Will food sensitivities wane? Attention Polly & Tex

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Gabes-Apg
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Post by Gabes-Apg »

mmmm.. your pondering is in line with the post i put up the other day

how zinc deficiency can cause bloating/gas etc when eating protein...

I wonder... if the symptoms of digestion issues are made worse due to deficiencies of key nutrients/minerals??
maybe its not always the ingredient that is the issue.
then pondering further, why quite a few people can add some ingredients back in as they heal.
yes there are ingredients that remain major triggers, like gluten, dairy and soy..
Gabes Ryan

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Post by ldubois7 »

Tex,

Yes, please let me know how your 'experiment' turns out.

I have backed away from nuts due to oxalates, but still eat some seeds. I still have fat malabsorption issues, but they are not as severe as in the past.

Gabes,

I'll go back & find your post. This thread is very relevant to me.
Linda :)

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MTHFR gene mutation and many more....
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tex
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Post by tex »

Gabes wrote:mmmm.. your pondering is in line with the post i put up the other day

how zinc deficiency can cause bloating/gas etc when eating protein...

I wonder... if the symptoms of digestion issues are made worse due to deficiencies of key nutrients/minerals??
maybe its not always the ingredient that is the issue.
then pondering further, why quite a few people can add some ingredients back in as they heal.
yes there are ingredients that remain major triggers, like gluten, dairy and soy..
Maybe I have tunnel vision, but it certainly appears to me that a deficiency of certain minerals or vitamins can definitely interfere with the digestion and/or absorption of certain foods/nutrients. That said, obviously we have to err on the cautious side when deciding to take supplements, because experience shows that taking the wrong supplements during recovery often equates to a one-way ticket back to square one, and no one wants to go back there.

I'm beginning to suspect that those of us who have been through the recovery process years ago may find that the right supplements might allow us to reintroduce certain foods that we currently seem to be unable to tolerate. :headscratch:

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Post by Gabes-Apg »

I know that taking certain supplements for some can cause D etc.... If the supplement is one that helps clear toxins, them D is not always a sign of intolerence of that supp, maybe it is the supp doing what it is meant to...

That is where starting on low low dose, and working up gradually is very useful,
An increase in Bm's is very likely... And the item should not be stopped at the first sign of D. Go back a bit in the dose. Let the body adjust to getting these key nutrients..
The key is going at the pace that the individual can handle. (And having the patience and diligence to stick with it and give our bodies the time it needs)
Gabes Ryan

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Post by tex »

Gabes,

I realize that you were just responding to my post, and there's nothing wrong with the information in your post, but we have to be very careful when making comments such as that, because most newbies may take that as an endorsement to go ahead and take a supplement, even if it causes D. I'm sure we both understand that any supplement that causes D for someone in the early stages of recovery (IOW, someone still trying to reach remission) is strictly verboten. But newbies have no way of knowing that. It's tough enough to reach remission without adding additional complicating factors. IMO, the only supplements that should be taken during the early stages of recovery are vitamin D, vitamin B-12 (only if they have been reacting for years, or they are vegetarians), and possibly magnesium (if they show the signs of a magnesium deficiency and don't overdo oral magnesium). Everything else can be postponed until after remission is reached. So we have to be sure that everyone understands that when making recommendations for taking supplements.

I fully agree that if someone has been in remission for a while, and they understand what they are doing . . . sure, they might want to experiment with certain supplements if they are reasonably sure that they need them. But supplements are extremely treacherous in the early stages of recovery, so we have to be careful to make sure that we clarify any recommendations about them so that new members do not unintentionally jeopardize their recovery.

In view of the overwhelming amount of information imposed on new members here, it's our responsibility to make sure that we don't unintentionally mislead anyone with information that is actually targeted to members who have already been in remission for years. We have to remember to make that distinction and err on the side of caution — because if we don't, newbies may have no way of knowing that the information does not apply to them.

