Big surprise, huh! I saw my PCP for an annual physical in Dec. I'd prepared some info to see if he'd prescribe LDN. He'd never heard of the "low dose" use, recommended that I see the new GI doc, he'd received good feedback. So now we have 2 in this area, the other guy is the hard headed one. So I followed up and saw him last week. I'd checked him out and found that he'd been in practice 41 years. Old school? Set in his ways? Yep, you got it.
He could offer no more than Pepto, Imodium, mesclamine and budesonide. I mentioned that my MC might have been triggered by high doses of IBP prescribed after meniscus surgery in 2000, and I'd read that mesclamines have salicylic acid and dairy in them. Oh, right, that's a very small amount, probably wouldn't bother you. **Tex has mentioned this many times as being a problem.
I made my pitch about LDN, he said where's the science? I handed him a highlighted printout from NIH (National Institute of Health, Gov.) He took about 20 seconds and said "Well, you're not going to get it from me!" Oh, and he also said I read too much!
I mentioned my food sensitivities and that I'd lost weight, told him I'd been on an elimination diet trying to pinpoint it. He was concerned that I wasn't getting enough to eat, suggested a food diary. I told him I'd kept a detailed diary for 5 months. I showed him my 2 Enterolab test results, that was less than a 20 second perusal. He said he attends all the board certified GI meetings, why hasn't Dr. Fine stood up and made a presentation? Dave had come with me and showed great restraint he later told me--he didn't ask which of the big pharma sponsor these meetings?
He said many patients have found that a good probiotic helps. Specifically VSL3 and Align. I see Align has dairy. I asked how many VSL3 and for how long, he said 2 a day, indefinitely. I can get it from Costco for $45.89, so that would last a month, and I'd be able to return it if it made me worse or did nothing. I did a search and found that very few of our members had anything positive to say about it, but am thinking about trying it.
I think I've been as adherent to my restrictions as is humanly possible, and pretty darn patient as well. I do plan to hang in there, hoped I could try LDN to see if it might give me a boost. I could get entocort from alldaychemist but think I'd need to embark on at least a 6 plus month journey to do that right.
As always, any comments or suggestions are much appreciated.
Beverly
P. S. The instructions on posts say Post topic as: Normal or Registration. The Registration is pre-marked. is that right?
Visit to a new GI doc--aarrgggg!!
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Wow! What a bummer! I made a vow to try to do less dissing of incompetent GI specialists, so I'll just limit my response to pointing out that I'm not surprised.
I'm sorry you had such a negative experience with that "new" doctor. The really frustrating part is that he is surely accustomed to expecting to be paid, despite his lack of knowledge about the disease, and the use of LDN, and his lack of empathy for his patients. May the bird of paradise fly up his nose.
Tex
I'm sorry you had such a negative experience with that "new" doctor. The really frustrating part is that he is surely accustomed to expecting to be paid, despite his lack of knowledge about the disease, and the use of LDN, and his lack of empathy for his patients. May the bird of paradise fly up his nose.
Yes. The registration option is marked by default, but if the information for a registration post is not filled in, the system will automatically post it normally. The registration option was used in the early days of the board, but no one has used it in years. Removing it from the system involves carefully removing a tremendous amount of code that was added when that option was added. One of these weeks when I have several days of free time, I might try to remove the code that enables the registration option.Beverly wrote:P. S. The instructions on posts say Post topic as: Normal or Registration. The Registration is pre-marked. is that right?
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Beverly wrote:Oh, and he also said I read too much!
How could anyone read too much? The information age has officially been going on for a couple of decades now. 
Obviously he prefers uninformed patients. They're easier to impress/intimidate (and they don't know the difference when he makes mistakes). Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Re: Visit to a new GI doc--aarrgggg!!
Perhaps the problem is that he reads to little.bevfromwa wrote: Oh, and he also said I read too much!
Jean
