Off Entocort for 7 weeks - update
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Hi Brandy,
Thank you very much for your answer. Yes, I eat yoghurt and cheese each day. In the morning yoghurt with muesli and for lunch bread with Dutch cheese and in this hollidaytime also rather much French cheese.
I think it is a very good advise to discontinue the yoghurt and cheese, but also very difficult.
Further: I think I have to be patient, but this is also difficult.....
Sonja
Thank you very much for your answer. Yes, I eat yoghurt and cheese each day. In the morning yoghurt with muesli and for lunch bread with Dutch cheese and in this hollidaytime also rather much French cheese.
I think it is a very good advise to discontinue the yoghurt and cheese, but also very difficult.
Further: I think I have to be patient, but this is also difficult.....
Sonja
Sonja,
Regarding the muesli, please be aware that most oats are not gluten-free, because they are cross-contaminated with wheat. And most of us here (including me) also react to pure oats, so it doesn't matter whether it is is contaminated with wheat or not, we still react to it.
I had to stop eating all dairy products, because even though they do not cause me to have diarrhea, they cause osteoporosis. After I stopped eating dairy products, my fingers stopped growing crooked.
Tex
Regarding the muesli, please be aware that most oats are not gluten-free, because they are cross-contaminated with wheat. And most of us here (including me) also react to pure oats, so it doesn't matter whether it is is contaminated with wheat or not, we still react to it.
I had to stop eating all dairy products, because even though they do not cause me to have diarrhea, they cause osteoporosis. After I stopped eating dairy products, my fingers stopped growing crooked.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Hi Tex,
My muesli is surely GF, buth as far as the oats, maybe you are right. But my BM are really ok now. Thats makes me very happy!
Now I am specially worried about possible osteoporosis or RA and the dairy question. I think its a good plan to skip the dairy. This morning I ate bread with marmelade (awful).
3 months ago I had an inflammation on my feet (at the junction under my toe), which was very painful. The doctor (on holliday) thought it was gout and gave me an NSAID (stupid I took it, but I didn't know at the moment that it was that bad). After checking my blood by my own doctor, he decided it was not gout. When it returns, I have to come without an appointment, because he wants to see it. Now I'm afraid it has to do with my LC.
In the same time I discovered a lumb on my little toe and the doctor didn't understand that either. I looked on the internet for dairysensitivity yesterday and saw something about a little toe, but it was not specified. Two of my grandchildren stay with me for the holidays, so I don't have time to search the internet.
Where is this going to lead me?
I wish you all a good change to the year and wish that 2015 will bring us all health and happiness!
Thank you for the suppport the last weeks! Tonight at 24.00 when I drink my champagne, my thoughts will be by you too!
Sonja
My muesli is surely GF, buth as far as the oats, maybe you are right. But my BM are really ok now. Thats makes me very happy!
Now I am specially worried about possible osteoporosis or RA and the dairy question. I think its a good plan to skip the dairy. This morning I ate bread with marmelade (awful).
3 months ago I had an inflammation on my feet (at the junction under my toe), which was very painful. The doctor (on holliday) thought it was gout and gave me an NSAID (stupid I took it, but I didn't know at the moment that it was that bad). After checking my blood by my own doctor, he decided it was not gout. When it returns, I have to come without an appointment, because he wants to see it. Now I'm afraid it has to do with my LC.
In the same time I discovered a lumb on my little toe and the doctor didn't understand that either. I looked on the internet for dairysensitivity yesterday and saw something about a little toe, but it was not specified. Two of my grandchildren stay with me for the holidays, so I don't have time to search the internet.
Where is this going to lead me?
I wish you all a good change to the year and wish that 2015 will bring us all health and happiness!
Thank you for the suppport the last weeks! Tonight at 24.00 when I drink my champagne, my thoughts will be by you too!
Sonja
Hi Sonja,
If you don't have diabetes, those bumps on your toes could be due to either LC, or a vitamin or mineral deficiency. Back before I changed my diet, I used to get inflamed bumps at various locations on my body. Apparently they were a result of food sensitivities.
Happy New Year to you, too.
Tex
If you don't have diabetes, those bumps on your toes could be due to either LC, or a vitamin or mineral deficiency. Back before I changed my diet, I used to get inflamed bumps at various locations on my body. Apparently they were a result of food sensitivities.
Happy New Year to you, too.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
- Gabes-Apg
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Sonja
I agree with Tex, in my opinion, the lumps and pain, is related to ongoing inflammation and deficiencies of key nutrients/minerals.
Chronic inflammation depletes not only Vit D3 but things like Magnesium, Vit C, Zinc etc.
Enjoy the new years champagne
(nb keep in mind that alcohol is quite inflammatory to the body and not ideal when healing...)
Happy and Healthy 2015
I agree with Tex, in my opinion, the lumps and pain, is related to ongoing inflammation and deficiencies of key nutrients/minerals.
Chronic inflammation depletes not only Vit D3 but things like Magnesium, Vit C, Zinc etc.
Enjoy the new years champagne
(nb keep in mind that alcohol is quite inflammatory to the body and not ideal when healing...)
Happy and Healthy 2015
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
HI Ant,
Soy makes me ache all over. Last year I was taking a supplement that had soy (alpha-tocopherols) in it, but I was unaware of it. At first my feet hurt and as time progressed so did the pain--- to my knees then other joints, then all over. So, soy can be culprit too, and it can be hidden as an additive in things.
