BRAND NEW TO CC - Questions galore!!
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Specifics On Products - Thanks Erica and Tex
Thanks, Erica, for those Specifics on Products that I can get, to add some healthy calories back into my daily regime. I am trying Smart Balance dairy-free margarine in small amounts on my GF toast, now. And I bought Smuckers Natural Jelly, like Tex suggested, to put on it, also. So far, ok!
I will try that Pure maple Syrup when I can find it, too. And the Coconut Oil. Congealed and Refined is what Tex suggested, but if they have a Spray available, too, that might be good for a quick turkey burger in a pan type Lunch!
Tex, thanks for the SEARCH Info. I intend to try that for All your sakes, so I don't keep asking things you may have already answered a hundred times before on the forum! ha ha.
Will be away a few days, so I probably won't be on the forum again until Friday. Hoping by then to have an OK about the Jersey address for the EnteroLabs Tests to be sent to. Be well, All!
TREESE
I will try that Pure maple Syrup when I can find it, too. And the Coconut Oil. Congealed and Refined is what Tex suggested, but if they have a Spray available, too, that might be good for a quick turkey burger in a pan type Lunch!
Tex, thanks for the SEARCH Info. I intend to try that for All your sakes, so I don't keep asking things you may have already answered a hundred times before on the forum! ha ha.
Will be away a few days, so I probably won't be on the forum again until Friday. Hoping by then to have an OK about the Jersey address for the EnteroLabs Tests to be sent to. Be well, All!
TREESE
Diagnosed with Collagenous Colitis, June 2015.
Diagnosed Dec 2020 with Celiac Disease during 1st Flare up.
Spine Surgery 2010. Chronic Pain. FAITH!!
Diagnosed Dec 2020 with Celiac Disease during 1st Flare up.
Spine Surgery 2010. Chronic Pain. FAITH!!
Ordered The EnteroLab Tests
UPDATE - I found someone in a near-by State who has permitted me to use their Address to have the Test Kit sent to them for the Entero-Labs Tests. I ordered the A1-C1 Panel with the Fat-Absorption added Test to see if my body is using its Nutrients well. They asked if I wanted to complete a Voluntary Survey on some of my Medical background, in order for them to help me with the interpretation of my results, so I did.
I feel encouraged again!! This morning, I ate a very different breakfast than just GF Cereal or Toasted GF Bread. I made French Toast using GF Bread dipped in Hemp Milk and only a tiny bit of egg, and a dash of Cinnamon. Fried it in a very small amount of Coconut Oil. Then, I cooked a fresh Turkey burger that I rolled into a sausage. Threw it in the pan just to brown it after it cooked. Lastly, Pure Maple Syrup, just not a lot, over all. It was Delicious!! Ate every bite! So far, no reaction! Fingers crossed!!
WHY??? Because I knew I had been eating GF Bread, so that was safe. Turkey meat had been safe, too. The Only differences were with the Coconut Oil frying and the Pure Maple Syrup. The Hemp Milk was already agreeable to me. A dash of Cinnamon I had tried before without a problem. And the egg wasn't even a half an egg. Just to make the milk coating stick. And, I felt so hungry, I took a shot!
Will let you know how my stomach is in a few days. Thanks for all your terrific guidance!
TREESE
I feel encouraged again!! This morning, I ate a very different breakfast than just GF Cereal or Toasted GF Bread. I made French Toast using GF Bread dipped in Hemp Milk and only a tiny bit of egg, and a dash of Cinnamon. Fried it in a very small amount of Coconut Oil. Then, I cooked a fresh Turkey burger that I rolled into a sausage. Threw it in the pan just to brown it after it cooked. Lastly, Pure Maple Syrup, just not a lot, over all. It was Delicious!! Ate every bite! So far, no reaction! Fingers crossed!!
WHY??? Because I knew I had been eating GF Bread, so that was safe. Turkey meat had been safe, too. The Only differences were with the Coconut Oil frying and the Pure Maple Syrup. The Hemp Milk was already agreeable to me. A dash of Cinnamon I had tried before without a problem. And the egg wasn't even a half an egg. Just to make the milk coating stick. And, I felt so hungry, I took a shot!
Will let you know how my stomach is in a few days. Thanks for all your terrific guidance!
TREESE
Diagnosed with Collagenous Colitis, June 2015.
Diagnosed Dec 2020 with Celiac Disease during 1st Flare up.
Spine Surgery 2010. Chronic Pain. FAITH!!
Diagnosed Dec 2020 with Celiac Disease during 1st Flare up.
