Facebook

karrazza · Post by **karrazza** » Thu Feb 26, 2015 6:35 pm

Hi Does anyone know of any facebook pages that I can go on and chat to people with the same disease. I know they have an IBS one but thats not my problem. If you can supply me the names I can search.

ManyThanks

Tladymcq · Post by **Tladymcq** » Sun Mar 01, 2015 11:26 am

Living with microscopic colitis is a Facebook page that needs members !

JLH · Post by **JLH** » Sun Mar 01, 2015 12:03 pm

I could not find it when I searched........

Clayberg · Post by **Clayberg** » Mon Mar 02, 2015 10:37 am

Could not find it either. :(

Clayberg · Post by **Clayberg** » Mon Mar 02, 2015 10:45 am

It's called Living with Lymphocytic Colitis but it doesn't look very active and it's not a closed group.

Tladymcq · Post by **Tladymcq** » Mon Mar 02, 2015 1:05 pm

Would you like to start a new group? Closed of course . ....

karrazza · Post by **karrazza** » Mon Mar 02, 2015 11:59 pm

Hi Teri

It would be great to start a new facebook group I would certainly join please let me know the name and I will request to join. Obviously there have to be rules and conditions but count me in
I actually saw my gp today and told him of my diagnosis and he told me he has been a gp for 50 and he has never come across anyone with LC and I told him I am rare lol

Tladymcq · Post by **Tladymcq** » Tue Mar 03, 2015 6:36 am

I'll work on it this afternoon! My GP said the same thing which really scares me. Any ideas and/or suggestions on rules, etc.... are welcome!

karrazza · Post by **karrazza** » Tue Mar 03, 2015 1:18 pm

Hi Teri

I moderate a group in Australia for Burn Survivors so have a little understanding as I set the page up. You have to have rules ie people with the disease either LC or HC as there is already one for IBS. Let me know if you need a hand.

CHeers
Karen

Clayberg · Post by **Clayberg** » Sat Mar 07, 2015 5:12 pm

Found another group on Facebook called Microscopic Colitis United but it's another opened group and there is only 12 members. I really wish there was a closed group on there. :/

Tladymcq · Post by **Tladymcq** » Sun Mar 08, 2015 9:37 am

Ok I am having brain fog! I have to add at least one person to the group and I can't add myself....I titled it Microscopic Colitis Support Group and am now stuck!

karrazza · Post by **karrazza** » Sun Mar 08, 2015 2:02 pm

add me stiggess jacques

nerdhume · Post by **nerdhume** » Mon Mar 09, 2015 4:56 am

I found it and requested to join just now.

dfpowell · Post by **dfpowell** » Mon Mar 09, 2015 9:31 am

I found it and requested to join.

thanks,

Clayberg · Post by **Clayberg** » Mon Mar 09, 2015 10:27 am

Please add me :) Stacey C.

MICROSCOPIC COLITIS SUPPORT

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Found One!

start a new group?

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help!