Thank you Wayne for all I have learned.
I had the symptoms of MC since easily 1985. Over the years, it worsened and worsened, I received a diagnosis of MC in 2008. It was re-diagnosed in 2014. Had the recommended lab tests in 2014. I also started enterocort and I practiced the tapering down guidelines on here. I tapered completely off, the end of Nov, 2014. December was rocky-D came and went. I also was given predisone for the flu in Dec. In Jan 2015, I experienced bursitis in my right elbow. It was drained and a cortisone shot was administered to my elbow.
The last 2 cortisone type treatments might mean nothing. However what matters to me that I am normal! I no longer need to stay home or plot my course with emphasis on the potties.
I am totally gluten, dairy, egg, soy, oats,peanut free.
Wayne, how are our non profit association and your Vit D book coming along?
You know how to contact me. Holler if I can assist with marketing, journalism.
Thank you SO much for helping me to restore my energy and my health!
Deb
Success!!!
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
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drdebc
- Adélie Penguin
- Posts: 150
- Joined: Thu Nov 08, 2012 9:15 pm
- Location: On a lake in the N GA mountains
Success!!!
Retired marketing Higher Ed PhD striving to heal myself with a minimal amount of prescription meds.
Diagnosed w/collagenous MC, Barrett's Esophagus, Celiac, Hypothyroidism.
Diagnosed w/collagenous MC, Barrett's Esophagus, Celiac, Hypothyroidism.
Hi Deb,
Needless to say, it always makes my day (and my week) to see an inspiring post from someone who has been able to get her life back after living with MC for so many years. That's great news. I'm sorry to hear that you have recently had to deal with the flu and bursitis, but that just goes to show that as our health begins to return to a more normal pattern, we once again have to deal with more of the common, irritating issues that befall "normal" people, unfortunately.
By coincidence, this morning I uploaded the revised files for the printed version of the book, and I'm working on the conversions needed to revise the digital editions for the various formats. Unless there are printing issues, the proof of the printed version should be ready for review/approval sometime tomorrow. I added additional information in many places so that hopefully the book will be easier to read, and the material will be easier to understand.
I haven't forgotten about the foundation project, and I've been organizing my thoughts on how I feel it should be set up. I'd like to set it up so that we won't be unnecessarily limited in our needed options, while still minimizing any issues that might in any way jeopardize a not-for-profit status. We'll start with a clean slate and hopefully design a business plan (bylaws) that will lead us in the right directions. I'm sure that skilled marketing, journalism, and related talents will be essential for success, so your background should definitely be a huge asset. I'm very optimistic about the prospects for the future of this project.
You've pointed out a vital part of dealing with MC. We have to learn how to treat the disease, ourselves. No one can do that for us. Those who rely on medical professionals to do it for them, are usually disappointed. But those who learn the tools of the trade, can usually handle whatever might come their way. Self-sufficiency is the name of the game. And nothing is quite as gratifying as looking backing and recognizing how we were personally able to turn a hopeless situation into the glory of success. That does wonders for one's self-confidence, and one's overall appreciation of life.
Thank you for posting such an uplifting update, and of course you are most welcome.
Wayne
Needless to say, it always makes my day (and my week) to see an inspiring post from someone who has been able to get her life back after living with MC for so many years. That's great news. I'm sorry to hear that you have recently had to deal with the flu and bursitis, but that just goes to show that as our health begins to return to a more normal pattern, we once again have to deal with more of the common, irritating issues that befall "normal" people, unfortunately.
By coincidence, this morning I uploaded the revised files for the printed version of the book, and I'm working on the conversions needed to revise the digital editions for the various formats. Unless there are printing issues, the proof of the printed version should be ready for review/approval sometime tomorrow. I added additional information in many places so that hopefully the book will be easier to read, and the material will be easier to understand.
I haven't forgotten about the foundation project, and I've been organizing my thoughts on how I feel it should be set up. I'd like to set it up so that we won't be unnecessarily limited in our needed options, while still minimizing any issues that might in any way jeopardize a not-for-profit status. We'll start with a clean slate and hopefully design a business plan (bylaws) that will lead us in the right directions. I'm sure that skilled marketing, journalism, and related talents will be essential for success, so your background should definitely be a huge asset. I'm very optimistic about the prospects for the future of this project.
