Need some direction

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tex
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Post by tex »

Lilja wrote:I am convinced that there is a correlation between the pains and the lack of methyl folate, and perhaps the two others gave the opposite effect when they were not taken along with methyl folate. I don't know.
Yes, because the vitamins are out of balance when 1 of them is missing.

Methylfolate is available in 1,000 mcg capsules, by several manufacturers. Take a look at this list from Amazon:

http://www.amazon.com/s/ref=nb_sb_ss_i_ ... Caps%2C650

I used the first one on the list, Life Extension brand. They are free of all of the common allergens that we have to avoid. Note that they are available in a 3-pack, at a lower price per bottle.

http://www.amazon.com/Extension-Optimiz ... e+1000+mcg

With these, I took 3 capsules per day, so a bottle will last for 33 days. A 3-pack would last 99 days.

You're very welcome,
Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
brandy
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Post by brandy »

Lilja,

Wow, can you get the prescription (at least here in the US) of Metanx....1 pill dosage. It might be much cheaper for you. Maybe tell the doc you tried the over the counter vitamin version with good results.

Brandy
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Post by Lilja »

brandy wrote:Lilja,

Wow, can you get the prescription (at least here in the US) of Metanx....1 pill dosage. It might be much cheaper for you. Maybe tell the doc you tried the over the counter vitamin version with good results.

Brandy
Metanx does not exist on the Norwegian market, unfortunately. Norway is known for being very restrictive in all matters, especially is the medicine market strictly regulated, for better or for worse. But, since all health care is free of charge, there has to be a strong regulation as to what medication can be approved. And of course, since Metanx was not invented here, sceptisim rules. Silly, but true.

Lilja
Collagenous Colitis diagnosis in 2010
Psoriasis in 1973, symptom free in 2014
GF, CF and SF free since April, 2013
Lilja
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Post by Lilja »

tex wrote:
Lilja wrote:I am convinced that there is a correlation between the pains and the lack of methyl folate, and perhaps the two others gave the opposite effect when they were not taken along with methyl folate. I don't know.
Yes, because the vitamins are out of balance when 1 of them is missing.

Methylfolate is available in 1,000 mcg capsules, by several manufacturers. Take a look at this list from Amazon:

http://www.amazon.com/s/ref=nb_sb_ss_i_ ... Caps%2C650

I used the first one on the list, Life Extension brand. They are free of all of the common allergens that we have to avoid. Note that they are available in a 3-pack, at a lower price per bottle.

http://www.amazon.com/Extension-Optimiz ... e+1000+mcg

With these, I took 3 capsules per day, so a bottle will last for 33 days. A 3-pack would last 99 days.

You're very welcome,
Tex
I just rush in here to thank you. I will look better into this tomorrow.

Hugs and wishes for a good pre-Christmas holiday (as we say here)

Lilja
:smile:
Collagenous Colitis diagnosis in 2010
Psoriasis in 1973, symptom free in 2014
GF, CF and SF free since April, 2013
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Post by tex »

You're very welcome Lilja. Hugs and wishes for a good pre-Christmas holiday for you, too.

Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Lilja
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Post by Lilja »

tex wrote:
Lilja wrote:I am convinced that there is a correlation between the pains and the lack of methyl folate, and perhaps the two others gave the opposite effect when they were not taken along with methyl folate. I don't know.
Yes, because the vitamins are out of balance when 1 of them is missing.

Methylfolate is available in 1,000 mcg capsules, by several manufacturers. Take a look at this list from Amazon:

http://www.amazon.com/s/ref=nb_sb_ss_i_ ... Caps%2C650

I used the first one on the list, Life Extension brand. They are free of all of the common allergens that we have to avoid. Note that they are available in a 3-pack, at a lower price per bottle.

http://www.amazon.com/Extension-Optimiz ... e+1000+mcg

With these, I took 3 capsules per day, so a bottle will last for 33 days. A 3-pack would last 99 days.

You're very welcome,
Tex
Unfortunately, when I tried to order the 1.000 mcg capsules Amazon told me that this could not be shipped to Norway.
When I tried to get a higher dose on bigvits.uk, the cost was so high that I would have to pay customs.

We are not allowed to import goods from abroad that cost more than NOK 200.- which is equivalent to approx USD 26.- unless we pay customs (which in most cases is approx the same cost as the article itself).

I guess I will have to continue the low dose of 400 mcg, but that's ok. As long as it helps.
And it does :-)

Lilja
Collagenous Colitis diagnosis in 2010
Psoriasis in 1973, symptom free in 2014
GF, CF and SF free since April, 2013
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Post by tex »

That's very disappointing. Norway's imports are really restricted. I was going to offer to send you a supply of these as a gift, but apparently that would be illegal. According to the U. S. Postal Service regulations, there is a long list of items that we cannot send to Norway (specifically). Included among Norway's prohibitions are:
Pharmaceutical products of any kind, whether of synthetic extraction or classified as naturopathic preparations.
The only exceptions are:
Products of animal origin intended for consumption/use by humans or pet animals are subject to authorization by the Veterinary Department of the Ministry of Agriculture in addition to customs clearance permission. Exception is made for some products. A list can be obtained from the Ministry of Agriculture in Norway.
But these are vegetarian, so they are not even eligible for that exception. And I doubt that the Ministry of Agriculture would approve the importation of vitamins, anyway. :sigh:

Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Post by Lilja »

tex wrote:That's very disappointing. Norway's imports are really restricted. I was going to offer to send you a supply of these as a gift, but apparently that would be illegal. According to the U. S. Postal Service regulations, there is a long list of items that we cannot send to Norway (specifically). Included among Norway's prohibitions are:
Pharmaceutical products of any kind, whether of synthetic extraction or classified as naturopathic preparations.
The only exceptions are:
Products of animal origin intended for consumption/use by humans or pet animals are subject to authorization by the Veterinary Department of the Ministry of Agriculture in addition to customs clearance permission. Exception is made for some products. A list can be obtained from the Ministry of Agriculture in Norway.
But these are vegetarian, so they are not even eligible for that exception. And I doubt that the Ministry of Agriculture would approve the importation of vitamins, anyway. :sigh:

Tex
Thank you Tex, that was a very generous thought.

