Hi all,
It’s been a while. I had been in remission since December 2013 after being on Entocort and a strict gf, cf, sf, ef diet. About a month ago, it all changed. D has started again but not the mud of CC, it’s explosive and watery.
I have had some changes in my life. In March DH & I moved from NJ to NC for a job opportunity that didn’t work out. DH has found a “semi-retirement” job and started to collect his S.S. to make up for the income. I haven’t found any work as of yet, I had a good paying full time job before the move that I didn’t want to give up. I’m taking my time to find the right job. I haven’t been as strict with my diet as I should be. I have to look for new Drs.
I have previously been diagnosed with osteoporosis, underactive thyroid, fibromyalgia, oral lichen planus, eczema, TMJ and CC, I also suffer from anxiety. I have been told the joint pain in both my thumbs and deformed thumb and index finger on my right hand are osteoarthritis. The Dr. (rheumatologist) ordered x-rays of my hands, it did not show osteoarthritis, Dr. said that doesn’t mean I don’t have it. I have discomfort in my elbows and sometimes on my left side pain wrapping up and over from my shoulder blade to my breast. I’m negative for RA. The last physical with my primary care Dr., the bloodwork showed that ANA titre was positive. The rheumatologist did additional testing, I’m negative for Lupus. My last bone density scan indicated I’m back to osteoporosis; it was osteopenia 2 years prior. The rheumatologist was unable to get a Reclast infusion scheduled for me before my insurance ran out. After a lot of problems, we now have insurance through healthcare.gov. I don’t know if it would cover the Reclast infusion. The rheumatologist wanted me to start taking Fosamax again; I said “no way” and reminded him of the CC. I also do not take anything but Tylenol, which really does nothing for me.
I saw by the list of recommended GI Dr’s on PP there is one listed in Raleigh, NC but that would be a 3 hour drive. I am about 45 minutes south of Charlotte; does anyone use a GI closer?
I have to say that it has been a very stressful time, things didn’t go as planned and I believe stress is a good part of my current flare. I also do admit that I need to watch my diet better. I really don’t watch the hidden gluten in items. Being I was doing pretty well, I would have a piece of cheese or egg every now and again but nothing with obvious gluten in it. I walk at least 2 miles a day, unless the D is bad, to get rid of stress.
The problems with healthcare.gov prevented me from getting a Dr’s. appointment sooner but I have an appointment with a new primary care Dr. in a few weeks. I don't know anything about the Dr. I have the records from the Rheumatologist (they cost me $110) but not from the GI. I will try to get them. My thyroid meds, fibromyalgia meds and anxiety meds are almost gone; I’m hoping the new primary care will refill them for me.
Any thoughts or suggestions would be appreciated.
Thanks, Susanne
Hello again, it's been a while
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Hi Susanne,
I'm sorry that you've had to deal with all the additional stress and a relapse of symptoms. I note that for me at least, dairy causes osteoarthritis symptoms in several fingers of my right hand, but it often takes a long time for things to change when osteoarthritis is involved (even when it's caused by MC). Apparently I may now be sensitive to soy, because I had a reaction to peanuts over the weekend, and I notice that the distal joint of my index finger on my right hand has been aching since sometime yesterday (and I haven't touched any dairy products).
About 8 years or so ago an EnteroLab test for soy was negative, but I think I'll order a soy test, because I don't know of anything else that could be causing the joint pain in my finger.
Anyway, IMO there's a very good chance that like me, your osteoarthritis-like symptoms may be associated with MC, possibly due to occasional dairy or soy in your diet.
Tex
I'm sorry that you've had to deal with all the additional stress and a relapse of symptoms. I note that for me at least, dairy causes osteoarthritis symptoms in several fingers of my right hand, but it often takes a long time for things to change when osteoarthritis is involved (even when it's caused by MC). Apparently I may now be sensitive to soy, because I had a reaction to peanuts over the weekend, and I notice that the distal joint of my index finger on my right hand has been aching since sometime yesterday (and I haven't touched any dairy products).
About 8 years or so ago an EnteroLab test for soy was negative, but I think I'll order a soy test, because I don't know of anything else that could be causing the joint pain in my finger.
Anyway, IMO there's a very good chance that like me, your osteoarthritis-like symptoms may be associated with MC, possibly due to occasional dairy or soy in your diet.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Hi Tex,
In 2011 my Enterolab results for anti-casein was 16 units and for anti-soy was also 16 units. I was probably pressing my luck when I indulged in that occasional piece of cheese. I know that soy was harder for me to stay away from but I will have to do a better job.
