Linda,
I got an email today letting me know that Dr. Fine is traveling and that my email has been forwarded to him.
Polly
second Enterolab results :( :( :(
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Following This Thread
Good Morning, All - I would like to follow this Thread.
How do I get e-mail Notices whenever something New is added to this Discussion?
PS Please pardon me if this causes anyone offense, but I am praying for each of you! I mean that as my way of offering assistance when I otherwise just feel so helpless to physically assist you. If I am saying anything wrong, please let me know and I won't mention prayer again. Thank you!
TREESE
How do I get e-mail Notices whenever something New is added to this Discussion?
PS Please pardon me if this causes anyone offense, but I am praying for each of you! I mean that as my way of offering assistance when I otherwise just feel so helpless to physically assist you. If I am saying anything wrong, please let me know and I won't mention prayer again. Thank you!
TREESE
Diagnosed with Collagenous Colitis, June 2015.
Diagnosed Dec 2020 with Celiac Disease during 1st Flare up.
Spine Surgery 2010. Chronic Pain. FAITH!!
Diagnosed Dec 2020 with Celiac Disease during 1st Flare up.
Spine Surgery 2010. Chronic Pain. FAITH!!
Treese,
Whenever you write a post, or respond to a post, if you want the system to notify you of new replies, before you click on the "Submit" button, just go to the bottom of the list of options listed on the left side just below the message composing window and click on the little box to select the option that says, "Notify me when a reply is posted".
As long as you continue to act on the notification messages that you receive (IOW, as long as you respond by viewing the reply), the system will continue to send them (whenever a new reply is posted). If you stop responding, or deselect that option, then the system will stop sending them.
Regarding prayers: As long as you don't give us a long-winded sermon every time you post, there's certainly nothing wrong with prayers. With this disease we often need all the help we can get. We all appreciate your thoughtfulness and your support.
Tex
Whenever you write a post, or respond to a post, if you want the system to notify you of new replies, before you click on the "Submit" button, just go to the bottom of the list of options listed on the left side just below the message composing window and click on the little box to select the option that says, "Notify me when a reply is posted".
As long as you continue to act on the notification messages that you receive (IOW, as long as you respond by viewing the reply), the system will continue to send them (whenever a new reply is posted). If you stop responding, or deselect that option, then the system will stop sending them.
Regarding prayers: As long as you don't give us a long-winded sermon every time you post, there's certainly nothing wrong with prayers. With this disease we often need all the help we can get. We all appreciate your thoughtfulness and your support.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Know How Now, Thanks!
Thanks, Tex! I see the Boxes to Check now and I will do so in the future!
And no sermons...promise!!
And no sermons...promise!!
Diagnosed with Collagenous Colitis, June 2015.
Diagnosed Dec 2020 with Celiac Disease during 1st Flare up.
Spine Surgery 2010. Chronic Pain. FAITH!!
Diagnosed Dec 2020 with Celiac Disease during 1st Flare up.
Spine Surgery 2010. Chronic Pain. FAITH!!
Hi all!
The saga goes on....Kathy called me back from Enterolab, and Dr. Fine had a few questions for me like how often do I eat out.....I don't, and what foods out of the 11 tested do I currently eat....+1 potato once or twice a week, and cashews/walnuts almost every day for walnuts, and a little less for cashews. Those three foods went from +1 to +2.
I think that whatever I eat, eventually I react to, though, even without outward signs that it's happening. So, something else is happening as I continue to be in a hyper sensitive state, which is what they told me 2.5 years ago.
Dr. Fine wants me to do the fat malabsorption test, but I know that's an issue, although it's been better lately. Of course I don't eat a lot of fat because I don't digest it very well. I guess these issues point to my small intestine as the culprit. The test will show the degree of issue I have with malabsorption.
So after they have those results, they will contact me again with their thoughts and suggestions.
The goofy thing is that I'm feeling better, for the past 3 weeks, than I have felt in a while. My extreme fatigue is not as bad, my joints do still ache, but not as severely, my stools are normal. I did cut out raw salads, and only eat a few cooked veggies while staying on a low fodmaps & low oxalate diet.
Anyway, that's what's happening, and I will update when I know more.
Thanks!
The saga goes on....Kathy called me back from Enterolab, and Dr. Fine had a few questions for me like how often do I eat out.....I don't, and what foods out of the 11 tested do I currently eat....+1 potato once or twice a week, and cashews/walnuts almost every day for walnuts, and a little less for cashews. Those three foods went from +1 to +2.
I think that whatever I eat, eventually I react to, though, even without outward signs that it's happening. So, something else is happening as I continue to be in a hyper sensitive state, which is what they told me 2.5 years ago.
Dr. Fine wants me to do the fat malabsorption test, but I know that's an issue, although it's been better lately. Of course I don't eat a lot of fat because I don't digest it very well. I guess these issues point to my small intestine as the culprit. The test will show the degree of issue I have with malabsorption.
