GF for 4 days- how long until see improvements?

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tex
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Post by tex »

Overitmc wrote:My problem is I have to work and I'm assuming the Entocort is somewhat masking the symptoms so if I were to go off of it completely I would be in the bathroom 24 x 7.
If the Entocort is still helping, then yes, you are correct.
Overitmc wrote:How long would I need to be off the Entocort to be able to get the tests? Been on it for 4 years...
At least 8 weeks, possibly longer since you have been using it at full strength for so long.
Overitmc wrote:So what is you advice in the steps I take from here?
I would start keeping a detailed food/reaction journal and concentrate on refining my diet.
Overitmc wrote:Let's say I eat nothing but rice. How long before I introduce a new food to see if I have a sensitivity to it?
Will I know right away that I have a sensitivity to it?
You can only test new foods reliably after you have been in remission for a while so that your digestion is stable. If you're not in remission, it's almost impossible to reliably interpret the effects of new or reintroduced foods. Once we are in a position where we can test new foods, the proper way is to test only one new food at a time, and eat a little the first day. If you don't react, then eat more the next day, and if there's no reaction the second day, eat a larger helping the third day. If there's still no reaction, then the food should be safe.
Overitmc wrote:Should I start by doing a cleanse as if I were prepping for a GI scope test?
No, "cleanses" are very hard on the gut. In a few cases they can bring at least temporary remission, but they are more likely to trigger MC, instead. There have been more than a few new cases of MC that were caused by the cleanout prep for a colonoscope exam.
Overitmc wrote:Is there a list of foods that are typically "safe" that I would start with?
The meats are typically the most critical. I'm not aware of anyone who reacts to turkey or lamb, so those are usually the safest choices for common meats. Most wild game is also safe (except for bison, because virtually all bison contain domestic cattle DNA these days). Some fish (such as salmon and tuna, for example) can be a problem. We are all different, so we have to customize our diet. The safest veggies are usually overcooked green beans, broccoli, carrots, squash, and sweet potatoes, but not everyone can tolerate all of these. Rice is the safest grain, corn is the next safest (but a certain percentage of members here are sensitive to corn).
Overitmc wrote:Sorry so many questions, I just want to get this right and get my life back.
That's our goal here, for every one of us to get our life back, so never hesitate to ask any questions that come to mind. It's much better to ask than to suffer in silence.

Good luck with your diet.

Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
brandy
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Post by brandy »

Hi Overit,

Welcome! Give going GF awhile.....like 8-12 weeks. You may see results much sooner....as in days. The good thing is you are young so should bounce back quicker. Do not cheat on anything with gluten. Make sure to be 100% GF. Eliminate all dairy for awhile, including yogurt. Make some kind of protein the bedrock of your diet. Have protein breakfast, lunch dinner, snacks. Fill in with the other things Tex mentioned. WHEN YOU ARE STRUGGLING NARROW DIET IS BEST. i.e. same protein, overcooked veggie, and starch for 3-4 days. NARROW DIET IS BEST. If you respond to narrow diet stay on it longer, if not switch it up. Eliminate all raw foods for a good while.

I was an entocort user for 4.5 months. Saw your dilemma about whether to change drugs. If you have no side effects and think entocort is helping some I'd be inclined to stay on it for awhile. The problem with getting off of Entocort is that you have to taper off of it and that could make things much worse until diet is stabilized and inflammation reduced.

Entocort tends to get less effective over long term use like 4-6 years by the way. You are not alone here. Mayo has some studies about this. The board gets a lot of reports from members about Entocort getting less effective over time....like 4 year usage. That is why diet becomes critical particularly for a younger person. A 90 year old could get on Entocort and stay with it due to shorter life span. This is not an option for a younger person.

I pulled up songbirds recent post. http://www.perskyfarms.com/phpBB2/viewtopic.php?t=21121. Note her comments about the drugs she has tried. We get this a lot. Folks post about trying 8-10 drugs and nothing really working and having a lot of side effects. Entocort is most commonly prescribed. If it worked for 4 years and you think it is helping a little I'd probably hang on it until diet kicks in. Uceris is newer and similar in formula to Entocort but hits the GI tract somewhat at a different place that I can't recall. Several members have been on Uceris.

Diet is very key. I've been in remission for several years.

Hopefully this helps. MC healing can take awhile. Don't get discouraged. Tex's book is great.

Brandy
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