The rheumatologist injected cortisone in the left thumb area last fall and it lasted about 4 months, that was the last time I had relief.
With total avoidance of soy and casein, how long do you think I might see a difference? Regardless, I have to give it a try. To zip up my jeans kills lately!!!!
Thanks,
Susanne
In 2011 my Enterolab results for anti-casein was 16 units and for anti-soy was also 16 units. I was probably pressing my luck when I indulged in that occasional piece of cheese. I know that soy was harder for me to stay away from but I will have to do a better job.
The rheumatologist injected cortisone in the left thumb area last fall and it lasted about 4 months, that was the last time I had relief.
With total avoidance of soy and casein, how long do you think I might see a difference? Regardless, I have to give it a try. To zip up my jeans kills lately!!!!
Thanks,
Susanne
Hi all,
I'm tired. This flare is so different from the others. With the past flares, diarrhea would be worst and pretty much over with in the morning. I used to get up hours before I really needed to so I could deal with it before heading off to work. I'm not working right now, thankfully. The diarrhea hits any time of day and night, I haven't been able to go for my daily walk in weeks. I don't get out much. I hesitate taking Imodium because of a previous very painful backup that it caused.
I did go meet new Primary Care Dr. last week. Here in NC, they coordinate your care. I will be hearing from a GI Drs. office to schedule an appointment within a week or two. The new PC Dr. didn't seem to know much about CC but prescribed the Entocort EC for me to start in the meantime. He was open to how diet can be a cause, as well as medications you might have taken in the past that have an impact, as well as stress.
I have been eating Chex, homemade chicken soup with well cooked carrots and celery and for dinner, it's plain food, I make myself, so I know what's in it and it's going right through me.
The hubby doesn't understand and has asked "What the heck is wrong with you?" I told him that after 4 years with the diagnosis, he should know what I'm dealing with.
Everything in NJ was close to home, so I could get out, do my errands real quick and get back. Here in NC, everything is over a 6 mile ride each way, so I don't chance going out unless I'm feeling really good. To get a decent job around here, your talking a 25-30 minute drive each way, that's never going to happen, even when this flare calms down. I'm paranoid, I always have to know where that bathroom is, flare or not.
Thanks for listening.
Susanne
I'm tired. This flare is so different from the others. With the past flares, diarrhea would be worst and pretty much over with in the morning. I used to get up hours before I really needed to so I could deal with it before heading off to work. I'm not working right now, thankfully. The diarrhea hits any time of day and night, I haven't been able to go for my daily walk in weeks. I don't get out much. I hesitate taking Imodium because of a previous very painful backup that it caused.
I did go meet new Primary Care Dr. last week. Here in NC, they coordinate your care. I will be hearing from a GI Drs. office to schedule an appointment within a week or two. The new PC Dr. didn't seem to know much about CC but prescribed the Entocort EC for me to start in the meantime. He was open to how diet can be a cause, as well as medications you might have taken in the past that have an impact, as well as stress.
I have been eating Chex, homemade chicken soup with well cooked carrots and celery and for dinner, it's plain food, I make myself, so I know what's in it and it's going right through me.
The hubby doesn't understand and has asked "What the heck is wrong with you?" I told him that after 4 years with the diagnosis, he should know what I'm dealing with.
Everything in NJ was close to home, so I could get out, do my errands real quick and get back. Here in NC, everything is over a 6 mile ride each way, so I don't chance going out unless I'm feeling really good. To get a decent job around here, your talking a 25-30 minute drive each way, that's never going to happen, even when this flare calms down. I'm paranoid, I always have to know where that bathroom is, flare or not.
Thanks for listening.
Susanne
Hi Susanne,
I apologize for missing your previous post. I've been having unreliable Internet service for about a month now, and whenever it cuts off my connection, I lose the new post flags, so I can't easily tell which posts haven't been read.
To answer your question in your previous post, since the half-life of anti-soya and anti-casein antibodies is only approximately 6 days, you should see improvement in less than a week if you totally avoid those two foods and they were the only remaining food sensitivities in your diet. Obviously that didn't work (assuming that you tried that), so apparently something else is wrong.
