Feel free to discuss any topic of general interest, so long as nothing you post here is likely to be interpreted as insulting, and/or inflammatory, nor clearly designed to provoke any individual or group. Please be considerate of others feelings, and they will be considerate of yours.
I have been on entocort/budesonide since July 2014 and while I got down to 3mg I was still going 4-7 times a day and anything between BSC 4 and 6! I was also feeling rubbish, nauseous, not sleeping well, suffering muscle spasms in my jaw, hands and feet and generally not a happy bunny. So, my NYR is "this is my body and I am taking control"!
I am eating only unprocessed foods - unless I have cooked them myself - am gluten, dairy and now yeast free. I am taking 3mg every second day (this is day 3) with a view to reducing and coming off completely over the next 10 days. I still have some RHS pain but - astonishingly - I have had 2 days of normal poops! Monday nothing (after 7 loose BMs on Sunday) and Tuesday just 1 perfectly formed and normal; today just 2 but still really normal. The yeast thing is new - I was tested (York test) as borderline for yeast but told at the time not to eliminate it unless I felt I really had too. I find it extraordinary that my body has responded so dramatically and quickly? If this is placebo effect I want the lot because it proves mind over matter can work. I think the pain is because I have suddenly gone from loose to normal and I probably have pockets of wind. I really hope this works because the moon face and weight gain does not suit me at all and is making me feel quite miserable. Here's hoping I get this undercontrol and that 2015 is a good year for not just me but for everyone here! Happy New Year!
Anne
If you ever feel too insignificant to be noticed, you have never been to bed with a mosquito!
That's a very encouraging update. You do seem to have things going your way, finally. It's certainly possible that the yeast may have been preventing complete recovery. If you tested "borderline" sensitive to yeast with a blood test, the odds are rather high that you probably would have had a positive result to a yeast antibody stool test (but I can only guess, of course).
The good news is that so far, it appears that after we recover, and our gut heals, yeast sensitivity is no longer a problem. At least that has been the consensus of the members here who have reported their experiences with yeast. IOW, unlike gluten and casein, yeast does not seem to be a permanent food sensitivity.
May the New Year honor all your wishes.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Quick update! I am still reducing budesonide and will have tapered to my last dosage on 30 Jan. Results to date (drum roll please!!!!!!) fantastic and dramatic improvement! Seriously, one good, perfectly formed poop yesterday and today!!! Very happy and (I think) yeast was clearly a much bigger problem than the bloods indicated? Major placebo impact? Either way, I am very happy at the moment! Sticking with my diet strictly.
Anne
If you ever feel too insignificant to be noticed, you have never been to bed with a mosquito!
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
It's certainly possible that the yeast may have been preventing complete recovery. If you tested "borderline" sensitive to yeast with a blood test, the odds are rather high that you probably would have had a positive result to a yeast antibody stool test (but I can only guess, of course).
Tex
Hi Tex,
I have a language problem with the word "yeast". Does it mean the fungus Candida Albicans?
I feel a bit dumb having to ask
Lilja
Collagenous Colitis diagnosis in 2010
Psoriasis in 1973, symptom free in 2014
GF, CF and SF free since April, 2013
That's not a dumb question at all. Most food sensitivity tests actually test for baker's/brewer's yeast (Saccharomyces cerevisiae), because those are the types of yeast found in foods/drinks. But yes, to add to the confusion, many people also refer to Candida as "yeast".
And though those tests are presumably very specific for the particular strains of yeast, it appears to me that the only members here who have tested positive to the EnteroLab yeast test, very likely also have a Candida albicans overgrowth. IMO, a Candida overgrowth may be the reason why they are sensitive to either baker's or brewer's yeast. And that would explain why they are no longer sensitive to baker's or brewer's yeast after they recover (because it's virtually impossible to recover from MC without resolving a Candida overgrowth if one is present (because a Candida overgrowth always causes a leaky gut, which guarantees food sensitivities).