Happy Holidays,
Carol
Soy makes me ache all over. Last year I was taking a supplement that had soy (alpha-tocopherols) in it, but I was unaware of it. At first my feet hurt and as time progressed so did the pain--- to my knees then other joints, then all over. So, soy can be culprit too, and it can be hidden as an additive in things.
Happy Holidays,
Carol
“.... people will forget what you said, people will forget what you did, but people will never forget how you made them feel.” Maya Angelou
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Oh dear. That explains why I have had severe reactions to eating porridge. It may even be more allergens in it.tex wrote:Sonja,
Regarding the muesli, please be aware that most oats are not gluten-free, because they are cross-contaminated with wheat. And most of us here (including me) also react to pure oats, so it doesn't matter whether it is is contaminated with wheat or not, we still react to it.
I had to stop eating all dairy products, because even though they do not cause me to have diarrhea, they cause osteoporosis. After I stopped eating dairy products, my fingers stopped growing crooked.
Tex
Hi Brandy,
Thank you so much for your answer. I think I have to be patient and take my time to see how the changes for a longer period will be. I did one day without cheese and yoghurt. Then my husband advised me to do one thing at a time to be able to follow evrything well. I'll do that for now, also because I'm leaving tomorrow for a two weeks holliday in South Africa! I expect that te sun and the relaxation will be nice for me. When I see my doctor again (febr) I ask him to test my iron again. (don't know waht ferritin is.....)
Afterwards I try with no cheese and yoghurt, if my joint pains are getting worse. Thank you once more.
Sonja
Thank you so much for your answer. I think I have to be patient and take my time to see how the changes for a longer period will be. I did one day without cheese and yoghurt. Then my husband advised me to do one thing at a time to be able to follow evrything well. I'll do that for now, also because I'm leaving tomorrow for a two weeks holliday in South Africa! I expect that te sun and the relaxation will be nice for me. When I see my doctor again (febr) I ask him to test my iron again. (don't know waht ferritin is.....)
Afterwards I try with no cheese and yoghurt, if my joint pains are getting worse. Thank you once more.
Sonja
Hi,
I'm doing something not quite well, because I thougt I didn't answer Brandy, but I already did. And the other messages didn't show up!
I love the turning bottle of champagne, Tex! And yes, Gab, I have to be careful with alcohol. I was so happy to see that nobody is allergic for alcohol , but I notice it doesn't work out so well. white wine is my 'problem', I try not to drink more than 2 glasses a day, but that is difficult.
I use a lot of extra vitamins, but maybe not the right ones.......
After 6 weeks GF with a cooking husband and no bowel problems at all (he did a good job!), I got d 1 1/2 hours after dinner two days ago. I looked in the garbage and found the sac of the seafood, containing surimi (with gluten.....). So now I know for sure that I really are sensitive for gluten.
I have a question: how bad is it when you eat gluten if you have are sensitive to it? I think it's not only the problem of one or two days d, but it's also interfering with the healing of the gut. Is that right? How severe is it?
Sonja
I'm doing something not quite well, because I thougt I didn't answer Brandy, but I already did. And the other messages didn't show up!
I love the turning bottle of champagne, Tex! And yes, Gab, I have to be careful with alcohol. I was so happy to see that nobody is allergic for alcohol , but I notice it doesn't work out so well. white wine is my 'problem', I try not to drink more than 2 glasses a day, but that is difficult.
I use a lot of extra vitamins, but maybe not the right ones.......
After 6 weeks GF with a cooking husband and no bowel problems at all (he did a good job!), I got d 1 1/2 hours after dinner two days ago. I looked in the garbage and found the sac of the seafood, containing surimi (with gluten.....). So now I know for sure that I really are sensitive for gluten.
I have a question: how bad is it when you eat gluten if you have are sensitive to it? I think it's not only the problem of one or two days d, but it's also interfering with the healing of the gut. Is that right? How severe is it?
Sonja
Sonja wrote:I'm doing something not quite well, because I thougt I didn't answer Brandy, but I already did. And the other messages didn't show up!
When you are posting a message, be sure that you click on the "Submit" button (the 1 on the right)
There is no single, easy answer to your question, because we all have different sensitivity levels to gluten and we are all in different stages of healing. The more sensitive we are, the worse it is (obviously), and the longer we have been healing, the less likely it is to cause a problem for more than a day or 2.Sonja wrote:I have a question: how bad is it when you eat gluten if you have are sensitive to it?
You are correct. After we have been healing for a year or 2, eating a little gluten a single time may make us sick for a day (more or less), but it probably will not cause significant damage to our intestines. Early in our recovery (before our intestines have had time to do much healing), eating a little gluten may make us sicker, and cause more damage. But a single exposure to gluten should only slow down our recovery by a few days, in most cases.Sonja wrote:I think it's not only the problem of one or two days d, but it's also interfering with the healing of the gut. Is that right? How severe is it?
On the other hand, if we eat gluten somewhat regularly (such as daily, or once or twice a week, even in very small amounts), we may relapse, and the damage to our intestines will continue to increase, and it can become so severe that we might have to start over with our recovery program.
Enjoy your trip to South Africa. It should be beautiful there this time of year. They have been receiving good rains, so all the trees and other plants should be green and growing. I hope your trip goes smoothly, and you stay healthy.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.