collagenous Collitis

Noels · Post by **Noels** » Mon Jan 05, 2015 10:12 pm

Hi I am Noelene from South Africa.was diagnosed a year and a half ago and its been downhill every since.Prednisone put me in hospital,Entocord worked for a few days at a time, and now I have severe osteoporosis caused by prolonged use of steroids. I weigh 39kgs and all foods are rejected!any suggestions for me? I am sooo depressed.

JLH · Post by **JLH** » Mon Jan 05, 2015 10:22 pm

Yes, start by reading the information for newbies. Use the search feature, too.

nerdhume · Post by **nerdhume** » Tue Jan 06, 2015 5:06 am

Welcome Nolene.

Have you tried any diet changes?

Noels · Post by **Noels** » Tue Jan 06, 2015 5:34 am

Hi there...
Thank you for asking...yes my life is spent working on the change of food. Grilled meat is about the only thing I can tolerate for a few hours. Veg (especially green) etc causes bloating and pain. White bread and white rice also in moderation.having said that, they are times when not even these foods stay down! I am permamently neauseas,find ginger beer help.Any ideas for me?
Thank you!
King regards
Noelene

nerdhume · Post by **nerdhume** » Tue Jan 06, 2015 8:00 am

I would suggest skip the white bread and try gluten free. Most of us on this board react to gluten & dairy. Soy bothers me more than anything else and it is in virtually all processed foods here.
I usually have meat, well cooked vegetables and rice or potatoes. Breakfast is rice or corn Chex cereal, banana & almond milk.
That would be a good place to start. If it helps then gradually add back other foods.

Noels · Post by **Noels** » Tue Jan 06, 2015 8:17 am

Thank you so much Theresa for the advice. Soya is also an absolute no-no to me. Going to try everything you suggest as of now!

nerdhume · Post by **nerdhume** » Tue Jan 06, 2015 8:30 am

Great! Hope it works for you. Don't get discouraged, it sometimes takes a while for the changes to help. We are each different and must find our own way. You will find this group of people to be helpful and encouraging. Only those that have colitis can truly understand.

JLH · Post by **JLH** » Tue Jan 06, 2015 1:03 pm

I forgot to recommend Tex's book in the upper right hand corner as a fast way to get the information you need.

UkuleleLady · Post by **UkuleleLady** » Thu Jan 08, 2015 9:27 am

Hi Noels,
Welcome to the forum. Nerdhume's advice on food is spot on. I recommend completely eliminating gluten and dairy. You might even consider removing eggs and trying them again when you are stable. If you eat green vegetables, make sure they are very well cooked to break down the fiber. I mean turn them into mush. You can't handle fiber in this reactive state, it will perpetuate the D.

I lost a lot of weight, too, and I'm still struggling to gain! Even though I don't have D. It takes time.

Coconut milk and coconut oil are good sources of calories to help keep weight on. Many of us can tolerate this. Also I recommend eating meat at every meal, and for snacks to keep your strength up, you need tht protein to heal.

Best wishes,
Nancy

Skyward · Post by **Skyward** » Thu Jan 08, 2015 10:29 am

Welcome Noelene- I am so glad you found your way here and hopefully you will find some ideas and inspiration for something that will help your situation through the posts and experiences of others here. I was convinced that I was fine eating anything and that my problem was not food related- but after 1 1/2 months of a very restricted diet I find out that I may have been very wrong as I am improving (slowly but steadily) I cut out all gluten and dairy- avoid foods with high histamine and limit those with lower histamine, avoid all fresh fruits and veggies and high fiber things. Once I can get my guts to heal a little I hope that I will be able to get back to a more normal diet (but still likely without gluten)

right now I eat mostly- Rice, rice cereal, chicken, sweet potato, sometimes applesauce, almond milk, coconut oil.

recently I've had a few other things- barely ripe bananas, salmon, pork, overcooked kale, cooked carrots and green beans, blueberry sherbet made at home with canned coconut milk.

Everyone is different though- I'm just sharing what has been working for me so far.
-Sarah