The something else might be cross-contamination or an additional food sensitivity. However, if the D is more random during the day, rather than concentrated in the mornings, that makes me wonder if it might be due to bile acid malabsorption. Eating should trigger increased bile production, so it would seen logical that the problem might be more spread out during the day (and night), because of regular meals during the day (and none during the night).
If I were in that situation I would ask my doc for a prescription for a bile acid sequestrant (assuming that there is no reason why you shouldn't be able to try one). See what your doc thinks.
Also, you mentioned that you were "negative for RA". I assume that means that your Rheumatoid Factor test result was negative. If that's the case, and you are still having arthritis symptoms, that's fairly strong evidence that your diet might somehow be cross-contaminated with gluten. Been there, done that, and I can assure you that it is very common, and it's almost impossible to avoid if there is any wheat flour in the house. Of course, casein can cause arthritis symptoms also, especially osteoarthritis, but major AI symptoms are typically caused by gluten sneaking into the diet.
Tex
I apologize for missing your previous post. I've been having unreliable Internet service for about a month now, and whenever it cuts off my connection, I lose the new post flags, so I can't easily tell which posts haven't been read.
To answer your question in your previous post, since the half-life of anti-soya and anti-casein antibodies is only approximately 6 days, you should see improvement in less than a week if you totally avoid those two foods and they were the only remaining food sensitivities in your diet. Obviously that didn't work (assuming that you tried that), so apparently something else is wrong.
The something else might be cross-contamination or an additional food sensitivity. However, if the D is more random during the day, rather than concentrated in the mornings, that makes me wonder if it might be due to bile acid malabsorption. Eating should trigger increased bile production, so it would seen logical that the problem might be more spread out during the day (and night), because of regular meals during the day (and none during the night).
If I were in that situation I would ask my doc for a prescription for a bile acid sequestrant (assuming that there is no reason why you shouldn't be able to try one). See what your doc thinks.
Also, you mentioned that you were "negative for RA". I assume that means that your Rheumatoid Factor test result was negative. If that's the case, and you are still having arthritis symptoms, that's fairly strong evidence that your diet might somehow be cross-contaminated with gluten. Been there, done that, and I can assure you that it is very common, and it's almost impossible to avoid if there is any wheat flour in the house. Of course, casein can cause arthritis symptoms also, especially osteoarthritis, but major AI symptoms are typically caused by gluten sneaking into the diet.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Hi Tex,
I found your book, my bible, it hadn't been unpacked yet from the move. I read about bile acid. Is this something else to deal with on top of everything else? If that's the part of the problem will the Entocort help the diaherra at all? Everything has been downhill for the past 5 years. I will discuss this with the GI dr. that I'm referred to. My GI in NJ used to listen to and physically examine my total abdomen. I never asked him what he was looking for but I am guessing that he was checking the other organs.
Have you ever heard of the food store Aldi's? I have been buying some of their gluten free items, they are more affordable there than at the name brand stores.
I checked the items that I purchased and have been using, they all say gluten free but it does not say that they were processed in a gluten free facility. I'm not going to buy them anymore.
I know there is cross contamination going on in my house. I buy my husband bread and make him regular pasta. I don't have separate utensils and pans but I wash everything real good but I guess that doesn't matter.
I try to avoid soy and casein and my hands, knees, elbows and that top of my legs are still killing me, so I guess I'm not doing a good job of avoiding it. Could part of that be the fibromyalgia? My rheumatoid factor was negative. My new PC dr. was concerned with the ANA titre being positive and with the results of the bloodwork C3 and C4. MY NJ rheumatologist wasn't concerned and all he said was that I didn't have lupus. I hope whoever they refer me in NC for rheumatology has more on the ball. My NJ rheumatologist was supposed to set up a reclast infusion for me before my insurance ran out in NJ because my bone density went back to osteoporosis from being osteopenia 2 years prior, he never did managed to get it approved for me.
This is the 2nd time writing this post, the 1st time when I hit submit, the site was undergoing maintenance.
Thanks for your help,
Susanne
I found your book, my bible, it hadn't been unpacked yet from the move. I read about bile acid. Is this something else to deal with on top of everything else? If that's the part of the problem will the Entocort help the diaherra at all? Everything has been downhill for the past 5 years. I will discuss this with the GI dr. that I'm referred to. My GI in NJ used to listen to and physically examine my total abdomen. I never asked him what he was looking for but I am guessing that he was checking the other organs.
