Collagen protein

Discussions on the details of treatment programs using either diet, medications, or a combination of the two, can take place here.

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Nbupp
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Collagen protein

Post by Nbupp »

What do you think about taking collagen protein powder? I have collagenous colitis and was on entocort and apriso. I stopped the entocort but am still taking apriso but nothing has helped.
Nannykay
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Gabes-Apg
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Post by Gabes-Apg »

hi there... welcome to the group

have you made any changes to your diet?
protein powders and supplements have limited scope to help until you minimise the inflammation and remove major triggers from your diet..
Gabes Ryan

"Anything that contradicts experience and logic should be abandoned"
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tex
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Post by tex »

Hi Nannykay,

Welcome to our Internet family. I assume that you are referring to collagen hydrolysate. Jello (gelatin) is made from collagen powder, and it's probably a much cheaper source of collagen, if you want to try a collagen supplement. There are differences in processing between the 2 though. You can see a detailed comparison of the way that they are made at the link below, if you want to learn more about them:

Gelatin and Collagen Hydrolysate: Whats the Difference?

Unfortunately though, as Gabes correctly pointed out, such supplements are not likely to provide many benefits for controlling CC/LC/MC symptoms, until the inflammation that causes the disease is resolved. Research shows that when the genes that predispose to the various types of MC are triggered, the genes that predispose to gluten sensitivity and other food sensitivities are also triggered at the same time. Therefore, as long as we continue to eat foods that cause our immune system to produce antibodies, the inflammation will continue to be generated, and LC/CC/MC symptoms will continue. Certain medications can help to suppress the inflammation, but they cannot prevent it from being produced. Only the correct diet changes can stop the inflammation.

Many medications also trigger CC/LC/MC. In some cases, discontinuing the use of those medications can stop the symptoms, if it is done before food sensitivities develop. Most of us are not that lucky, though.

Has your vitamin D level been tested? According to my research, corticosteroids will not work to suppress inflammation if vitamin D is deficient.

Again, welcome aboard, and please feel free to ask anything.

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Nbupp
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Post by Nbupp »

Re: vitamin D. Very interesting because my vitamin D has been below normal for quite a while. I try to take supplements but unfortunately I'm not consistent.

I did try gluten, sugar and dairy free for a few weeks but it did not seem to make any difference. I should try again for a longer period. I was tested for food sensitivities but had none.

I bought your book and have read half of it. It's been helpful - especially since I will be going to Johns Hopkins in February to see a GI doctor there. I have a lot of questions for this supposed expert.

Thanks!
Nannykay
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tex
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Post by tex »

Nannykay wrote:I was tested for food sensitivities but had none.
Unfortunately we have found that the commonly-used blood tests and skin tests are pretty much worthless for trying to detect food sensitivities. This is because the antibodies produced in response to food sensitivities are produced in the gut, not in the blood or the skin. The only lab tests that we have found to be consistently reliable for determining food sensitivities are the stool tests offered by EnteroLab, in Dallas, TX.

It's good to hear that you have found the information in the book to be helpful. The first part of the book is primarily background information. The discussions of treatment methods that work when the usual treatments don't help, are found in the last few chapters in the book. Please don't be surprised if the GI specialist you see at Johns Hopkins disagrees with much of the information in the book, and the information that we have used on this board to get our life back. Medical school training for MDs still does not include information on the role of food sensitivities in the perpetuation of the inflammation that causes microscopic colitis. As a result, most doctors still mistakenly deny that diet changes can be used to control the symptoms of MC.

Good luck with your appointment, but please don't be too hard on your GI specialist, because he is just doing the best he can with the training that he has received. MC is a very tough disease for GI specialists to treat, because it requires an individualized treatment approach, rather than a one-size-fits-all treatment. However, let's hope for the best, because there is always a chance that he will surprise you by being up-to-date with his treatment methods.

You're very welcome,
Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
brandy
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Post by brandy »

Hi Nanny Kay,

Welcome and you are at the right place!

Suggest give GF DF and SF a 3-4 month trial. Sometimes it can take awhile. I was about age 50 and it took me about 3-4 months to see results. Younger folks heal quicker. Avoid fibre (raw vegetables).

Also---not sure if you are taking any other prescription drugs. Some will prevent remission. Tex is a good one to talk to about that stuff.

I did better with less supplements early on but I took the D3. Some of the supplements contain soy and some are just hard to digest.

Brandy
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