a different bowel subject
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a different bowel subject
Hi everyone, Iam still getting on fine, I have to watch my diet like a hawk and once this year I had a short spell on endocort but really my colitis is under control, eating out can still be an issue, here in Ireland its fine but in Spain where we spend the winter its quite difficult, something I find I cant eat anymore is salami, I love it but even gluten free goes through me, so does some ham, I think its the preservative. Now on the subject of bowels, two weeks ago my daughter developed a twisted bowel, needless to say this is a medical emergency, she had to be ressusatated and they operated, they managed to untwist it and removed the adhesian that had caused it and luckily they did revive the part that was dying so no need to cut the bowl open, I returned from Spain to look after her, she is home now and I wonder if anyone knows anything about this situation, ie, why did an adhesion happen and what is the recovery period, how long before one can look after ones self again, any knowledge out ther much appreciated ,to have her home now is great so I will wish you all a happy christmas, Beni
Hi Beni,
It's good to hear that you are managing to keep your symptoms under control. Many of us (including me) have noticed that we can no longer eat certain foods, even though they should be safe for us to eat. I have a hunch that is because by cutting certain foods out of our diet, our gut bacteria population balances change, and sometimes these changes interfere with the digestion of other foods.
One of my uncles developed a twisted bowel a number of years ago. By rolling him over in certain ways, the hospital staff was able to untwist his bowel. But unfortunately, a few days later the same thing happened again, and so they operated and left him with a colostomy. He was well up in age, so recovery took a long time.
I have had emergency bowel surgery twice in the last 5 years (but mine was for different reasons). Complete healing took at least 6 to 8 weeks (before I could do any heavy lifting), but I was able to do many things (that didn't require heavy lifting) after only 2 or 3 weeks of healing. If her bowel was not resected, she should recover relatively quickly. She just has to be careful for 5 or 6 weeks, to make sure that the incision heals properly.
I always assumed that bowel twisting was usually caused by a failure of the mesentary to properly support the intestines at a critical location. But in cases where it is caused by an adhesion, that's a different problem. Adhesions are usually the result of prior surgery. IOW, abdominal surgery causes subsequent adhesion of internal organs, especially if the organs were "handled" during previous surgical procedures. A very common cause of adhesions for women of course is endometriosis.
When my second surgery was performed (4 years after the first), the surgeon found that my intestines had many, many adhesions.
Merry Christmas Beni, and I hope that you and your daughter and your families will be able to enjoy the magic of the spirit of Christmas, despite having to change your plans so that you could help with your daughter's recovery from surgery.
Tex
It's good to hear that you are managing to keep your symptoms under control. Many of us (including me) have noticed that we can no longer eat certain foods, even though they should be safe for us to eat. I have a hunch that is because by cutting certain foods out of our diet, our gut bacteria population balances change, and sometimes these changes interfere with the digestion of other foods.
One of my uncles developed a twisted bowel a number of years ago. By rolling him over in certain ways, the hospital staff was able to untwist his bowel. But unfortunately, a few days later the same thing happened again, and so they operated and left him with a colostomy. He was well up in age, so recovery took a long time.
I have had emergency bowel surgery twice in the last 5 years (but mine was for different reasons). Complete healing took at least 6 to 8 weeks (before I could do any heavy lifting), but I was able to do many things (that didn't require heavy lifting) after only 2 or 3 weeks of healing. If her bowel was not resected, she should recover relatively quickly. She just has to be careful for 5 or 6 weeks, to make sure that the incision heals properly.
I always assumed that bowel twisting was usually caused by a failure of the mesentary to properly support the intestines at a critical location. But in cases where it is caused by an adhesion, that's a different problem. Adhesions are usually the result of prior surgery. IOW, abdominal surgery causes subsequent adhesion of internal organs, especially if the organs were "handled" during previous surgical procedures. A very common cause of adhesions for women of course is endometriosis.
When my second surgery was performed (4 years after the first), the surgeon found that my intestines had many, many adhesions.
Merry Christmas Beni, and I hope that you and your daughter and your families will be able to enjoy the magic of the spirit of Christmas, despite having to change your plans so that you could help with your daughter's recovery from surgery.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
re twisted bowel
thanks for the reply, my daughter is in a very bad way , she is back in hospital now with an abdominal cavity infection she is being scanned right now with a view to going back in!!!!!!! she has never had an op so I dont know why she has had this happen, I KNOW colitis is so bad, I am lucky mine is under control but beleive me this bowel stuff with her is life and death, I cant bieleve my colitis hasnt flared, so high on adrenaline I suppose, thanks for your reply Beni
Beni,
I'm very sorry to hear that she has an infection. I was very, very lucky that I never had to deal with an infection as a result of either surgical procedure. But it is always a risk. Yes, depending on the location, they may have to go back in to remove it, because antibiotics can't always get to where they need to go to effectively stop an infection.
