Mast Cell Issues and 3 kids 3 in different schools

Feel free to discuss any topic of general interest, so long as nothing you post here is likely to be interpreted as insulting, and/or inflammatory, nor clearly designed to provoke any individual or group. Please be considerate of others feelings, and they will be considerate of yours.

Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh

crervin
Rockhopper Penguin
Rockhopper Penguin
Posts: 751
Joined: Tue Jul 14, 2015 7:52 pm
Location: Chattanooga, TN

Post by crervin »

Thank you so much Gabes for this information! Will increase the d3 along with the mag spray. I should get my vitamin d level results back next week. This really helps me a lot! My cramping is still a lot better after taking the gluten out. I still have a lot to learn about food. I grew up in a German household, so I had to eat any and everything before I was excused from the table. I learned to love all foods regardless what was in it. Well going back home tomorrow so then I won't be tempted with spicy meals.....
Martha E.

Philippians 4:13

Jul 2008 took Clindamycin for a Sinus infection that forever changed my life
Dec 2014 MC Dx
Jul 15, 2015 Elimination Diet
Aug 17, 2015 Enterolab Test
Dec 2015 Reflux
Sept 2016 IC
User avatar
Gabes-Apg
Emperor Penguin
Emperor Penguin
Posts: 8332
Joined: Mon Dec 21, 2009 3:12 pm
Location: Hunter Valley NSW Australia

Post by Gabes-Apg »

Martha
adjusting to live with MC/mast cell/chronic inflammation is a big adjustment for all of us.
it takes time... and there are always learnings along the way.

A big part of the 'acceptance' of living with MC, is sort of deleting our beliefs/habits eating wise and social wise of the past 30-40 years, and sort of start from scratch and somehow blend family needs, work needs, budget constraints into our MC management plan

Before MC my main socialisation group with was with pasta/antipasto loving italians and one hobby was doing cake decorating!
and i lived on raw vege salads.....

the tricky part is that there is no 'one size fits all' solution in MC world. each person has different triggers, different reactions.
A medication that can be fantastic for one person, can cause major chaos for another
we give you the information/best options that help majority, each person has to fine tune this info to their individual needs

just as it is hard for us, it can be just as difficult for family members or partners to understand.. Do you have Tex's book? It may help your husband to read the book or read some of the posts in the success stories area to grasp how MC has affected others, and what it took to get management of the symptoms.
Gabes Ryan

"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
crervin
Rockhopper Penguin
Rockhopper Penguin
Posts: 751
Joined: Tue Jul 14, 2015 7:52 pm
Location: Chattanooga, TN

Post by crervin »

Yes, I have the book and asked him to read it. He is going to. Sadly, his family and my family have varying degrees of gut problems. So he is very supportive. My cousins' wife has MC too along with GERD plus another autoimmune disease but she manages with anxiety meds and pepto. She has had it for a long time.

Thank you again for all of your encouragement!
Martha E.

Philippians 4:13

Jul 2008 took Clindamycin for a Sinus infection that forever changed my life
Dec 2014 MC Dx
Jul 15, 2015 Elimination Diet
Aug 17, 2015 Enterolab Test
Dec 2015 Reflux
Sept 2016 IC
Post Reply

Return to “Main Message Board”