So after they have those results, they will contact me again with their thoughts and suggestions.
The goofy thing is that I'm feeling better, for the past 3 weeks, than I have felt in a while. My extreme fatigue is not as bad, my joints do still ache, but not as severely, my stools are normal. I did cut out raw salads, and only eat a few cooked veggies while staying on a low fodmaps & low oxalate diet.
Anyway, that's what's happening, and I will update when I know more.
Thanks!
Linda :)
LC Oct. 2012
MTHFR gene mutation and many more....
LC Oct. 2012
MTHFR gene mutation and many more....
It beats me too. I was hoping that Dr. Fine would be able to shine some light on that, but that may not be the case.Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Maybe they're not my results.....maybe the test was off in some way....aren't those possibilities, too?
Dr. Fine did say that it was a good sign that I was feeling good....but 2.5 weeks ago I had a flare, of sorts, that lasted 2 weeks, for no apparent reason that I could deduce.
Would fat malabsorption issues cause my body to still be in a heightened state after 2.5 years?
More questions than answers.....
Dr. Fine did say that it was a good sign that I was feeling good....but 2.5 weeks ago I had a flare, of sorts, that lasted 2 weeks, for no apparent reason that I could deduce.
Would fat malabsorption issues cause my body to still be in a heightened state after 2.5 years?
More questions than answers.....
Linda :)
LC Oct. 2012
MTHFR gene mutation and many more....
LC Oct. 2012
MTHFR gene mutation and many more....
A higher than normal fat malabsorption test result would indicate that your small intestine is still inflamed, so the answer to your question would be "yes".
Tex
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
-
louis
This could maybe be the reason, why some people still have problems even if they remove all their trigger foods. If the body still produces alotJonas wrote:I had the same results, I have celiac disease and had been GF for more than 10 years. Still my Fecal Anti-gliadin IgA was very high.
My only explanation is that the body believes that it is still gets gluten in the diet, although it does not and produce antibodies.
of gluten antibodies it maybe causes more inflammation, even without any gluten in the diet? Question would be then, how to get the body away from producing gluten antibodies, when there is no gluten in the diet after a certain amount of time.
Jonas,
I too wonder if cross-reactivity may be causing that effect. But I also wonder if gluten is so ubiquitous that it shows up at tiny trace levels in all of the food we eat, and that is sufficient to cause our immune system to react.
After all, just because we are not capable of detecting miniscule levels of gluten in foods (because our tests are not sensitive enough) does not mean that the gluten is not there. Consider this:
When someone opens a bag of flour, billions of tiny particles are released into the air, to be carried both short and long distances by the prevailing winds. Flour mills fill the air around them with gluten-laden dust, too fine to see, and small enough to escape many air filtration systems. Grain harvesting and handling equipment does the same. When you multiply those effects by billions of occurrences every day, statistically that represents a significant amount of gluten settling out of the air onto all of our food at any time of the day, wherever it may be, whether the food is in line somewhere being processed, or on our plate.
Government agencies all over the world have adopted 20 ppm as the legal threshold for gluten-free labeling. But it doesn't matter what the label says, because we might still be producing antibodies to it. Remember that the tests used by Dr. Fasano to establish this level as "safe" did not involve stool tests to detect antibodies. The results were based only on clinical symptoms.
We might be producing antibodies to levels so small that no tests currently exist to detect them, even though we are not showing clinical symptoms. No one has ever proven that this is not the case.
Tex
I too wonder if cross-reactivity may be causing that effect. But I also wonder if gluten is so ubiquitous that it shows up at tiny trace levels in all of the food we eat, and that is sufficient to cause our immune system to react.
After all, just because we are not capable of detecting miniscule levels of gluten in foods (because our tests are not sensitive enough) does not mean that the gluten is not there. Consider this:
When someone opens a bag of flour, billions of tiny particles are released into the air, to be carried both short and long distances by the prevailing winds. Flour mills fill the air around them with gluten-laden dust, too fine to see, and small enough to escape many air filtration systems. Grain harvesting and handling equipment does the same. When you multiply those effects by billions of occurrences every day, statistically that represents a significant amount of gluten settling out of the air onto all of our food at any time of the day, wherever it may be, whether the food is in line somewhere being processed, or on our plate.
Government agencies all over the world have adopted 20 ppm as the legal threshold for gluten-free labeling. But it doesn't matter what the label says, because we might still be producing antibodies to it. Remember that the tests used by Dr. Fasano to establish this level as "safe" did not involve stool tests to detect antibodies. The results were based only on clinical symptoms.
We might be producing antibodies to levels so small that no tests currently exist to detect them, even though we are not showing clinical symptoms. No one has ever proven that this is not the case.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.