in may 2014 and this was negative. My specialist suggested last week that i shoud skip the gluten for 2 or 3 weeks and see what happens. And now, after 4 days, i have already a positive result!!!! I am amazed and wonder what else i should skip.......
I also use hormons (estradiol / dydrogestrion) since december 2012 with good results for my hormonal problems, but now I saw the information about hormons......
Is there anyone with simular problems? I would like to get advise, thank you in advance.
Sonja
Hi Sonja,
Welcome. After you post 4 more messages, the system will allow you to search the archives, using key words, and that will make it much easier for you to find past discussions that might be helpful for you. And you will also be able to see the email addresses for each member at the bottom of their posts. That will allow you to contact them directly by email.
Yes, almost every one of us here is sensitive to gluten, even though the blood tests that our doctors use showed negative results. Most of us are also sensitive to all dairy products, and many of us are sensitive to soy and all legumes. Some of us are also sensitive to eggs, and other foods. Many of us here control our symptoms by changing our diet, and without taking any medications.
Hormone replacement therapy causes problems for many members here (but not everyone), and there have been many discussions about this problem.
Also, if you will post your questions on the Main Message Board http://www.perskyfarms.com/phpBB2/viewforum.php?f=2 you will get more responses, because many members do not read all of these discussion forums.
Again, welcome to the group. We will try to help you in any way we can.
Tex
Welcome. After you post 4 more messages, the system will allow you to search the archives, using key words, and that will make it much easier for you to find past discussions that might be helpful for you. And you will also be able to see the email addresses for each member at the bottom of their posts. That will allow you to contact them directly by email.
Yes, almost every one of us here is sensitive to gluten, even though the blood tests that our doctors use showed negative results. Most of us are also sensitive to all dairy products, and many of us are sensitive to soy and all legumes. Some of us are also sensitive to eggs, and other foods. Many of us here control our symptoms by changing our diet, and without taking any medications.
Hormone replacement therapy causes problems for many members here (but not everyone), and there have been many discussions about this problem.
Also, if you will post your questions on the Main Message Board http://www.perskyfarms.com/phpBB2/viewforum.php?f=2 you will get more responses, because many members do not read all of these discussion forums.
Again, welcome to the group. We will try to help you in any way we can.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Hoi Tex,
Thank you very much for your friendly answer. I even don't now how I found your reply...., because I get the message that there a no messages for me. And you did answer so quick!
I didn't realise that I was not on the main message board. I try to do that soon.
Thank you once more. It's nice to be welcome and to know that I'm not alone with this problem.
Sonja
Thank you very much for your friendly answer. I even don't now how I found your reply...., because I get the message that there a no messages for me. And you did answer so quick!
I didn't realise that I was not on the main message board. I try to do that soon.
Thank you once more. It's nice to be welcome and to know that I'm not alone with this problem.
Sonja
tex wrote:Hi Sonja,
Welcome. After you post 4 more messages, the system will allow you to search the archives, using key words, and that will make it much easier for you to find past discussions that might be helpful for you. And you will also be able to see the email addresses for each member at the bottom of their posts. That will allow you to contact them directly by email.
Yes, almost every one of us here is sensitive to gluten, even though the blood tests that our doctors use showed negative results. Most of us are also sensitive to all dairy products, and many of us are sensitive to soy and all legumes. Some of us are also sensitive to eggs, and other foods. Many of us here control our symptoms by changing our diet, and without taking any medications.
Hormone replacement therapy causes problems for many members here (but not everyone), and there have been many discussions about this problem.
Also, if you will post your questions on the Main Message Board http://www.perskyfarms.com/phpBB2/viewforum.php?f=2 you will get more responses, because many members do not read all of these discussion forums.
Again, welcome to the group. We will try to help you in any way we can.
Tex
Welcome Sonja,
You are at the right place for help. Just like Tex said after you post a couple of more times you will be able to research and find so many wonderful posts from everyone here. We are like a family and everyone wants to help you get this under control.
Go slow, read and ask for help as you travel on this journey.
Love,
Connie
You are at the right place for help. Just like Tex said after you post a couple of more times you will be able to research and find so many wonderful posts from everyone here. We are like a family and everyone wants to help you get this under control.
Go slow, read and ask for help as you travel on this journey.
Love,
Connie
Live, Laugh & Love Much
Sonja- I am also new here. Every forum board has a slightly different way to do things so it takes a little to learn- but I think this forum seems to work very nicely. The no new messages "for you" probably means no private messages.
Near the top of this page you will see this headline-
MICROSCOPIC COLITIS SUPPORT Forum Index -> Frequently Asked Questions about CC, LC, and MC
If you click on the first part- MICROSCOPIC COLITIS SUPPORT Forum Index ->
It should take you to a page that shows ALL the forum activity since your last visit. (not just posts to your topic)
Be sure when you make a post that you want to follow closely to check the box at the bottom to get a notification when a reply is posted- it will send you one e mail.
I go between reading the new posts and searching the archives and just trying to learn from the old posts. There is so much to learn from the experiences and knowledge of others. One of my symptoms is a little bit of dizzyness and lightheadedness and it makes it very hard for me to take in information right now- but I am trying. I can't imagine trying to learn this complicated information in another language! I hope that you are able to contact some dutch speaking friends.
-Sarah
Near the top of this page you will see this headline-
MICROSCOPIC COLITIS SUPPORT Forum Index -> Frequently Asked Questions about CC, LC, and MC
If you click on the first part- MICROSCOPIC COLITIS SUPPORT Forum Index ->
It should take you to a page that shows ALL the forum activity since your last visit. (not just posts to your topic)
Be sure when you make a post that you want to follow closely to check the box at the bottom to get a notification when a reply is posted- it will send you one e mail.
I go between reading the new posts and searching the archives and just trying to learn from the old posts. There is so much to learn from the experiences and knowledge of others. One of my symptoms is a little bit of dizzyness and lightheadedness and it makes it very hard for me to take in information right now- but I am trying. I can't imagine trying to learn this complicated information in another language! I hope that you are able to contact some dutch speaking friends.
-Sarah