Update, ineffective treatment

Patricia · Post by **Patricia** » Wed Jul 01, 2015 12:40 pm

Bearcat,

I was diagnosed with LC at the end of September 2014 and put on 9 mg Budesonide right away. It did not work for me, possibly because I was very vitamin D deficient. I did Enterolab testing in November. I tested for gluten, dairy, soy, and egg. You might wonder why I did not do the more comprehensive test. Well, I was very much in denial having any food sensitivities. To my biggest surprise, Enterolab showed elevated antibodies to all four major offenders (while on the full Budesonide dose). Real improvement of symptoms happened when I went on a very bland diet of three or four safe foods for a few weeks and slowly started introducing one new food after another.
You asked in a different post how long it takes to receive the results from Enterolab. It took just a little less than three weeks for me in November. For my daughters this spring it was actually only two weeks.
Once you send off that sample you might want to switch to a very simple bland diet of very few safe foods so you can start healing as soon as possible.

Love, Patricia

BearcatRx · Post by **BearcatRx** » Thu Jul 02, 2015 8:50 am

Just spoke with Kathy from Enterolab on the phone. I asked how long they usually watch for in terms of budesonide therapy before the tests would most likely be inconclusive. She said at the six month mark. At that point they recommend, as Tex usually recommends... the IgA deficiency test!

jlbattin · Post by **jlbattin** » Thu Jul 02, 2015 9:16 am

Any particular brand of vitamin D3 that is better/more effective than others? GNC? Vitamin Cottage? Grocery store? I have always had a vitamin D deficiency so I need to get some to take. I'm sure it's low.

Jari

ldubois7 · Post by **ldubois7** » Thu Jul 02, 2015 11:05 am

Jari,

I take Freeda or Seeking Health brand of D3.
They are allergen free.

Gabes-Apg · Post by **Gabes-Apg** » Sat Jul 11, 2015 12:17 am

bearcat
not sure how many of the other discussions / posts that you read

you may see a fair bit of discussion about magnesium. Given your situation and your Vit D level i thought you might be interested in this article

this article was one of the trigger points for me to do extensive research about magnesium
http://www.perskyfarms.com/phpBB2/viewtopic.php?t=19888

Since fixing my magnesium deficiency, I believe I am using the Vit D in my body better...

boosting your magnesium, you will cope with stress better.

BearcatRx · Post by **BearcatRx** » Sun Jul 12, 2015 11:43 am

I'll definitely check that out. Hopefully I'll be getting my Enterolab results within the next few days. Until then, I'm eating like I just left my colonoscopy!

Erica P-G · Post by **Erica P-G** » Mon Jul 13, 2015 2:06 pm

Jari,

Just be careful what ever you find that it does not contain Soy, Dairy or Gluten. I thought I was taking a reputable one and after looking at it, it had Soy (probably the capsule that surrounded the D3).

I take a D3 Spray now from Mercola.com and I compliment it with a K2 capsule, made sure they were safe for me.

Cheers
Erica

BearcatRx · Post by **BearcatRx** » Tue Jul 14, 2015 5:20 pm

In retrospect, given my test results, it makes sense why my gluten free trial was ineffective. I had replaced my dairy with almond milk and replaced my gluten snacks with almond chips. They were good.. but some of them contained milk and soy. It just so happened that almonds are one of my highest ranking sensitivities, something I would have never thought of. I have a feeling making these dietary changes now will end with much better results.

Post by **tex** » Tue Jul 14, 2015 7:37 pm

I agree. With any luck at all, you should see positive results this time.

Tex

BearcatRx · Post by **BearcatRx** » Wed Jul 15, 2015 7:51 am

Gabes-Apg wrote:bearcat
not sure how many of the other discussions / posts that you read

you may see a fair bit of discussion about magnesium. Given your situation and your Vit D level i thought you might be interested in this article

this article was one of the trigger points for me to do extensive research about magnesium
http://www.perskyfarms.com/phpBB2/viewtopic.php?t=19888

Since fixing my magnesium deficiency, I believe I am using the Vit D in my body better...

boosting your magnesium, you will cope with stress better.

Gabes, I've been experiencing some muscle shakiness the last few weeks. It's not to the point of being a tremor but I'm definitely noticing symptoms recently. Seems to be a fairly clear sign of hypomagnesemia.

Gabes-Apg · Post by **Gabes-Apg** » Wed Jul 15, 2015 3:41 pm

once i got onto high doses of elemental magnesium, i noticed improvement within weeks, energy increased, sleep improved, muscle strength improved, better focus and concentration ....
work up to high dose gradually, the spray/cream is awesome way to get high doses and not upset the gut.

with your diet changes and starting the magnesium, things should improve at a good rate!!