I guess I'll just have to continue ordering from Bigvits, and make sure that I don't run out of them.

Thank you for the old year, it has been a real pleasure knowing you!

I wish you all a healthy and prosperous New Year!

Lilja
PS: I say it with ABBA:

https://www.youtube.com/watch?v=LRa8g-m4UNk
Collagenous Colitis diagnosis in 2010
Psoriasis in 1973, symptom free in 2014
GF, CF and SF free since April, 2013
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Post by tex »

Lilja,

Maybe another way to order a more potent formulation of methylfolate (at a reasonable price) will become available to you in the new year.

It has been a pleasure meeting you, also. Thank you for the link. ABBA is my all-time favorite vocal group.

And I join you in wishing all of us a healthy and prosperous new year.

May we all need less of this in the new year:

:toiletroll:

Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Lilja
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Post by Lilja »

tex wrote:Lilja,

Maybe another way to order a more potent formulation of methylfolate (at a reasonable price) will become available to you in the new year.

It has been a pleasure meeting you, also. Thank you for the link. ABBA is my all-time favorite vocal group.

And I join you in wishing all of us a healthy and prosperous new year.

May we all need less of this in the new year:

:toiletroll:

Tex
I didn't know that ABBA was known in the U.S. as well.

You included a good illustration of what we don't need in the new year

:grin:
Lilja
Collagenous Colitis diagnosis in 2010
Psoriasis in 1973, symptom free in 2014
GF, CF and SF free since April, 2013
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Post by Gabes-Apg »

Liilja,

Do they have 'compounding pharmacy' s in Norway?
These are pharmacies that operate to the 'old fashioned' principles of pharmacy, preparing powders to individual formulations. These types of pharmacies can prepare capsules to the required specification.
And obtain better quality sources of things like B12 etc.

It may not be cheaper per say, but it might give you an easier means to get the dosage you want.

In Aus you don't need a doctors script to get vitamins/minerals from the compounding pharmacy.
Gabes Ryan

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Post by Lilja »

Gabes-Apg wrote:Liilja,

Do they have 'compounding pharmacy' s in Norway?
These are pharmacies that operate to the 'old fashioned' principles of pharmacy, preparing powders to individual formulations. These types of pharmacies can prepare capsules to the required specification.
And obtain better quality sources of things like B12 etc.

It may not be cheaper per say, but it might give you an easier means to get the dosage you want.

In Aus you don't need a doctors script to get vitamins/minerals from the compounding pharmacy.
Good idea, Gabes!

Yes, we have a few. I haven't thought of the possibility of contacting them and ask if they can produce my Methyl Folate in the old fashioned way.

The one I know best is near our mountain cabin, where we usually between Christmas Eve and New Year's Eve gather friends and arrange skiing competitions. We arrange ski jumps, small slalom slopes etc with torches and grilling outside. In 15 degrees below Celsius ... Since we only have an outdoor toilet (real old fashioned cabin from the 50's made from wood from old baracks made by Germans during the war...), I haven't arranged this for the last four years.

Memories :-)

Lilja
Collagenous Colitis diagnosis in 2010
Psoriasis in 1973, symptom free in 2014
GF, CF and SF free since April, 2013
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Post by Gabes-Apg »

It might be worth investigating, as you can ask them to make up the B combo to your specs and only have to take 1-2 capsules a day.

the other advantage to using a compounder, is that you can ask them to use 'safe' exciepients (powders put with the ingredients) to suit your intolerance's.
mine are always Gluten and Soy free. If people react to Rice and or corn, you can also request rice free, corn free etc..

There are quite a few here in Aus, that you can ring or email your order and they will post it to you.. They keep your details on file so reordering is very easy. The ones I have spoken to here, there are many patients that have multiple intolerances, the demand for soy free items is increasing.
The ones here also source good quality liquid products and lingual products as demand for these are also increasing...

We still have wooden outhouses (toilets) here in Aus!
due to the warm weather they frequently have spiders (some poisonous) and frogs (none are poisonous) ... one has to check the surrounds before 'dropping ya dacks' (taking your pants off)
Gabes Ryan

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Post by Greengoddess »

Are there any risks associated with high levels of supplements?
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tex
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Post by tex »

Yes. If you're planning to take the B vitamins being discussed here (the active forms of vitamins B-6, B-9, and B-12), they need to be in the proper balance. Taking too much methylfolate (or too much folate) can cause problems.

For people who have certain MTHFR gene mutations being discussed, folate can build up and cause problems such as high levels of homocysteine (which can cause heart issues). Therefore, those individuals should avoid folate as much as possible, and take supplements containing the active form, methylfolate (along with the proper amounts of B-12 and B-6) in order to resolve methylation problems.

As long as these 3 B vitamins are taken in the proper balance, and in the active form, they shouldn't be harmful, even for someone who does not need them. My previous PCP takes them to help minimize the effects of aging. They help to maintain nerve function, memory, and mental sharpness, for example.

While any excess amounts of many vitamins are automatically purged from the body, certain vitamins can be risky when taken in excess amounts. So one has to follow guidelines in order to avoid getting into trouble.

Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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