Have you ever heard of the food store Aldi's? I have been buying some of their gluten free items, they are more affordable there than at the name brand stores.
I checked the items that I purchased and have been using, they all say gluten free but it does not say that they were processed in a gluten free facility. I'm not going to buy them anymore.
I know there is cross contamination going on in my house. I buy my husband bread and make him regular pasta. I don't have separate utensils and pans but I wash everything real good but I guess that doesn't matter.
I try to avoid soy and casein and my hands, knees, elbows and that top of my legs are still killing me, so I guess I'm not doing a good job of avoiding it. Could part of that be the fibromyalgia? My rheumatoid factor was negative. My new PC dr. was concerned with the ANA titre being positive and with the results of the bloodwork C3 and C4. MY NJ rheumatologist wasn't concerned and all he said was that I didn't have lupus. I hope whoever they refer me in NC for rheumatology has more on the ball. My NJ rheumatologist was supposed to set up a reclast infusion for me before my insurance ran out in NJ because my bone density went back to osteoporosis from being osteopenia 2 years prior, he never did managed to get it approved for me.
This is the 2nd time writing this post, the 1st time when I hit submit, the site was undergoing maintenance.
Thanks for your help,
Susanne
HI Susanne,
I've reread this post a couple times and am wondering if you are still keeping a VitD3 and Magnesium Oil spray regimen going?
I also wonder from reading a post by a fellow member a little while ago who re-took her Enterolab results and they were actually higher than they were when she initially took them, makes me wonder if you react even more to Casein and Soy at this time in your life than in 2011. Just a hunch, and because you are still reacting even after watching your dairy and soy intake recently there is definitely something else that you are eating or ingesting or applying that is keeping you from stopping the D.
You can do this! Back track a bit, plan a bland menu start fresh
Cheers
Erica
I've reread this post a couple times and am wondering if you are still keeping a VitD3 and Magnesium Oil spray regimen going?
I also wonder from reading a post by a fellow member a little while ago who re-took her Enterolab results and they were actually higher than they were when she initially took them, makes me wonder if you react even more to Casein and Soy at this time in your life than in 2011. Just a hunch, and because you are still reacting even after watching your dairy and soy intake recently there is definitely something else that you are eating or ingesting or applying that is keeping you from stopping the D.
You can do this! Back track a bit, plan a bland menu start fresh
Cheers
Erica
To Succeed you have to Believe in something with such a passion that it becomes a Reality - Anita Roddick
Dx LC April 2012 had symptoms since Aug 2007
Dx LC April 2012 had symptoms since Aug 2007
Susanne,
I'm sorry that you had to rewrite the post. I was downloading a backup of the database because the board was so busy over the weekend that I never found a convenient time to do it when someone wasn't logged in and using the board. I try to avoid doing that during busy times, but after someone has been logged on for over 15 minutes, if they don't make any navigational moves, I can't detect that they are logged on, and of course someone writing a post doesn't make any navigational moves, so that's why I wasn't aware that you were logged on.
Usually though, if you will just click on the back button on your browser to back up, and wait a few minutes, then you will be able to submit the post after the backup is finished. I realize that maintenance is a PITA (that's why I usually try to do it on weekends), but I don't want to take a chance on a server crash causing us to lose a week's worth of data.
Erica has a good point, and she may be correct — your sensitivity to either soy or casein (or both) may have increased because of continued exposure. And the same question about magnesium and vitamin D came to my mind, also, but I'll get to that later in this post.
To get to your questions: Yes, the bile acid malabsorption is a separate problem. Research shows that approximately 40 % of chronic D cases (with or without MC) are due to bile acid malabsorption. As Polly pointed out in a post a few weeks ago, she suddenly developed the problem after more than 10 years of remission, and after she couldn't resolve the D by any other method, she tried a bile acid sequestrant (at the suggestion of her GI specialist), and it worked.
Yes, I've heard of Aldi's but there are none located in my part of the world. Most manufacturers of allergen-free products put a warning on the label if the product was manufactured on equipment that also processes foods that might contain any of the 8 major allergens. I usually assume that if a product says GF, and it doesn't contain a warning about possible cross-contamination on the production line, then it should be safe.