Spine Surgery 2010. Chronic Pain. FAITH!!
That's great Treese,
If you do run into a pondering moment about your breakfast you might try it with a bit more Coconut oil and no egg (you might be able to use Pure Coconut milk in a can so that it is thicker on the bread), everything else sounds like it is a go for you as a Treese Safe Food. YAY!!
It sounds so good I might have to try it ;-)
Cheers
Erica
If you do run into a pondering moment about your breakfast you might try it with a bit more Coconut oil and no egg (you might be able to use Pure Coconut milk in a can so that it is thicker on the bread), everything else sounds like it is a go for you as a Treese Safe Food. YAY!!
It sounds so good I might have to try it ;-)
Cheers
Erica
To Succeed you have to Believe in something with such a passion that it becomes a Reality - Anita Roddick
Dx LC April 2012 had symptoms since Aug 2007
Dx LC April 2012 had symptoms since Aug 2007
Coconut Milk and Cholesterol - NIACIN regulated
Erica, thanks for the idea of Coconut Milk for the French Toast!
Question, Forum Friends - What about Coconut Milk and Cholesterol? I understand Coconut Milk is high in fat. Is that form of fat healthy as far as people with high cholesterol are concerned?
I presently take 1000mg's of Niacin a day in the evenings, for maintaining my cholesterol levels which were high for some reason. My MD prescribed the Niacin when I told him I didn't want a Drug for it. Been taking it a couple of years now and the cholesterol is under control.
Also - Is Niacin safe as far as CC is concerned?
Thank you and have a great day!
TREESE
Question, Forum Friends - What about Coconut Milk and Cholesterol? I understand Coconut Milk is high in fat. Is that form of fat healthy as far as people with high cholesterol are concerned?
I presently take 1000mg's of Niacin a day in the evenings, for maintaining my cholesterol levels which were high for some reason. My MD prescribed the Niacin when I told him I didn't want a Drug for it. Been taking it a couple of years now and the cholesterol is under control.
Also - Is Niacin safe as far as CC is concerned?
Thank you and have a great day!
TREESE
Diagnosed with Collagenous Colitis, June 2015.
Diagnosed Dec 2020 with Celiac Disease during 1st Flare up.
Spine Surgery 2010. Chronic Pain. FAITH!!
Diagnosed Dec 2020 with Celiac Disease during 1st Flare up.
Spine Surgery 2010. Chronic Pain. FAITH!!
Question About Safe Constipation Relief
Good Morning, All - May I ask about Safe methods for relief from occasional Constipation?
Prior to this CC Diagnosis, I used to simply have some spinach or 4 prunes to ease occasional constipation. I had whole grain bread and flax seed in my diet then, too, as well as apples, raisins, and similar types of fiber.
Now, however, I can't eat spinach or prunes without too extreme a reaction. Not eating whole grain breads anymore, either. (I can still and do still drink 40 ozs of water daily)
What then is safe for people with CC to use for constipation? And how much of it at a time?
Ex: flaxseed - 1 tblspn or 1 teaspoon; once a day or twice?
Thanks you,
TREESE
Prior to this CC Diagnosis, I used to simply have some spinach or 4 prunes to ease occasional constipation. I had whole grain bread and flax seed in my diet then, too, as well as apples, raisins, and similar types of fiber.
Now, however, I can't eat spinach or prunes without too extreme a reaction. Not eating whole grain breads anymore, either. (I can still and do still drink 40 ozs of water daily)
What then is safe for people with CC to use for constipation? And how much of it at a time?
Ex: flaxseed - 1 tblspn or 1 teaspoon; once a day or twice?
Thanks you,
TREESE
Diagnosed with Collagenous Colitis, June 2015.
Diagnosed Dec 2020 with Celiac Disease during 1st Flare up.
Spine Surgery 2010. Chronic Pain. FAITH!!
Diagnosed Dec 2020 with Celiac Disease during 1st Flare up.
Spine Surgery 2010. Chronic Pain. FAITH!!
Hi Treese,
Research shows that cholesterol levels are primarily connected with inherited genetics. If one or both of our parents had high cholesterol levels, then there is a very good chance that we will also have high cholesterol. Diet has been shown to have only a minor effect (not nearly as significant as many doctors believe), in most cases. Eating fat does not make us fat, nor does it cause high cholesterol, though obviously the extra calories are likely to have some effect, and cholesterol levels can be affected to some degree. But it's not our food that regulates our cholesterol level, it's regulated by our body's tendency to maintain the level that's written into our genetic code. Diet can influence the levels, but it can't totally overrule our genetics. In general, saturated fats are healthy, and trans fats are unhealthy. Moderate amounts of coconut oil in the diet shouldn't negatively affect anyone. Trying to subsist on coconut milk alone would be an entirely different matter.