You've pointed out a vital part of dealing with MC. We have to learn how to treat the disease, ourselves. No one can do that for us. Those who rely on medical professionals to do it for them, are usually disappointed. But those who learn the tools of the trade, can usually handle whatever might come their way. Self-sufficiency is the name of the game. And nothing is quite as gratifying as looking backing and recognizing how we were personally able to turn a hopeless situation into the glory of success. That does wonders for one's self-confidence, and one's overall appreciation of life.
Thank you for posting such an uplifting update, and of course you are most welcome.
Wayne
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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drdebc
- Adélie Penguin
- Posts: 150
- Joined: Thu Nov 08, 2012 9:15 pm
- Location: On a lake in the N GA mountains
Tex, Way to Go!!!
I am so happy for you and the D book.
I have benefited greatly from Polly's recipes as well as those by other posters. We love to cook from scratch and that is a good thing! Now I pull online recipes and immediately do the substitutions. I pity those with full-time jobs and children. I am sure that is quite a challenge!
Now when I dine with others, I just say that I am good with protein, veggies and fruit. The plainer the better. My favorite condiments are real salt, horseradish, and trocamari.
When I need a butter taste, I use earth balance soy free buttery spread. For a mayo taste, I use soy free Vegenaise. Coconut oil is my favorite cooking oil.
My snack "cheats" are original green pea crisps (calbee) and Wild Riceworks Gormet Rice Snacks (Shearer's Foods) (Costco), Blue Diamond oven roasted almonds dark chocolate, and Lindt Excellence Supreme Dark 90% cocoa candy bars (Wal-Mart). I also make almond butter with stevia and coconut oil as well as the "cheese" spread recipe on here and humus. I eat those with organic celery.
Life is MUCH better when one avoids food intolerances!
I gave my MD and my gasto MD your book. They both admitted they have not read it completely. However, my enthusiasm has convinced them. The gastro MD was fine that I tapered the entocort over 6 months. My MD said to just avoid all of my food intolerances.
Please email or twitter me drdeb when we are ready to work on this much needed and extremely important foundaton for MC. When I feel great, I don't remember to come on here---sorry! However, know our cause is in my heart.
Very Fondly,
Deb
I have benefited greatly from Polly's recipes as well as those by other posters. We love to cook from scratch and that is a good thing! Now I pull online recipes and immediately do the substitutions. I pity those with full-time jobs and children. I am sure that is quite a challenge!
Now when I dine with others, I just say that I am good with protein, veggies and fruit. The plainer the better. My favorite condiments are real salt, horseradish, and trocamari.
When I need a butter taste, I use earth balance soy free buttery spread. For a mayo taste, I use soy free Vegenaise. Coconut oil is my favorite cooking oil.
My snack "cheats" are original green pea crisps (calbee) and Wild Riceworks Gormet Rice Snacks (Shearer's Foods) (Costco), Blue Diamond oven roasted almonds dark chocolate, and Lindt Excellence Supreme Dark 90% cocoa candy bars (Wal-Mart). I also make almond butter with stevia and coconut oil as well as the "cheese" spread recipe on here and humus. I eat those with organic celery.
Life is MUCH better when one avoids food intolerances!
I gave my MD and my gasto MD your book. They both admitted they have not read it completely. However, my enthusiasm has convinced them. The gastro MD was fine that I tapered the entocort over 6 months. My MD said to just avoid all of my food intolerances.
Please email or twitter me drdeb when we are ready to work on this much needed and extremely important foundaton for MC. When I feel great, I don't remember to come on here---sorry! However, know our cause is in my heart.
Very Fondly,
Deb
Retired marketing Higher Ed PhD striving to heal myself with a minimal amount of prescription meds.
Diagnosed w/collagenous MC, Barrett's Esophagus, Celiac, Hypothyroidism.
Diagnosed w/collagenous MC, Barrett's Esophagus, Celiac, Hypothyroidism.
