I Can Feel Hunger Pangs Again :shock:

[tex]

What information from it did you find the most useful for your MC?

The methylation information was probably the most useful for that purpose (but even more important for my health in general). The most critical information may be discovering that I have a gene mutation that prevents me from being able to properly metabolize Plavix (since I take it for stroke prevention). The most interesting information is probably the discovery that one of my gene mutations makes me effectively immune to Creutzfeldt-Jakob disease (mad cow disease), so I can eat all the brains I want (as if I want to do that ), without fear of developing the disease.

My son has already given samples to Mayo for genetic testing but they will not share the information at this time.

I can see how they might want to withhold their interpretation of the test results, but unless I am mistaken, it's illegal for them to withhold a patient's own medical information, including both test results and doctor's notes, (or withholding test results of a minor from a parent).

Doesn't the Mayo use "mychart" to allow patients to access all their medical information over the Internet? If not, they are behind the times, because most hospitals and clinics appear to have already made that available to their patients.

Isn't implementation of that option a requirement of the Health Care Reform Bill?

Tex

[Lesley]

Tex, do you mind giving me the B vit proportions to mimic Menanx please?
Glad you are so much better.

[humbird753]

That's great news, Tex! Probably very surprising after 10 years. I see that others here had the symptom of not being hungry. I, on the other hand, was extremely hungry all the time. Although in spite of the extreme hunger and eating a lot I never gained the weight back that I lost. Now that a lot of healing has occurred I find I no longer feel like I'm starving, and am eating more normal sized meals. I hope to reach the point where Carol is now, and have to cut back so as not to gain too much weight back.

It's great to know that healing can continue even after 10 years.

[tex]

Lesley,

Metanx contains:

35 mg of Pyridoxal 5'-phosphate (which is the active form of B-6)

3 mg of L-methylfolate Calcium (which is the active form of B-9)

2 mg of Methylcobalamin (which is the active form of B-12)

That can be obtained from:

Vital Nutrients brand of Pyridoxal-5 Phosphate, 50 mg. Inert ingredients are: rice powder, gelatin capsule, leucine, and silica.

To match the dose, take 1 capsule per day, 2 days in a row, then skip the 3rd day, then start over. IOW, this will amount to 2 capsules every 3 days, in order to average out at 33 mg per day.

Life Extension brand of Optimized Folate (L-methylfolate), 1,000 mcg. Inert ingredients are: mirocrystaline cellulose, vegetable cellulose (capsule), silica, vegetable stearate. The label specifically names all of the common allergens (including milk, eggs, soy, wheat, yeast, nuts, corn, rice, etc.), and the product is certified to be free of all of them.

To match the dose, take 3 capsules each day.

2,000 mcg of methylcobalamin. There are a number of options available for methylcomalamin. The one I used is Wonder Laboratories brand of Methyl Cobalamin, 5,000 mcg. Be aware that it contains mannitol, citric acid, and stevia.

To match the dose, take 1 tablet, then skip a day, take another tablet, then skip 2 days, then repeat. IOW this will amount to taking 2 tablets every 5 days, in order to average out at 2,000 mcg per day.

These are the equivalent to 1 Metanx tablet. The label dosage for Metanx is 1 or 2 capsules per day. I have always taken only one per day (because they're not exactly cheap), but maybe that is why it took me so long to see initial improvement.

Tex

[tex]

Paula,

It kind of surprised me too, but it goes to show that we should never give up — success may be hiding around the next corner, or somewhere way down the road.

Tex

[Greengoddess]

I seem to have lost some of my appetite since starting GF diet. Very strange. Not a bad thing though!

[brandy]

we should never give up — success may be hiding around the next corner, or somewhere way down the road.

True about a lot of things.

Brandy