As far as I'm aware, there's no reason why niacin should adversely affect MC.
If you can't do even small doses of prunes without unpredictable, or disastrous results, maybe some sort of well-cooked, or canned fruit might work. Applesauce might work if your system just needs a slight nudge. It's the hull in flaxseed that works as a laxative, so ground flaxseed should be much more effective than whole flaxseed (but I'm just guessing here, because I've never used it). If you are still taking Lialda, however, C may be a sign that it's time to decrease the dose. But if you've been having bouts of C since your diagnosis, that may not apply.
Tex
Research shows that cholesterol levels are primarily connected with inherited genetics. If one or both of our parents had high cholesterol levels, then there is a very good chance that we will also have high cholesterol. Diet has been shown to have only a minor effect (not nearly as significant as many doctors believe), in most cases. Eating fat does not make us fat, nor does it cause high cholesterol, though obviously the extra calories are likely to have some effect, and cholesterol levels can be affected to some degree. But it's not our food that regulates our cholesterol level, it's regulated by our body's tendency to maintain the level that's written into our genetic code. Diet can influence the levels, but it can't totally overrule our genetics. In general, saturated fats are healthy, and trans fats are unhealthy. Moderate amounts of coconut oil in the diet shouldn't negatively affect anyone. Trying to subsist on coconut milk alone would be an entirely different matter.
As far as I'm aware, there's no reason why niacin should adversely affect MC.
If you can't do even small doses of prunes without unpredictable, or disastrous results, maybe some sort of well-cooked, or canned fruit might work. Applesauce might work if your system just needs a slight nudge. It's the hull in flaxseed that works as a laxative, so ground flaxseed should be much more effective than whole flaxseed (but I'm just guessing here, because I've never used it). If you are still taking Lialda, however, C may be a sign that it's time to decrease the dose. But if you've been having bouts of C since your diagnosis, that may not apply.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
QUESTIONS About Healthy Bowel Elimination vs Constipation
Tex, your Reply addressed many of my concerns, thank you. There is, however, another... may I choose my words delicately.
Before my diagnosis, I moved my bowels every two days or so, with the assistance of spinach and maybe a few prunes if it went to a third day. The movements were quite large and came with ease and without strain. I am now wondering if that was because my body wasn't using its nutrients, so they passed out of me in those large proportions?
So - the Question then is: Is the size of Or frequency of a bowel movement any indication of whether or not the body is making use of its food?
At present, it has been 5 days and I haven't gone. My stomach feels hard below the belly button and is rather protruding. My usual state is a rather flat stomach. This may sound an idiotic thing to ask, but I haven't experienced this scenario before, and I'm quite serious, I assure you. I even ate 2 prunes and still nothing.
Question - Is Milk of Magnesia an option here, if nothing else works soon, fruit or vegetable wise?? Or, is a Cup of Coffee with French Vanilla Creamer actually a safer option than Milk of Mag? Or, a Suppository? Guess I need Help again....
Thank You, Tex and Whomever else cares to Reply.
TREESE (feeling embarrassed)
Before my diagnosis, I moved my bowels every two days or so, with the assistance of spinach and maybe a few prunes if it went to a third day. The movements were quite large and came with ease and without strain. I am now wondering if that was because my body wasn't using its nutrients, so they passed out of me in those large proportions?
So - the Question then is: Is the size of Or frequency of a bowel movement any indication of whether or not the body is making use of its food?
At present, it has been 5 days and I haven't gone. My stomach feels hard below the belly button and is rather protruding. My usual state is a rather flat stomach. This may sound an idiotic thing to ask, but I haven't experienced this scenario before, and I'm quite serious, I assure you. I even ate 2 prunes and still nothing.
Question - Is Milk of Magnesia an option here, if nothing else works soon, fruit or vegetable wise?? Or, is a Cup of Coffee with French Vanilla Creamer actually a safer option than Milk of Mag? Or, a Suppository? Guess I need Help again....
Thank You, Tex and Whomever else cares to Reply.
TREESE (feeling embarrassed)
Diagnosed with Collagenous Colitis, June 2015.
Diagnosed Dec 2020 with Celiac Disease during 1st Flare up.
Spine Surgery 2010. Chronic Pain. FAITH!!
