Hi Marsha!
I also wonder about that good bacteria. When I first got MC, I took Culturelle for a while, and it didn't seem to make much difference so I stopped. Then, about 2 years ago, I had had a bad stomach virus and thought I'd take it again to help replenish the good bacteria in my gut. WOW, was that a mistake. I took it for about a week and the whole time it felt like there was a war going on in my gut. Seriously, it was horrible! Pain/cramping, bloating, LOUD rumbles, gas, explosive D, etc. It improved immediately upon stopping the Culturelle.
I don't know why. Could it be that I had developed antibodies to the good bacteria in Culturelle? Or was I sensitive to that teeny amount of lactose in Culturelle? (but I had no problem the first time). Or maybe I had too much good bacteria (if that is even possible?)? I will probably never know the reason, but I won't ever take good bacteria again - that's for sure.
About the rice. Apparently "enriched" rice is a no-no for those of us with gluten intolerance. I have read that, in order to make the vitamins stick to the rice particles, a chemical made from barley is often used for the enrichment process. (Barley is one of the gluten-containing grains). But PLAIN rice does not contain gluten. As Rosanna Rosannadanna said, "it's always something!".
I do agree that those of us with gluten sensitivity/MI are very different from those with celiac. I use the term "celiac lite" (coined by CAMary) mainly to emphasize that "our" form of GS/MI does NOT show up on the classic tests used to diagnose celiac disease. Our disease is certainly not any less severe than celiac (other than the fact that we may not have as much damage to the small intestine at the time we are diagnosed) - in fact, it is probably much more difficult to live with over time. And it is depressing to think that we may never be able to ever eat our triggers again. This is where Dr. Fasano's research on zonulin might someday help us, though....... if he has found a drug that reduces overall gut permeability.
Welp, you got me thinking, that's for sure!
Love,
Polly
Paging Marsha - re good bacteria, rice, and assorted topics!
Moderators: Rosie, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Paging Marsha - re good bacteria, rice, and assorted topics!
Blessed are they who can laugh at themselves, for they shall never cease to be amused.
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Thanks Polly,
My husband just left with a friend for Las Vegas (5 hour drive). So I guess you can tell I have no responsibilities for a couple days, and don't have to wrestle him for the computer!
I think you're right about zonulin. Wouldn't that be wonderful? And I had another observation about zonulin and the blood/brain barrior. Please keep in mind that all of this medical technical discussion is a bit much for me, so I have to work at reasoning it out, but . . I've noticed when I ingest dairy, it's as though I've taken a drug. I immediately have a mood shift; it lasts for 30 hours, until it's out of my system. It's out of proportion to how a person feels when they have an upset stomach. It sure seems to suggest a blood/brain barrier disfunction. It happens with some of my other intolerances, also, but not as noticably. I just ask because I had a
"aha" moment this morning when you talked about zonulin.
Do you know if there's any reason that a component of dairy should cross the barrier more easily than the gluten proteins, or soy, or maybe egg? By far the most noticeable reaction is to dairy.
Isn't this just a good day on the website?
Love, Marsha
My husband just left with a friend for Las Vegas (5 hour drive). So I guess you can tell I have no responsibilities for a couple days, and don't have to wrestle him for the computer!
I think you're right about zonulin. Wouldn't that be wonderful? And I had another observation about zonulin and the blood/brain barrior. Please keep in mind that all of this medical technical discussion is a bit much for me, so I have to work at reasoning it out, but . . I've noticed when I ingest dairy, it's as though I've taken a drug. I immediately have a mood shift; it lasts for 30 hours, until it's out of my system. It's out of proportion to how a person feels when they have an upset stomach. It sure seems to suggest a blood/brain barrier disfunction. It happens with some of my other intolerances, also, but not as noticably. I just ask because I had a
"aha" moment this morning when you talked about zonulin.Do you know if there's any reason that a component of dairy should cross the barrier more easily than the gluten proteins, or soy, or maybe egg? By far the most noticeable reaction is to dairy.
Isn't this just a good day on the website?
Love, Marsha
Hi Marsha,
An abrupt mood change sounds more like a response to sugar, rather than a response to protein. Lactose is half glucose, (and half galactose), and the brain is the organ most sensitive to a change in blood glucose level – too little produces fatigue, confusion, irritability and aggression, while too much causes the brain to slow down, and may even result in loss of consciousness.
Glucose is basically the only fuel that the brain uses, so it definitely crosses the blood/brain barrier much more readily than rogue proteins.
Love,
Wayne
An abrupt mood change sounds more like a response to sugar, rather than a response to protein. Lactose is half glucose, (and half galactose), and the brain is the organ most sensitive to a change in blood glucose level – too little produces fatigue, confusion, irritability and aggression, while too much causes the brain to slow down, and may even result in loss of consciousness.
Glucose is basically the only fuel that the brain uses, so it definitely crosses the blood/brain barrier much more readily than rogue proteins.
Love,
Wayne
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Polly,
Was your probiotic in a capsule, by any chance? If so, capsules are usually made out of cellulose, and thanks to Marsha, I now know that cellulose is one of the higher sources of sulfites.
Also, if you ever need a form free of dairy as well as cellulose (say, after a necessary antibiotic), the refrigerated "dairy-free" one at Whole Foods would be a good choice. It doesn't bother me, but then we're all different according to our genes.
Yours, Luce
Was your probiotic in a capsule, by any chance? If so, capsules are usually made out of cellulose, and thanks to Marsha, I now know that cellulose is one of the higher sources of sulfites.
Also, if you ever need a form free of dairy as well as cellulose (say, after a necessary antibiotic), the refrigerated "dairy-free" one at Whole Foods would be a good choice. It doesn't bother me, but then we're all different according to our genes.
Yours, Luce
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Hi Lucy, and Polly, and Wayne,
Chuck's still gone. I've washed the dogs, cleaned the light fixtures, vacuumed, done my mending and ironed. (If the dogs were cars, they'd be "detailed", they're so clean, and they're not real happy with me) He better get back soon, or I'll have to get a life.
Hey Lucy, about the probiotics, I dumped them out of the capsules and took them, and tried different types (you know, all the latin names) as well. Same experience, so it wasn't the cellulose. It's like adding more soldiers to the intestinal battlefield: doesn't matter that they're fighting for the good side, they're still soldiers.
Wayne, about the BBB and dairy, you're right, it could be sugar, but it would have to be only lactose, because other sugars don't do it. And I've eaten casein without a problem.
I hope you all are well today, Love, Marsha
Chuck's still gone. I've washed the dogs, cleaned the light fixtures, vacuumed, done my mending and ironed. (If the dogs were cars, they'd be "detailed", they're so clean, and they're not real happy with me) He better get back soon, or I'll have to get a life.
Hey Lucy, about the probiotics, I dumped them out of the capsules and took them, and tried different types (you know, all the latin names) as well. Same experience, so it wasn't the cellulose. It's like adding more soldiers to the intestinal battlefield: doesn't matter that they're fighting for the good side, they're still soldiers.
Wayne, about the BBB and dairy, you're right, it could be sugar, but it would have to be only lactose, because other sugars don't do it. And I've eaten casein without a problem.
I hope you all are well today, Love, Marsha