Xmas travel and possible UTI

[Greengoddess]

Hi all! But of a roller coaster this last while. Went off gluten about 10 days ago. Within about 36 hrs I noticed first the bladder symptoms easing, then upper gastric and finally burning and itching gone. However I accidentally ingested some in the place I was a guest. About 12 hrs later ALL symptoms re emerged nearly worse then before. Which was quite scary. Quite educational though because it if horribly obvious what is going on. My GI warned ME about having to reintroduce the potential culprit. He is unusual in that his first comment had been " we have to consider and intolerance". I gather this is unusual. I have yet to have multidisciplinary teams investigate! So onwards and hopefully upwards. This condition is of course not completey curable but like a fire that can be dampened down permanently. Does anyone else find coeliac patients quite hostile to the idea of gluten intoleranc in others?

[tex]

Hi Greengoddess,

Yes, such prompt and intense reactions help to keep us more alert, and it removes all doubt from our mind about whether or not a food should be avoided.

Yes, I (and I'm sure many others here) have certainly noticed that not only many (though not all) celiacs, but many doctors also, can be very hostile about who is allowed to claim that they are sensitive to gluten. Apparently those celiacs (with that attitude) feel sorry for themselves and consider themselves to be members of an exclusive club of some sort, and anyone who lacks official credentials (an official celiac diagnosis) is not allowed in the club. The doctors resent us because we claim to be sensitive to gluten even though we fail to show positive results on their poor-sensitivity celiac blood tests. Instead of resenting us, and denying our sensitivity, they need to get their act together and develop a blood test that actually works, to replace the ones they are using that don't work.

Tex

[JFR]

Yes, I (and I'm sure many others here) have certainly noticed that not only many (though not all) celiacs, but many doctors also, can be very hostile about who is allowed to claim that they are sensitive to gluten. Apparently those celiacs (with that attitude) feel sorry for themselves and consider themselves to be members of an exclusive club of some sort, and anyone who lacks official credentials (an official celiac diagnosis) is not allowed in the club. T

Tex

This kind of dynamic is at work in other areas of health. I used to do mental health advocacy work and chaired a community board that allocated state mental health dollars in southern Maine so I had a lot of interactions with all kinds of "stakeholders". This was in the 90's when the issue of parity in insurance coverage for "mental illness" was a fairly new concept. What constituted a legitimate illness and therefore worthy of insurance coverage and what was considered a lesser problem and therefore not worthy was a hot button issue. Both the mental health providers and the mental health consumers took stands with certain consumer groups, based on diagnosis, considering themselves more worthy than others and deriving support for their exclusivity from both mental health professionals and legislators. Family groups got in the act too. To me this kind of divide and conquer strategy is always kind of sad, especially when people seem to derive their self-esteem from the perceived seriousness/legitimacy of their illnesses.

Jean

[Lilja]

Hi,

I used to have this feeling of pressure on my bladder all the time, until I started my diet. It felt like I had to go, but then only a few drops would come, and the pressure did not disappear. A few months into my new diet, all this went away.

And yes, I once was a member of a coeliac forum, but I had to quit. The members there were not nice to us who claimed we could not tolerate gluten without being coeliacs.

Lilja

[MBombardier]

It's a perverse sort of one-upmanship.