Diagnosed Dec 2020 with Celiac Disease during 1st Flare up.
Spine Surgery 2010. Chronic Pain. FAITH!!
Dear Treese,
I'm not going to comment on your question on bowel volume and frequency, because I don't have experience on that, but I wanted to mention a couple of other things.
You asked a while ago about the Rotation diet. I don't rotate foods myself, but I did buy a book that explains it in detail, and even gives what to eat on each rotation day (which oil, sweetener, flours, juices, milk substitutes, spices, fruits, vegetables, protein, etc.) There is also a long list of foods and what family each is in, so that you can rotate it on the proper day.
The book is The Super Allergy Girl Gluten-free, Casein-free, Nut-fee Allergy and Celiac Cookbook from a Mother who Knows, by Lisa A. Lundy.
In addition to the info on rotation, she also gives lots of recipes, many of them ones that will appeal to children, if that is a concern for you.
I also use Earth Balance soy-free butter substitute, as mentioned by Erica, and LouAna coconut oil, mentioned by Tex. I like the LoAna brand, as it is refined and doesn't give everything a coconut taste. I use canned coconut milk for cooking; my favorite is Aroy-D. It makes great curry. I also buy the small cartons of Silk almond milk, which I use mostly for baking.
So glad you found someone to help with the EnteroLab mailings. Having that information will make it so much easier to refine your diet.
Martha
I'm not going to comment on your question on bowel volume and frequency, because I don't have experience on that, but I wanted to mention a couple of other things.
You asked a while ago about the Rotation diet. I don't rotate foods myself, but I did buy a book that explains it in detail, and even gives what to eat on each rotation day (which oil, sweetener, flours, juices, milk substitutes, spices, fruits, vegetables, protein, etc.) There is also a long list of foods and what family each is in, so that you can rotate it on the proper day.
The book is The Super Allergy Girl Gluten-free, Casein-free, Nut-fee Allergy and Celiac Cookbook from a Mother who Knows, by Lisa A. Lundy.
In addition to the info on rotation, she also gives lots of recipes, many of them ones that will appeal to children, if that is a concern for you.
I also use Earth Balance soy-free butter substitute, as mentioned by Erica, and LouAna coconut oil, mentioned by Tex. I like the LoAna brand, as it is refined and doesn't give everything a coconut taste. I use canned coconut milk for cooking; my favorite is Aroy-D. It makes great curry. I also buy the small cartons of Silk almond milk, which I use mostly for baking.
So glad you found someone to help with the EnteroLab mailings. Having that information will make it so much easier to refine your diet.
Martha
Martha
Elimination Diet Book
Thanks, Martha! I just ordered it from Amazon.com. They had a Used one from a private seller, so it may take an extra week to arrive from Arizona, but I'm glad you told me about it, thanks! I will relish it when it comes!
I am thoroughly devouring Tex's Book at present, now that I have it! So filled with important information and factual research, it should be a #1 Hit on Any CC sufferers List of Must Read's.
Martha, again, thank you and have a good evening!
TREESE
I am thoroughly devouring Tex's Book at present, now that I have it! So filled with important information and factual research, it should be a #1 Hit on Any CC sufferers List of Must Read's.
Martha, again, thank you and have a good evening!
TREESE
Diagnosed with Collagenous Colitis, June 2015.
Diagnosed Dec 2020 with Celiac Disease during 1st Flare up.
Spine Surgery 2010. Chronic Pain. FAITH!!
Diagnosed Dec 2020 with Celiac Disease during 1st Flare up.
Spine Surgery 2010. Chronic Pain. FAITH!!
Oooops...that was ROTATION DIET
Sorry, Martha...I meant to say ROTATION Diet, not Elimination. Think I just have "elimination" on my mind! OY!!
TREESE
TREESE
Diagnosed with Collagenous Colitis, June 2015.
Diagnosed Dec 2020 with Celiac Disease during 1st Flare up.
Spine Surgery 2010. Chronic Pain. FAITH!!
Diagnosed Dec 2020 with Celiac Disease during 1st Flare up.
Spine Surgery 2010. Chronic Pain. FAITH!!
Well, obviously anyone having 20 BMs per day consisting primarily of brown water will not be absorbing many of the nutrients in their food. But at the other extreme, according to the prevailing medical consensus, anything between several BMs per day and about 3 BMs per week can be considered to be "normal". I have a problem with that definition of "normal", however. The current mindset of most medical professionals associates elevated cholesterol levels with an increased risk of certain adverse health effects. And yet researching the available medical literature, I can find no evidence where the relationship between frequency of BMs and cholesterol level has ever been explored using rigid medical research criteria.Treese wrote:So - the Question then is: Is the size of Or frequency of a bowel movement any indication of whether or not the body is making use of its food?