All of us here wish her the best of luck, and we're sending our best thoughts, and hoping that her surgical team will be able to stop the infection quickly.
Tex
I'm very sorry to hear that she has an infection. I was very, very lucky that I never had to deal with an infection as a result of either surgical procedure. But it is always a risk. Yes, depending on the location, they may have to go back in to remove it, because antibiotics can't always get to where they need to go to effectively stop an infection.
All of us here wish her the best of luck, and we're sending our best thoughts, and hoping that her surgical team will be able to stop the infection quickly.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Gabes-Apg
- Emperor Penguin
- Posts: 8332
- Joined: Mon Dec 21, 2009 3:12 pm
- Location: Hunter Valley NSW Australia
Beni
I have had surgery 3 times for bowel obstructions. (all before age 25)
at Age 25 (post 3rd surgery) I was told that my large intestine has no ligaments holding it in place, and this has caused the chronic adhesions.
There were incidents in my teens when i was hospitalised with suspected appendix. They would put me on a drip and confine me to bed, the pain would go away after 3 days. Despite xrays, ultrasounds, blood tests the only conclusion they could provide was 'growing pains'
based on what I have learnt since my MC Dx 5 years ago, i believe that a combo of the genetic flaw, inflammation, (digestion and hormonal) nutritional deficiencies cause the weakness/adhesions.
and the mystery hospitalisations were twists/obstructions starting. the break from eating and rest allowed them to self heal.
there were many times prior to my MC dx, when i was overtired, and had bad IBS symptoms, just turning too quickly in bed, or other jolting type activity (ie go karts) would result in sharp pain. When overtired I would get stabbing pains that were so bad i could not stand unaided
down the track another 5 years and I was told the bowel had adhered to my left ovary (due to adhesions)
With the MC Dx, and implementing the low inflammation, nurturing MC management plan (avoidance of as many triggers as possible both food, environmental, stress etc) I have not had the sharp pains, or issues when turning in bed.
When I think back to the times the issues where chronic to require surgery, i was under periods of high stress, and was not looking after myself diet wise etc. I guess the inflammation levels in my body got too high and rest alone was not enough.
Hope this helps
I have had surgery 3 times for bowel obstructions. (all before age 25)
at Age 25 (post 3rd surgery) I was told that my large intestine has no ligaments holding it in place, and this has caused the chronic adhesions.
There were incidents in my teens when i was hospitalised with suspected appendix. They would put me on a drip and confine me to bed, the pain would go away after 3 days. Despite xrays, ultrasounds, blood tests the only conclusion they could provide was 'growing pains'
based on what I have learnt since my MC Dx 5 years ago, i believe that a combo of the genetic flaw, inflammation, (digestion and hormonal) nutritional deficiencies cause the weakness/adhesions.
and the mystery hospitalisations were twists/obstructions starting. the break from eating and rest allowed them to self heal.
there were many times prior to my MC dx, when i was overtired, and had bad IBS symptoms, just turning too quickly in bed, or other jolting type activity (ie go karts) would result in sharp pain. When overtired I would get stabbing pains that were so bad i could not stand unaided
down the track another 5 years and I was told the bowel had adhered to my left ovary (due to adhesions)
With the MC Dx, and implementing the low inflammation, nurturing MC management plan (avoidance of as many triggers as possible both food, environmental, stress etc) I have not had the sharp pains, or issues when turning in bed.
When I think back to the times the issues where chronic to require surgery, i was under periods of high stress, and was not looking after myself diet wise etc. I guess the inflammation levels in my body got too high and rest alone was not enough.
Hope this helps
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
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Gabes-Apg
- Emperor Penguin
- Posts: 8332
- Joined: Mon Dec 21, 2009 3:12 pm
- Location: Hunter Valley NSW Australia
Beni,
Knowing what I know now....
I wish I had been gluten and dairy free from childhood....
To minimise the issues happening again, I would encourage your daughter to consider gluten free, minimal dairy, and start supplementing with Vit D3 etc.
Knowing what I know now....
I wish I had been gluten and dairy free from childhood....
To minimise the issues happening again, I would encourage your daughter to consider gluten free, minimal dairy, and start supplementing with Vit D3 etc.
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama