3 week update

Feel free to discuss any topic of general interest, so long as nothing you post here is likely to be interpreted as insulting, and/or inflammatory, nor clearly designed to provoke any individual or group. Please be considerate of others feelings, and they will be considerate of yours.

Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh

User avatar
nerdhume
Rockhopper Penguin
Rockhopper Penguin
Posts: 676
Joined: Wed Feb 26, 2014 8:35 am
Contact:

3 week update

Post by nerdhume »

I quit posting my menu each day because I thought it might confuse some of the newbies (and it stirred up envy in others) :grin:

3 weeks after stopping Uceris I am still doing ok on the low carb, high fat & protein diet. Still eating bacon & eggs for breakfast most mornings. And red meat daily (am convinced the vitamins, iron and good protein are key).

I am gaining weight (how could I not eating cheesecake every day?) I'm up to 140 lbs at 5'1", the most I've ever weighed was 145 shortly after I quit smoking 14 years ago. Not too concerned about it right now, just thankful I feel like eating again. Also I remember how quickly I dropped about 20 pounds when I was first diagnosed.

Am I cured? NO, but I do believe the modified SCD diet is a great tool. Particularly because if you have a bad day you can just go back to an earlier stage until it's better.

Still having issues with raw foods, have to cook all veggies. Seem to be ok with moderate amounts of gluten (had pizza last night). I have noticed during my many years of living with low blood sugar issues that having carbs soaked in fat doesn't hit the body like carbs alone. For instance I could only have pancakes for breakfast if I soaked them with butter and had bacon on the side. If I ate them alone then I would get a low blood sugar attack a couple of hours later. Now I am wondering if pizza crust, which by definition is soaked in fat, digests differently than a slice of bread would.

Tex, I also had a DQ dipped cone last night! Not a problem :grin: If the weight keeps going up I may have to give up that and cheesecake.
Theresa

MC and UC 2014
in remission since June 1, 2014

We must all suffer one of two things: the pain of discipline or the pain of regret. ~Jim Rohn
User avatar
tex
Site Admin
Site Admin
Posts: 35071
Joined: Tue May 24, 2005 9:00 am
Location: Central Texas

Post by tex »

Theresa,

I believe you are right. Since some/most of us can do things after we have been in remission for a while that we could never get away with while we were recovering, it's very important to make sure that new members aren't accidentally mislead by some of the things we do. It's very easy to become discouraged during the early stages of recovery, so we have to do everything that we can do to prevent any confusion that might cause a newbie to abandon their treatment program because they made a bad decision when they misinterpreted someone's posted information.

And I agree with you that plenty of bacon fat can convert pancakes into a healthy breakfast. Fat is a much safer (healthier) fuel for our body than refined carbs. I can remember from when I was growing up, my German grandparents and other older relatives would always mop up the left-over grease on their plates with home-made bread. I suspect that you are correct. By doing that they lowered the glycemic index of the bread. When they made knackwurst (pork sausage), they smoked it and packed it in lard. As far as I am aware, none of them were ever diagnosed with diabetes. And except for the few that died in accidents, or from complications resulting from accidents, they all lived much longer than their peers.

I can fondly remember those DQ dipped cones, and I'm pretty sure that one wouldn't cause me to have any noticeable symptoms, but for me, they will have to remain a memory. After suffering with arthritis for a few years back when I was in my late 50s, I'm hoping to keep my joints pain-free and moving smoothly for the rest of my life. Osteoarthritis can be slow to develop, but the effects on the joints are permanent, unfortunately.

And I seem to be having a similar experience with weight gain. After losing over 20 pounds during the past few months (at first due to a change in my response to my thyroid supplement that caused hyperthyroid symptoms, and more recently due to an acute magnesium deficiency caused by an adverse reaction to an antibiotic), I'm now gaining weight about as fast as I was previously losing it (about 2 pounds per week). It's amazing what a change in metabolism and/or appetite can do regarding weight gain or loss. A few weeks ago, no matter what I did, I lost weight. Now, the opposite is true. :shock:

Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
User avatar
nerdhume
Rockhopper Penguin
Rockhopper Penguin
Posts: 676
Joined: Wed Feb 26, 2014 8:35 am
Contact:

Post by nerdhume »

Also confusing for newbies is the fact that we are all so different. We may, in fact, have different causes of MC. From research and using myself as a science experiment I believe mine started with a bad bug of some sort. Research indicates that bad bugs may be one cause of leaky gut. It takes a long time and strict dedication to heal a leaky gut, partly because we have to continue eating! Once the healing is underway more foods are tolerable. Hopefully when fully healed, most foods will be OK. The problem with newbies is the same problem I had at first...patience. It takes a long time to get better, and each time we 'cheat' on the diet sets us back. It's tough eating a few foods constantly for a year or two, but that's what it takes!

A DQ dipped cone is the only ice cream better than Bluebell. IMHO. :grin: well, maybe homemade, but 'ain't nobody got time for that'
Theresa

MC and UC 2014
in remission since June 1, 2014

We must all suffer one of two things: the pain of discipline or the pain of regret. ~Jim Rohn
User avatar
tex
Site Admin
Site Admin
Posts: 35071
Joined: Tue May 24, 2005 9:00 am
Location: Central Texas

Post by tex »

Speaking of Bluebell, I opened my last box of dairy-free Fruit Bars. I hope Bluebell gets their production and distribution back on track pretty soon, or it's going to be a long, dreary summer.

Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
User avatar
nerdhume
Rockhopper Penguin
Rockhopper Penguin
Posts: 676
Joined: Wed Feb 26, 2014 8:35 am
Contact:

Post by nerdhume »

i agree completely we are down to our last few fruit bars too! There has been a lot of whining on facebook. People from other states don't understand WE ARE OUT OF ICE CREAM! :grin:
Theresa

MC and UC 2014
in remission since June 1, 2014

We must all suffer one of two things: the pain of discipline or the pain of regret. ~Jim Rohn
lisaw
Adélie Penguin
Adélie Penguin
Posts: 168
Joined: Mon Nov 26, 2012 9:27 pm
Location: Chicago

Post by lisaw »

Theresa:

Glad you are doing well! SCD excludes gluten and grains, so not sure how you are following it. Dairy is limited, too, to certain cheeses and yogurt.

Lisa
User avatar
nerdhume
Rockhopper Penguin
Rockhopper Penguin
Posts: 676
Joined: Wed Feb 26, 2014 8:35 am
Contact:

Post by nerdhume »

lisaw
Sorry if I confused you. I was on a very restricted diet gf, df, sf and ef based on enterolab results for about a year.
When I got to a point where I thought my 'leaky gut' might be healed enough I began to add foods back in and I started with a modified scd. I added the eggs and then the cheeses that are 'legal'. After going on a cruise for 5 days I realized small amounts of offending foods didn't effect me. I began adding a few other things back in. I don't really like yogurt and it has never been my friend so I refused to make it. I do however love cheesecake (New York style) and discovered it was ok for me.
Really my diet is perfectly modified just for me. I will eventually be able to add more veggies and fruits, but for now I am doing great.
As for gluten, I haven't gotten the 'guts' to actually take a gluten challenge, but small amounts seem ok so I no longer worry about 'cross contamination' etc.
We each are different and it is my belief we each must find our own way. There may not be a cure, but the hope of the diet is to allow healing so we can get back to a tolerable lifestyle.
There are other diets that are based on % of calories rather than specific carbs. Also 'Life Without Bread' is based on less than 72 grams of carbs per day. These are the basis of my 'modified' diet.
I wish I had found scd earlier in my process. I lost a lot of healing time trying to eat gf recipes, flours, etc. In hindsight I should have focused more on what TO eat rather than what NOT to eat. I also lost some time trying to feed good bacteria because I was just feeding the bad ones lol.
Theresa

MC and UC 2014
in remission since June 1, 2014

We must all suffer one of two things: the pain of discipline or the pain of regret. ~Jim Rohn
User avatar
humbird753
Rockhopper Penguin
Rockhopper Penguin
Posts: 1014
Joined: Mon Nov 28, 2011 4:44 pm
Location: Wisconsin

Post by humbird753 »

Hi Theresa,

I'm glad to hear you're doing so well.

Paula
Paula

"You'll never know how strong you are until being strong is the only choice you have."