It is my observation that many/most people who have what is considered to be an elevated cholesterol level, tend to have fewer than 1 BM per day. It's also claimed by most medical professionals that only water and electrolytes are absorbed in the colon. It's believed that lipids are absorbed in the small intestine, and especially in the terminal ileum, for recycling. IMO that is incorrect, and in fact, lipids are also absorbed in the colon. Since food (and food residue) tends to remain in the colon longer than in any other part of the digestive system, this can have a significant effect on cholesterol levels (IMO).
As evidence, I submit my own experience: In February of 2010, my colon was surgically removed, along with a few inches of my terminal ileum, in order to save me from bleeding to death. This issue was not associated with MC, but rather an inherited genetic defect that can cause massive colonic bleeding. At any rate, within 3 months, my total cholesterol level dropped from my long-term range of 225–230 ng/mL, down to 191 ng/mL, a drop of almost 40 points.
As additional evidence I note that fiber in the diet is promoted as a way to lower cholesterol levels. But no one actually knows why that works. It's theorized that fiber binds cholesterol while still in the small intestine, to prevent it from being absorbed there, so that it can be carried on out of the body and eliminated. But I say that's hogwash, fabricated to promote the use of fiber. I submit that fiber helps to reduce cholesterol levels simply because fiber irritates the mucosa of the intestines (which has been proven by research). The irritation promotes the release of mucus, which speeds up motility, so that stool exits the body much sooner than it would otherwise. IOW my claim is that the longer stool remains in the intestines, including the colon, the more lipids will be absorbed for recycling, and therefore the higher cholesterol levels will be in the long run. And of course, that's true for all nutrients — the longer they remain available for absorption in the small intestine, the more likely they are to actually be absorbed.
IMO it's probably never a good idea to ingest an inflammatory food in order to induce a BM, since that will obviously increase the inflammation level. Of course that might need to be disregarded in an emergency situation. Laxatives are certainly an option when constipation is a problem, however. And it's never a good idea to allow C to go on too long, because it can lead to impaction problems.Treese wrote:Question - Is Milk of Magnesia an option here, if nothing else works soon, fruit or vegetable wise?? Or, is a Cup of Coffee with French Vanilla Creamer actually a safer option than Milk of Mag? Or, a Suppository? Guess I need Help again....
Remember that in C-predominant cases of MC, the C is a symptom of inflammation, just as D is a symptom of inflammation in D-predominant MC.
And when I mentioned reviewing your current medical treatment in my previous post, I forgot to point out that constipation is a listed side effect of Lialda.
I hope that some of this is helpful.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
The C Issue and Lialda
Tex, thank you for the long and sensible explanation you offered about C. Thankfully, this morning brought a welcome relief to my gut... the 3 baked apple slices without skin and 1 tblspn of flaxseed ground in my GF Cereal with Unsweetened Hemp Milk, for 2 days, did it. I feel better again!
I thought about what you said in your post and it was also the conclusion I had come to myself. So, I went with the most natural and least inflammatory way I could think of and it was effective.
About LIALDA - does one need to wean off Lialda as with the more severe drugs, when the time for getting off of it comes? My Doc says I should be on it at least 3 months. I see him this month on Aug 31st and if I keep feeling Constipated, I might ask him to lower the dose to 1 a day instead of 2. Unless that is unwise...
Based on all you have said, how can I know for sure whether it's the CC or the Pill causing the C? I was not a person who suffered from C before this all began.
Thank you - and your Book is a truly priceless Gift of Information, Insight and Hope!
TREESE PS I bought fresh anti-biotic free ground Turkey today and rolled small amounts of it into sausages to freeze for when I want to have them with breakfast. Also, made some Turkey Patties for a Lunch change and froze them, too. I'm catching on!!
I thought about what you said in your post and it was also the conclusion I had come to myself. So, I went with the most natural and least inflammatory way I could think of and it was effective.
About LIALDA - does one need to wean off Lialda as with the more severe drugs, when the time for getting off of it comes? My Doc says I should be on it at least 3 months. I see him this month on Aug 31st and if I keep feeling Constipated, I might ask him to lower the dose to 1 a day instead of 2. Unless that is unwise...
Based on all you have said, how can I know for sure whether it's the CC or the Pill causing the C? I was not a person who suffered from C before this all began.
Thank you - and your Book is a truly priceless Gift of Information, Insight and Hope!
TREESE PS I bought fresh anti-biotic free ground Turkey today and rolled small amounts of it into sausages to freeze for when I want to have them with breakfast. Also, made some Turkey Patties for a Lunch change and froze them, too. I'm catching on!!
Diagnosed with Collagenous Colitis, June 2015.
Diagnosed Dec 2020 with Celiac Disease during 1st Flare up.
Spine Surgery 2010. Chronic Pain. FAITH!!
Diagnosed Dec 2020 with Celiac Disease during 1st Flare up.
Spine Surgery 2010. Chronic Pain. FAITH!!
That's good news. We have 1 or 2 other members who have had some serious C episodes at times in the past. They can get out of hand if they go too far.
The reason why Entocort has to be tapered (from an official medical viewpoint) is because of the risk of adrenal damage associated with the use of corticosteroids. But the real reason why we recommend (on this board) a very slow, drawn-out taper is because of the rebound effect corticosteroids have on mast cell populations when they are discontinued. It appears that corticosteroids do not suppress inflammation directly. Instead they work indirectly by expressing vitamin D receptors, and the active form of vitamin D actually suppresses the inflammation. IOW, corticosteroids work by means of a synergistic effect that allows vitamin D to suppress the inflammation more effectively than it would be able to do on its own. Vitamin D works to suppress inflammation by suppressing the activation of mast cells, and by suppressing the propagation of new mast cells.
Therefore if Entocort is discontinued too abruptly, the expression of new vitamin D receptors will rapidly diminish, and there will be a rebound in mast cell numbers and activation, resulting in a surge of new inflammation. Please don't expect any of your doctors to endorse any of this however, because all of this information (about corticosteroids and vitamin D) is my own theory (based on published medical research data), as described (with proper medical research citations) in my Vitamin D book. The theory itself has not been proven by direct, dedicated medical research.
All of that background information is just to illustrate that there is no apparent reason why Lialda should have to be tapered, because it works by an entirely different mechanism. Mesalamine is the active ingredient in Lialda, and mesalamine works by suppressing the production of certain enzymes such as lipoxygenase (which is responsible for producing inflammatory leukotrienes) and cyclooxygenase (which is responsible for producing inflammatory prostaglandins). That said, from a practical viewpoint, it still might be helpful to taper mesalamine, just in case there's an undocumented mast cell effect, but as far as I'm aware, it shouldn't be necessary to taper the dose.
The only practical way that I am aware of to determine whether the C is caused by the disease or the treatment, is to stop the treatment.
And yes, it's amazing how much we tend to appreciate minor additions to our diet that normal people wouldn't even give a second glance.
You're very welcome,
Tex
The reason why Entocort has to be tapered (from an official medical viewpoint) is because of the risk of adrenal damage associated with the use of corticosteroids. But the real reason why we recommend (on this board) a very slow, drawn-out taper is because of the rebound effect corticosteroids have on mast cell populations when they are discontinued. It appears that corticosteroids do not suppress inflammation directly. Instead they work indirectly by expressing vitamin D receptors, and the active form of vitamin D actually suppresses the inflammation. IOW, corticosteroids work by means of a synergistic effect that allows vitamin D to suppress the inflammation more effectively than it would be able to do on its own. Vitamin D works to suppress inflammation by suppressing the activation of mast cells, and by suppressing the propagation of new mast cells.
Therefore if Entocort is discontinued too abruptly, the expression of new vitamin D receptors will rapidly diminish, and there will be a rebound in mast cell numbers and activation, resulting in a surge of new inflammation. Please don't expect any of your doctors to endorse any of this however, because all of this information (about corticosteroids and vitamin D) is my own theory (based on published medical research data), as described (with proper medical research citations) in my Vitamin D book. The theory itself has not been proven by direct, dedicated medical research.
All of that background information is just to illustrate that there is no apparent reason why Lialda should have to be tapered, because it works by an entirely different mechanism. Mesalamine is the active ingredient in Lialda, and mesalamine works by suppressing the production of certain enzymes such as lipoxygenase (which is responsible for producing inflammatory leukotrienes) and cyclooxygenase (which is responsible for producing inflammatory prostaglandins). That said, from a practical viewpoint, it still might be helpful to taper mesalamine, just in case there's an undocumented mast cell effect, but as far as I'm aware, it shouldn't be necessary to taper the dose.