IMO a big part of the problem with flour is that it is ground so fine that whenever a bag is opened, or poured, or sifted, or whatever, tiny particles of flour fly into the air, and drift all over the house and settle on everything. We don't normally see it, but if you happen to open a bag when a stream of late-afternoon sun is shining through a window, you will see what I mean. The stream of sunlight will illuminate the flour particles so that they are easily visible. And most of us are so sensitive to gluten that if we touch a slice of bread and then touch our own food, that will transfer enough gluten to cause us to react, especially if it is repeated on a regular basis.
I have a hunch that you may be magnesium-deficient, because the primary cause of osteoporosis is the combination of gluten sensitivity and a deficiency of either vitamin D or magnesium, or both. The body cannot utilize the calcium in our food (or in our blood) to improve bone strength unless it has an adequate level of both vitamin D and magnesium available. And the blood tests used by doctors will not detect a magnesium deficiency until virtually all of the cells of the body are almost totally out of magnesium. That's why most people in the world have a magnesium deficiency — because there's no way to detect it until it reaches dangerously-low levels.
Also, as Dr. Chris Kresser points out, magnesium deficiency is often misdiagnosed as fibromyalgia (because it causes the same symptoms). If you make sure that you have plenty of vitamin D and magnesium in circulation, and make sure that gluten doesn't have an opportunity to sneak into your diet, you should never need any drugs to treat osteoporosis.
The problem with the bisphosphonates is that they do not encourage the growth of new bone cells. To the contrary, they work by preventing the immune system from destroying and removing old, dead bone cells. This makes bones harder (because dead bone is harder), but unfortunately it also makes them more brittle (because dead bone cells are brittle). But the biggest problem with them is that the immune system cannot build new bone cells until the old, dead cells are removed, so this means that absolutely no new bone repair can occur as long as a bisphosphonate drug is used. And their negative effects last a long time after they are discontinued. That's why their use is limited to 5 years (so that users will hopefully have the drugs out of their systems before they begin to have problems with fractures — thereby reducing the manufacturer's liability risks).
You're very welcome, and I hope that some of this is helpful.
Tex
I'm sorry that you had to rewrite the post. I was downloading a backup of the database because the board was so busy over the weekend that I never found a convenient time to do it when someone wasn't logged in and using the board. I try to avoid doing that during busy times, but after someone has been logged on for over 15 minutes, if they don't make any navigational moves, I can't detect that they are logged on, and of course someone writing a post doesn't make any navigational moves, so that's why I wasn't aware that you were logged on.
Usually though, if you will just click on the back button on your browser to back up, and wait a few minutes, then you will be able to submit the post after the backup is finished. I realize that maintenance is a PITA (that's why I usually try to do it on weekends), but I don't want to take a chance on a server crash causing us to lose a week's worth of data.
Erica has a good point, and she may be correct — your sensitivity to either soy or casein (or both) may have increased because of continued exposure. And the same question about magnesium and vitamin D came to my mind, also, but I'll get to that later in this post.
To get to your questions: Yes, the bile acid malabsorption is a separate problem. Research shows that approximately 40 % of chronic D cases (with or without MC) are due to bile acid malabsorption. As Polly pointed out in a post a few weeks ago, she suddenly developed the problem after more than 10 years of remission, and after she couldn't resolve the D by any other method, she tried a bile acid sequestrant (at the suggestion of her GI specialist), and it worked.
Yes, I've heard of Aldi's but there are none located in my part of the world. Most manufacturers of allergen-free products put a warning on the label if the product was manufactured on equipment that also processes foods that might contain any of the 8 major allergens. I usually assume that if a product says GF, and it doesn't contain a warning about possible cross-contamination on the production line, then it should be safe.
IMO a big part of the problem with flour is that it is ground so fine that whenever a bag is opened, or poured, or sifted, or whatever, tiny particles of flour fly into the air, and drift all over the house and settle on everything. We don't normally see it, but if you happen to open a bag when a stream of late-afternoon sun is shining through a window, you will see what I mean. The stream of sunlight will illuminate the flour particles so that they are easily visible. And most of us are so sensitive to gluten that if we touch a slice of bread and then touch our own food, that will transfer enough gluten to cause us to react, especially if it is repeated on a regular basis.
I have a hunch that you may be magnesium-deficient, because the primary cause of osteoporosis is the combination of gluten sensitivity and a deficiency of either vitamin D or magnesium, or both. The body cannot utilize the calcium in our food (or in our blood) to improve bone strength unless it has an adequate level of both vitamin D and magnesium available. And the blood tests used by doctors will not detect a magnesium deficiency until virtually all of the cells of the body are almost totally out of magnesium. That's why most people in the world have a magnesium deficiency — because there's no way to detect it until it reaches dangerously-low levels.