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Post by Patricia »

So far I am taking vitamin D (5000 units per day) and also the Metanx equivalent to see whether this will help with weird sensations such as tingling that comes and goes. I also use the magnesium oil spray.

I frequently wonder whether all my symptoms are caused by MC or by the very limited diet (basically fish, meat, potatoes, rice, bananas, olive oil, salt, pepper) and because of it some kind of nutritional deficiency or by something completely unrelated.

I was diagnosed 7 months ago and started the elimination diet the day after Christmas. I know so much more (but still feel like I only touched the tip of the iceberg), and I have a lot less D. The diet has definitely helped. However, the other symptoms, sometimes nausea, pains that come and go in any part of the body, bloating, tingling and other weird sensations that come and go, are still very much present. Some symptoms that I had in fall disappeared, but others are new symptoms. Maybe due to the overall inflammation?

For now I cut out veggies and nuts/nut butters again so see if that will help reduce the bloating.

I do wonder, though, how long can somebody be on such a limited diet without running into additional issues because of nutritional deficiencies?

Love, Patricia
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Post by tex »

Patricia,

As long as you're eating plenty meat, you're not likely to run seriously short of anything major. Cutting out green vegetables will reduce your magnesium intake, but you're probably supplementing that enough to make up for any shortfall. You can always run your meals through one of the online nutrition calculators (or whatever they're called), to check out your diet if you're really concerned. Normally, it takes a long time to generate any serious deficiencies.

Incidentally, I had to avoid black pepper while I was recovering. It would give me a bellyache.

Love.
Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Post by ldubois7 »

Patricia,

I felt the same way.....I only took Vit D3 for a year before I added any other supplements.

I ate only over cooked veggies...carrots & squashes....meat....turkey, lamb, wild game meat....coconut products, some nut butters, for a very long time. It's was so boring, but it takes a lot of time to heal. Patience is key, but easier said than done!

I am finally starting to add small raw salads with success.

Part of my puzzle seemed to be an issues with oxalates, too. Once I changed my diet to a low oxalate diet, within several weeks, the bloating/gas is 80% better!

We are all so different, and its a long journey...
Linda :)

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MTHFR gene mutation and many more....
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Post by tex »

Patricia,

I forgot to address your mention of nausea in my post. Are you aware that antihistamines can relieve nausea? For example, Dramamine is sold to treat nausea due to motion sickness. But Dramamine is simply an H1 type antihistamine. However, one of the disadvantages is that reducing histamine levels can cause an increase in gas, because of a reduction in stomach acid.

Love,
Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Post by tex »

Linda,

It appears that I can now tolerate almond butter, also.

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Post by ldubois7 »

Tex,

That's fantastic! There is no greater joy, for me now, than successfully adding a new food!
And knowing that our disease does not always mean a permanent food avoidance is so encouraging!
It's a reason to celebrate! 🎉🎊
Linda :)

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Post by Patricia »

Thanks so much, Linda and Tex! It is so encouraging to hear from people who have gone through this, have healed, and figured out their way to remission. And yes, it is definitely a long journey!! I find it quite challenging that everybody has to figure out their own way to remission and what they tolerate and what they don't tolerate. It makes celiac disease look very easy, everybody needs to just leave away gluten, that's it. But with MC, we have to be the lab rats and the scientists at the same time, doing these trials, month after month. I don't know what I would do without this board! I would feel very much alone and hopeless and I would definitely not be aware of how much time it takes to heal and to figure out a safe diet. It is a long-term project! And it is important to hear that from others to not get discouraged when the short-term results are less than satisfactory.

Very interesting about the Dramamine, I did not know that.

I have been taking Zantac for the dry cough as suggested by the physician assistant. It did not make a difference and I am now switching to Nasonex (she was not sure if it was caused by reflux or by allergies). We'll see if that does anything. If not, it very well may be cough-variant asthma as you suggested.

Love, Patricia
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