The only practical way that I am aware of to determine whether the C is caused by the disease or the treatment, is to stop the treatment.
And yes, it's amazing how much we tend to appreciate minor additions to our diet that normal people wouldn't even give a second glance.
You're very welcome,
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
VITAMINS - One A Days or something more Focussed?
I have been reading a lot on the forum about Magnesium and Vit D being good and even necessary for us with CC. Now it's time for me to get the specifics on this area of my healing, with your help, if you would be so kind!
Presently, I take Caltrate-D. My Spine Surgeon recommended it for my Osteoporosis. These are its Ingredients:
Amount Per Tablet % Daily Value
Vitamin D3 800 IU 200%
Calcium 600 mg 60%
Ingredients: Calcium Carbonate, Maltodextrin. Contains < 2% of: Blue 2 Lake, Cholecalciferol (Vit. D3), Croscarmellose Sodium, Magnesium Stearate, Polyethylene Glycol, Polyvinyl Alcohol, Red 40 Lake, Talc, Titanium Dioxide, Tocopherols (To Preserve Freshness), Yellow 6 Lake.
BUT - Now it seems they are suddenly changing the formula and adding other minerals to it. Never read their Labels before now. This NEW version says...
Supplement Facts
Serving Size 1 Tablet
Amount Per Tablet % Daily Value
Vitamin D3 800 IU 200%
Calcium 600 mg 60%
Magnesium 50 mg 13%
Zinc 7.5 mg 50%
Copper 1 mg 50%
Manganese 1.8 mg 90%
Boron 250 mcg *
*Daily Value not established.
Ingredients: Calcium Carbonate, Pregelatinized Corn Starch, Magnesium Oxide, Maltodextrin, Microcrystalline Cellulose. Contains <2% of: Blue 2 Lake, Cholecalciferol (Vit. D3), Croscarmellose Sodium, Cupric Sulfate, Magnesium Stearate, Manganese Sulfate, Polyethylene Glycol, Polyvinyl Alcohol, Red 40 Lake, Sodium Borate, Talc, Titanium Dioxide, Tocopherols (To Preserve Freshness), Yellow 6 Lake, Zinc Oxide.
QUESTIONS: Are Either of these 2 formulas good to use for CC?
Are the Sources (or forms) of the Vitamins and Minerals this company uses good sources?
If Not, which Brand would be the Best when it comes to Vit D and Calcium and even Magnesium?
Do they come in one Pill or must I take several if I switch Brands?
Is Magnesium better used topically until I'm in remission?
One More Question: Is a One-A-Day Vitamin a waste of money at this point of healing?
Phew! Got that all said! ha ha Thank You for allowing me to probe your experiences and for sharing your knowledge with me!
TREESE
Presently, I take Caltrate-D. My Spine Surgeon recommended it for my Osteoporosis. These are its Ingredients:
Amount Per Tablet % Daily Value
Vitamin D3 800 IU 200%
Calcium 600 mg 60%
Ingredients: Calcium Carbonate, Maltodextrin. Contains < 2% of: Blue 2 Lake, Cholecalciferol (Vit. D3), Croscarmellose Sodium, Magnesium Stearate, Polyethylene Glycol, Polyvinyl Alcohol, Red 40 Lake, Talc, Titanium Dioxide, Tocopherols (To Preserve Freshness), Yellow 6 Lake.
BUT - Now it seems they are suddenly changing the formula and adding other minerals to it. Never read their Labels before now. This NEW version says...
Supplement Facts
Serving Size 1 Tablet
Amount Per Tablet % Daily Value
Vitamin D3 800 IU 200%
Calcium 600 mg 60%
Magnesium 50 mg 13%
Zinc 7.5 mg 50%
Copper 1 mg 50%
Manganese 1.8 mg 90%
Boron 250 mcg *
*Daily Value not established.
Ingredients: Calcium Carbonate, Pregelatinized Corn Starch, Magnesium Oxide, Maltodextrin, Microcrystalline Cellulose. Contains <2% of: Blue 2 Lake, Cholecalciferol (Vit. D3), Croscarmellose Sodium, Cupric Sulfate, Magnesium Stearate, Manganese Sulfate, Polyethylene Glycol, Polyvinyl Alcohol, Red 40 Lake, Sodium Borate, Talc, Titanium Dioxide, Tocopherols (To Preserve Freshness), Yellow 6 Lake, Zinc Oxide.
QUESTIONS: Are Either of these 2 formulas good to use for CC?
Are the Sources (or forms) of the Vitamins and Minerals this company uses good sources?