Also, as Dr. Chris Kresser points out, magnesium deficiency is often misdiagnosed as fibromyalgia (because it causes the same symptoms). If you make sure that you have plenty of vitamin D and magnesium in circulation, and make sure that gluten doesn't have an opportunity to sneak into your diet, you should never need any drugs to treat osteoporosis.
The problem with the bisphosphonates is that they do not encourage the growth of new bone cells. To the contrary, they work by preventing the immune system from destroying and removing old, dead bone cells. This makes bones harder (because dead bone is harder), but unfortunately it also makes them more brittle (because dead bone cells are brittle). But the biggest problem with them is that the immune system cannot build new bone cells until the old, dead cells are removed, so this means that absolutely no new bone repair can occur as long as a bisphosphonate drug is used. And their negative effects last a long time after they are discontinued. That's why their use is limited to 5 years (so that users will hopefully have the drugs out of their systems before they begin to have problems with fractures — thereby reducing the manufacturer's liability risks).
You're very welcome, and I hope that some of this is helpful.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Hi Erica,
Thank you for the encouragement. I am eating bland but I must be missing something. I have Chex for breakfast dry, homemade chicken soup for lunch and tonight I had mashed sweet potato and a little piece of steak for dinner, my tummy is screaming at me. I will rethink and start from scratch.
I'm of Italian background and I'm dying for a large piece of lasagna, good Italian bread, regular pizza and chicken parmesan!!!! I haven't found good GF pizza. Lol
I was in remission for 1 1/2 years, I have been reading posts here and there but I don't know what the D3 and magnesium oil spray regimin is.
Thank you,
Susanne
Thank you for the encouragement. I am eating bland but I must be missing something. I have Chex for breakfast dry, homemade chicken soup for lunch and tonight I had mashed sweet potato and a little piece of steak for dinner, my tummy is screaming at me. I will rethink and start from scratch.
I'm of Italian background and I'm dying for a large piece of lasagna, good Italian bread, regular pizza and chicken parmesan!!!! I haven't found good GF pizza. Lol
I was in remission for 1 1/2 years, I have been reading posts here and there but I don't know what the D3 and magnesium oil spray regimin is.
Thank you,
Susanne
Tex,
Wow, thanks so much.
I do take Calcium Citrate with Magnesium and Zinc with D3. I take 4 tablets a day for a total of 1600 IU of D3, 1,000 mg of Calcium and 160 mg of Magnesium. The multi vitamin I take has an additional 500 IU of D3, 220 mg. of calcium and 50 mg of Magnesium. I have no idea if that is enough of any of those. I do believe I need to up the Calcium for osteoporosis. Both are Kirkland brand by Costco, the do not contain gluten or lactose.
There isn't any flour in my house, although there is the bread I buy for my husband but I understand what you are saying. I don't use the toaster because I haven't had a piece of toast in years.
I took Fosamax way over the 5 years that you mentioned, more like 7 to 8 years. Is Reclast a bisphosphonate? My new PC dr. mentioned Prolia or Forteo.
Again, thanks so much.
Susanne
Wow, thanks so much.
I do take Calcium Citrate with Magnesium and Zinc with D3. I take 4 tablets a day for a total of 1600 IU of D3, 1,000 mg of Calcium and 160 mg of Magnesium. The multi vitamin I take has an additional 500 IU of D3, 220 mg. of calcium and 50 mg of Magnesium. I have no idea if that is enough of any of those. I do believe I need to up the Calcium for osteoporosis. Both are Kirkland brand by Costco, the do not contain gluten or lactose.
There isn't any flour in my house, although there is the bread I buy for my husband but I understand what you are saying. I don't use the toaster because I haven't had a piece of toast in years.
I took Fosamax way over the 5 years that you mentioned, more like 7 to 8 years. Is Reclast a bisphosphonate? My new PC dr. mentioned Prolia or Forteo.
Again, thanks so much.
