Hi
I am doing GF, SF, DF and a little EF for a few months now.
I must say. I see some progress.
No entocort anymore. No more D now. (knock on wood!!!)
Some days are better then others at the level of little cramps or bloating or nausea.
all these symptoms are very low.
The only big symptom that really makes me mad and sad is tenesmus.
The more food in my GI tract.. the harder this feeling gets.
If i make a forced BM, the tenesmus is gone or way better.
So basicly.. my GI tract with little stool in it.. I feel pretty good.
But when stool is stacking up into the GI tract.. the PRESSURE is back.
Its just that the GI tract tissue gets expanded.. when my inflammed tissue gets expanded.. the pressure comes.
How many of u guys have this problem too?
and are here people that had it for some months or years and then it did get better????
greets ken
Tenesmus / Incomplete Evacuation feeling
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Hi Ken,
Yes, I had that problem for many months before and during recovery. I suspect that a lot of people who have MC have the problem, because more than a few have posted about it. It's a sign that the gut still has a lot of inflammation. But as we heal, the problem slowly goes away.
Tex
Yes, I had that problem for many months before and during recovery. I suspect that a lot of people who have MC have the problem, because more than a few have posted about it. It's a sign that the gut still has a lot of inflammation. But as we heal, the problem slowly goes away.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Tex.how long did u have This problem ?
It can stop with periods. Then i have 3 Days with 2 hours.tenesmus feeling each day. Then another week.. I have 8 hours that feeling. NO change in diet! SO.. My inflammation goes from a low Grade To a larger Grade and back To a lower. There is NO explaination or change in lifestyle. Did u have the Same problem? Up and Down? Or did It only improve with u?grts
It can stop with periods. Then i have 3 Days with 2 hours.tenesmus feeling each day. Then another week.. I have 8 hours that feeling. NO change in diet! SO.. My inflammation goes from a low Grade To a larger Grade and back To a lower. There is NO explaination or change in lifestyle. Did u have the Same problem? Up and Down? Or did It only improve with u?grts
Hi Ken,
Yes, it would be a problem for a few days and then fade away for a while. I really don't remember all the details because I was sick for several years, and this was 10–15 years ago.
Tex
Yes, it would be a problem for a few days and then fade away for a while. I really don't remember all the details because I was sick for several years, and this was 10–15 years ago.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Here's a link to an old poll from 9 years ago:
Tenesmus - Pain - passing stool; Difficulty passing stool
Here's another thread from last year where tenesmus is mentioned.
LC or not LC? Frustrated with "up in the air" GI d
Tex
Tenesmus - Pain - passing stool; Difficulty passing stool
Here's another thread from last year where tenesmus is mentioned.
LC or not LC? Frustrated with "up in the air" GI d
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
It's really frustrating. I stopped entocort 12 Days ago.
The tenesmus gets worse.. Then loose stools come.. Then .. The big D comes back.
I know This feeling. It's Just like It All started.
Tenesmus .. More and more urge.. Then loose stool.. Then diarrea.
f**K!!! I totally was convinced i could safe Me with gf sf df diet alone.
Im Little Sad that i Will need entocort soon again. Are here People WHO cant get off entocort the First 2 years and then can get off entocort for years??? Does This happen? Grts
The tenesmus gets worse.. Then loose stools come.. Then .. The big D comes back.
I know This feeling. It's Just like It All started.
Tenesmus .. More and more urge.. Then loose stool.. Then diarrea.
f**K!!! I totally was convinced i could safe Me with gf sf df diet alone.
Im Little Sad that i Will need entocort soon again. Are here People WHO cant get off entocort the First 2 years and then can get off entocort for years??? Does This happen? Grts
I'm probably one of the most impatient persons I know (LOL!), but I'm getting better as I find that this is a very unforgiving disease so I might as well pull up a chair, and enjoy the ride! I wonder how long you have been gluten free, soy free, dairy free, and whatever else? We didn't get this way overnight, and unfortunately, we aren't going to heal in a short amount of time either. Have you given yourself adequate time to be free of any triggers? I have found that when I have a flare, it's been stress (which is relentless on MC), or some hidden trigger (such as soy in a lotion I was using). I see you say gf, df, and sf, so what about eggs? Or maybe it's a meat you are eating? Just going out on a hunch here as I feel your frustration. MC is a very relentless disease.
Jari
Diagnosed with Collagenous Colitis, June 29th, 2015
Gluten free, Dairy free, and Soy free since July 3rd, 2015
Diagnosed with Collagenous Colitis, June 29th, 2015
Gluten free, Dairy free, and Soy free since July 3rd, 2015
Ken,
I agree with Jari. This is a cruel disease and it can take a long time for the intestines to heal. They do not heal in just a few months.
Yes, there are people here who have to use Entocort for years.
Tex
I agree with Jari. This is a cruel disease and it can take a long time for the intestines to heal. They do not heal in just a few months.
Yes, there are people here who have to use Entocort for years.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
-
Gabes-Apg
- Emperor Penguin
- Posts: 8332
- Joined: Mon Dec 21, 2009 3:12 pm
- Location: Hunter Valley NSW Australia
Ken,
Have you read some of the posts in the success stories area??
This will give you an indicator of the time it took for there to be minimal symptoms.
For some it can be 6 months, for most is around the 15 months to 2 years, and there are a few that are still having issues after 2 years even with ongoing medication....
Good healing will only happen when all major triggers are removed, medium triggers minimised, and we have the right levels of key nutrients, so that the body can heal.
Most of all we have to be patient, be at peace with the process....
Have you read some of the posts in the success stories area??
This will give you an indicator of the time it took for there to be minimal symptoms.
For some it can be 6 months, for most is around the 15 months to 2 years, and there are a few that are still having issues after 2 years even with ongoing medication....
Good healing will only happen when all major triggers are removed, medium triggers minimised, and we have the right levels of key nutrients, so that the body can heal.
Most of all we have to be patient, be at peace with the process....
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
Ken,
Sorry you are suffering. For next round getting off of Entocort we find long slow taper is best. Take it down to one every other day for some weeks, then one every third day for weeks etc. Some people got to half dose in their taper. (Pour some out.) Long slow taper before taking your last one.
Hang tough!
brandy
Sorry you are suffering. For next round getting off of Entocort we find long slow taper is best. Take it down to one every other day for some weeks, then one every third day for weeks etc. Some people got to half dose in their taper. (Pour some out.) Long slow taper before taking your last one.
Hang tough!
brandy
THX Guy's. Means a lot To Me!
Yes.. Im Too impatient.
I have MC for 5 months now. I stopped entocort cold Turkey.
Relapse is also high on that One.
SO i have To accept.. And start over some.
Then taper slowly Down like they say.
Healing Will take make longer then 5 months i Guess.
A lot triggers HAS being removed.
Gf,df,sf and mainly egg Free.
THX guys
Yes.. Im Too impatient.
I have MC for 5 months now. I stopped entocort cold Turkey.
Relapse is also high on that One.
SO i have To accept.. And start over some.
Then taper slowly Down like they say.
Healing Will take make longer then 5 months i Guess.
A lot triggers HAS being removed.
Gf,df,sf and mainly egg Free.
THX guys