"Life is not about waiting for the storm to pass... It's learning to dance in the rain."
Leah
King Penguin
King Penguin
Posts: 2533
Joined: Thu Feb 02, 2012 10:16 pm
Location: San Francisco Bay Area

Post by Leah »

Hi Theresa, So glad that you are doing so well. I too am healed enough to "cheat" a bit. I am very jealous of your ice-cream cone though. I still react to milk products in quantity… however, I can now eat chocolate with a bit of caramel or toffee. That makes me so happy :) I can also eat raw veggies and salad. That also makes me happy.Many Beans and legumes are OK now ( yay) Fresh Fruit remains "in small quantity"….. but like you said, this is all after years of being very diligent. So, for all you newbies : there is light at the end of this tunnel :)

Leah
User avatar
Erica P-G
Rockhopper Penguin
Rockhopper Penguin
Posts: 1815
Joined: Sun Mar 08, 2015 2:06 pm
Location: WA State

Post by Erica P-G »

After working in an office with a Food Service kitchen next to me for 21 years I now feel like I have started back in the dishroom again the way this MC/LC makes me feel! Plus I can't just eat what ever the Chef and Sous Chef makes anymore.....patience is a virtue but it also makes room for a bit of depression too :-(

AGGHH...it's gonna feel like forever by the time I can feel normal again :roll:

Theresa you are another inspiration that I intend to follow after!!

Erica
User avatar
Gabes-Apg
Emperor Penguin
Emperor Penguin
Posts: 8332
Joined: Mon Dec 21, 2009 3:12 pm
Location: Hunter Valley NSW Australia

Post by Gabes-Apg »

Theresa
Congratulations on your progress!!!
And reaping the benefits of your hard work adjusting to life with MC....

My theory these days, listen to your body, if it works for you stick with it... Don't question it or try to apply science etc. we are all so very different.
Gabes Ryan

"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
Trigger2298
Little Blue Penguin
Little Blue Penguin
Posts: 32
Joined: Mon Sep 22, 2014 8:37 pm
Location: Milwaukee, WI.

Post by Trigger2298 »

Hi Theresa,

Really missing your post as i check every day for your return lol... I'm really hoping all is going good and you're still on course and doing great on the modified SCD diet, a long with a small amount of gluten being OK.



Steve
User avatar
nerdhume
Rockhopper Penguin
Rockhopper Penguin
Posts: 676
Joined: Wed Feb 26, 2014 8:35 am
Contact:

Post by nerdhume »

Steve,
Thanks for asking....

I am doing even better now, after lectin research and discovering foods need to be cooked at high temperatures (not baked) or fermented.
I actually bought a 'Fry Daddy' and filled it with lard (suggested by paleo). I have found anything I fry in there not only tastes great but is ok for me to eat. Okra, squash, tater tots, sweet potato fries, chicken fried meat (frying makes the breading ok).

This past week I made my own sauerkraut. The fermentation makes the lectins less troublesome and adds good bacteria so I have been eating a little with each meal.
Instructions here:
http://www.thekitchn.com/how-to-make-ea ... chn-193124

I have cut back on the cheesecake and ice cream to slow the weight gain, but still enjoy it.

I know this is NOT spontaneous remission because I still can't eat most things raw. I tried canteloupe and one bite did it! Tomatoes are ok cooked, but not raw. Cole slaw NO!

As previously mentioned, stopped posting because I felt I was stirring up trouble. I think the lectin diet is worth a try for anyone here. It won't make a difference for everyone, but it will for some. I am finding life great now, I am able to eat like a semi-normal person, go out to eat, etc. I just stick to the fried foods.
Theresa

MC and UC 2014
in remission since June 1, 2014

We must all suffer one of two things: the pain of discipline or the pain of regret. ~Jim Rohn
CathyMe.
Rockhopper Penguin
Rockhopper Penguin
Posts: 641
Joined: Mon Feb 27, 2012 10:42 am

Post by CathyMe. »

So glad to hear things continue to go well for you!
User avatar
Martha
Rockhopper Penguin
Rockhopper Penguin
Posts: 1109
Joined: Fri Oct 08, 2010 11:07 am
Location: Dallas, Texas

Post by Martha »

Theresa,

I'm glad to hear that you are finding a diet that works for you.

So cole slaw is a no, but sauerkraut is okay. That's interesting that it's the fermentation that makes the cabbage okay. I haven't dared try cabbage, but I used to make kimchee with Napa cabbage, so I might be brave and try that again. If it bothers me, DH will eat it.

Love,
Martha
Martha
Post Reply

Return to “Main Message Board”