If Not, which Brand would be the Best when it comes to Vit D and Calcium and even Magnesium?
Do they come in one Pill or must I take several if I switch Brands?
Is Magnesium better used topically until I'm in remission?
One More Question: Is a One-A-Day Vitamin a waste of money at this point of healing?
Phew! Got that all said! ha ha Thank You for allowing me to probe your experiences and for sharing your knowledge with me!
TREESE
Diagnosed with Collagenous Colitis, June 2015.
Diagnosed Dec 2020 with Celiac Disease during 1st Flare up.
Spine Surgery 2010. Chronic Pain. FAITH!!
Diagnosed Dec 2020 with Celiac Disease during 1st Flare up.
Spine Surgery 2010. Chronic Pain. FAITH!!
Treese,
Those products are popular (and obviously even doctor-recommended). But while they contain plenty of calcium, they don't contain enough vitamin D nor magnesium to allow most people to utilize the calcium (for bone health). Magnesium oxide is the cheapest, most worthless type of magnesium available, and you need probably 4—6 times as much vitamin D as those tablets contain, in order to make use of the calcium in them.
This is just my opinion, but it's generally true that most people have more than enough calcium already in their diet. But most people are short on vitamin D and magnesium, and that's the reason why osteoporosis is so common. We have to have vitamin D and magnesium or the calcium in our diet (or in pills) does us no good. And other than the calcium carbonate and the small amount of vitamin D in those tablets, most of us would be better off without all those other ingredients.
If I had osteoporosis, I would be taking at least 400 mg of chelated magnesium (magnesium glycinate), and 4,000–5,000 IU of vitamin D, daily. It doesn't hurt to take 600 mg of calcium carbonate, if you feel that your diet doesn't contain enough calcium, but please don't tale over 800 mg of calcium unless you space it out during the day, because doses of calcium over 1,000 mg have been shown to increase the risk of heart attack.
I'm just guessing here, but I'll bet a GF cookie that those who have an increased risk of heart attack are deficient in magnesium. The magnesium deficiency is why they are taking so much calcium in the first place (because their body cannot utilize calcium without magnesium and vitamin D), and a magnesium deficiency increases the risk of heart attack or stroke.
The best brand of magnesium I have found is chelated magnesium by Doctor's Best. Topical magnesium works fine, but oral chelated magnesium will not cause D, either. Many here take Freeda vitamins, because most of them are made without all of the junk that causes us to react. I use Freeda vitamin D.
It's difficult to find a multivitamin that does not contain soy, or something else that may cause problems for many of us. I have no idea what is in the various versions of One-A-Day vitamins, so I can't judge them.
Tex
Those products are popular (and obviously even doctor-recommended). But while they contain plenty of calcium, they don't contain enough vitamin D nor magnesium to allow most people to utilize the calcium (for bone health). Magnesium oxide is the cheapest, most worthless type of magnesium available, and you need probably 4—6 times as much vitamin D as those tablets contain, in order to make use of the calcium in them.
This is just my opinion, but it's generally true that most people have more than enough calcium already in their diet. But most people are short on vitamin D and magnesium, and that's the reason why osteoporosis is so common. We have to have vitamin D and magnesium or the calcium in our diet (or in pills) does us no good. And other than the calcium carbonate and the small amount of vitamin D in those tablets, most of us would be better off without all those other ingredients.
If I had osteoporosis, I would be taking at least 400 mg of chelated magnesium (magnesium glycinate), and 4,000–5,000 IU of vitamin D, daily. It doesn't hurt to take 600 mg of calcium carbonate, if you feel that your diet doesn't contain enough calcium, but please don't tale over 800 mg of calcium unless you space it out during the day, because doses of calcium over 1,000 mg have been shown to increase the risk of heart attack.
I'm just guessing here, but I'll bet a GF cookie that those who have an increased risk of heart attack are deficient in magnesium. The magnesium deficiency is why they are taking so much calcium in the first place (because their body cannot utilize calcium without magnesium and vitamin D), and a magnesium deficiency increases the risk of heart attack or stroke.
The best brand of magnesium I have found is chelated magnesium by Doctor's Best. Topical magnesium works fine, but oral chelated magnesium will not cause D, either. Many here take Freeda vitamins, because most of them are made without all of the junk that causes us to react. I use Freeda vitamin D.
It's difficult to find a multivitamin that does not contain soy, or something else that may cause problems for many of us. I have no idea what is in the various versions of One-A-Day vitamins, so I can't judge them.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.