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Anne,
I also struggle with yeast, sulphides etc....
Another element as to why I have avoided eating out as it is very common in commercial stock, sauces, flavourings/spices, and in meats such as frozen turkey etc.
I was reacting to sulphides in wines etc before histamine was an issue.
Great news that you have had vast improvement soo quickly!!! Hope the improvement and wellness continues...
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
Still doing well although if anything stools are more BSC 2 and bordering on 1 at the moment. I am going to increase my water intake but I think it is actually my system almost re-setting itself. This morning I had a motion first thing while I have been going in the evening and afternoon. I think my system is just needing to get back into a normal routine. One thing I have noticed interestingly is that I still have an urge to go in certain situations e.g. when I go to the supermarket. For months I have never got round without needing to go and I think it has become more a stress thing. I will need to plan a strategy to counteract the stress e.g. deep breathing exercises in the car before I go into the shop. It sounds silly but I am determined to find my own solutions to these annoyances. I will keep you all posted on progress but as always it is great to know I can talk about this to you guys. Thank you all!
Anne xx
If you ever feel too insignificant to be noticed, you have never been to bed with a mosquito!
Anne,
I also get 'nervous poop' type sensations!! You are not the only one.
For me, it tends to happen moreso if I haven't done BM first up in the day. For the rest of the day I have that unsettlement.
Especially days where there might be change of routine, or mildly stressful event.
I have counteracted this by taking increased oral magnesium and Vit C, at dinner time the day before. This ensures majority of the poop is done first up the next morning...
Keep listening to your body!! You are doing grand!
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
Gabes-Apg wrote:Anne,
I also get 'nervous poop' type sensations!! You are not the only one.
For me, it tends to happen moreso if I haven't done BM first up in the day. For the rest of the day I have that unsettlement.
Especially days where there might be change of routine, or mildly stressful event.
I have counteracted this by taking increased oral magnesium and Vit C, at dinner time the day before. This ensures majority of the poop is done first up the next morning...
Keep listening to your body!! You are doing grand!
What a great idea. I use my morning coffee for this purpose, it usually works. Will try the Vit C and magnesium at dinner.
Theresa
MC and UC 2014
in remission since June 1, 2014
We must all suffer one of two things: the pain of discipline or the pain of regret. ~Jim Rohn
Theresa,
I have figured out just the right dose to ensure Bm happens before 7am!!, BM wise, it is a bit softer, gooier, lighter colour. I don't do this every day, maybe 2-3 times a month
My PCP doctor a is 1hr 20min, each way, drive away, on busy motorway. The days I attend these appointments it is much better to have BM out of the way first up, and remove any unsettlement about when I will need a toilet...
All part of the MC management plan!!!
In my case the extra Vit C and mag do not go to waste!!!
When I was working... I would block 10min apts in my diary before 3-4 hr meetings,(especially any I knew were going to be stressful ) and go and do relaxation breathing on the toilet, raised knees position etc
The sensation of 'maybe' needing to go is too distracting...
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
So, my NYR is "this is my body and I am taking control"!
Monday nothing (after 7 loose BMs on Sunday) and Tuesday just 1 perfectly formed and normal; today just 2 but still really normal. The yeast thing is new - I was tested (York test) as borderline for yeast but told at the time not to eliminate it unless I felt I really had too. I find it extraordinary that my body has responded so dramatically and quickly? If this is placebo effect I want the lot because it proves mind over matter can work. I think the pain is because I have suddenly gone from loose to normal and I probably have pockets of wind. I really hope this works because the moon face and weight gain does not suit me at all and is making me feel quite miserable. Here's hoping I get this undercontrol and that 2015 is a good year for not just me but for everyone here! Happy New Year!
Seriously, one good, perfectly formed poop yesterday and today!!! Very happy and (I think) yeast was clearly a much bigger problem than the bloods indicated? Major placebo impact? Either way, I am very happy at the moment! Sticking with my diet strictly.