Susanne
HI Susanne,
I'd give the internal Magnesium a rest and try this http://www.vitacost.com/life-flo-pure-m ... oil-8-oz-3 also if your VitD3 isn't a spray I'd go that route too as I have found out that I can not tolerate internal Mag just yet (but then I haven't been in remission persay either but I am getting there) plus the VitD3 capsule may be used with Soy
like I found out mine was. So with that said, you may need the spray mag oil and do it morning and night on arms and legs letting it soak in for 15-30 minutes what ever you have time for, and investing in a spray VitD3 and getting 5000mg into yourself. These work in tandem, so you need both 
(Going to assume you are not needing/using any types of hormone reliefs, but learned they were not letting me heal either).
The food idea would be to not starve yourself...how about Chicken, White rice and cashews? Turkey (nitrate and gluten free) on a local made GF, DF, SF toasted bread? Your Rice Chex, use Coconut milk mm good I found a great pancake mix http://www.amazon.com/Cravings-Place-Pu ... ancake+mix seems a bit expensive, but we don't eat lots of it, and I use Real maple syrup. Just throwing out ideas here, eat what is safe for you I'm making home made Cornish hen noodle soup as well...mm good!
I know what you mean about Italian cooking (love Mexican, Italian, American)...I made my own pizza crust and pizzas all the time at home...now I will have to eventually learn a new approach to some old favorites one day.
Hang in there, one of our suggestions will hopefully be a winner
Cheers
Erica
I'd give the internal Magnesium a rest and try this http://www.vitacost.com/life-flo-pure-m ... oil-8-oz-3 also if your VitD3 isn't a spray I'd go that route too as I have found out that I can not tolerate internal Mag just yet (but then I haven't been in remission persay either but I am getting there) plus the VitD3 capsule may be used with Soy
like I found out mine was. So with that said, you may need the spray mag oil and do it morning and night on arms and legs letting it soak in for 15-30 minutes what ever you have time for, and investing in a spray VitD3 and getting 5000mg into yourself. These work in tandem, so you need both (Going to assume you are not needing/using any types of hormone reliefs, but learned they were not letting me heal either).The food idea would be to not starve yourself...how about Chicken, White rice and cashews? Turkey (nitrate and gluten free) on a local made GF, DF, SF toasted bread? Your Rice Chex, use Coconut milk mm good
I found a great pancake mix http://www.amazon.com/Cravings-Place-Pu ... ancake+mix seems a bit expensive, but we don't eat lots of it, and I use Real maple syrup. Just throwing out ideas here, eat what is safe for you I'm making home made Cornish hen noodle soup as well...mm good!I know what you mean about Italian cooking (love Mexican, Italian, American)...I made my own pizza crust and pizzas all the time at home...now I will have to eventually learn a new approach to some old favorites one day.
Hang in there, one of our suggestions will hopefully be a winner
Cheers
Erica
To Succeed you have to Believe in something with such a passion that it becomes a Reality - Anita Roddick
Dx LC April 2012 had symptoms since Aug 2007
Dx LC April 2012 had symptoms since Aug 2007
Susanne,
That's probably way more calcium than you actually need. Most people don't need any, they just need vitamin D and magnesium, so that they can utilize the calcium already in their diet. Most of us need more vitamin D than you are getting (like 2 or 3 times as much). And you probably need at least twice as much magnesium. However, as Erica pointed out, you may already be taking all the oral magnesium that you may be able to tolerate without causing D.
In fact, I wonder when you started taking the caltrate with magnesium. Was it by any chance just before the D started? The form of magnesium used in most supplements is the cheap type that is poorly absorbed and tends to cause D in higher doses. If the magnesium is in the form of magnesium oxide or magnesium citrate, it can be a problem for many of us, because both become a laxative if enough is taken. Magnesium glycinate is the safest oral form. But the safest way to take additional magnesium is applied to the skin, because it cannot cause D that way.
Yes, Reclast is a bisphosphonate, but Prolia is a monoclonal antibody and Forteo is a parathyroid hormone. They would probably be much safer options than the Reclast. Unfortunately though, too much parthyroid hormone can cause cramping, nausea, and D.
If gluten is somehow sneaking into your diet, it can prevent vitamin D and magnesium from being able to utilize the calcium you are taking to make stronger bones. That's another reason why I suspect the possibility of cross-contamination. IOW, you are taking enough calcium, vitamin D and magnesium to improve bone density by at least some degree, and obviously that's not happening, so something is preventing it from happening, and that something is probably gluten, because celiacs have more osteoporosis problems than anyone.
You're most welcome,
Tex
That's probably way more calcium than you actually need. Most people don't need any, they just need vitamin D and magnesium, so that they can utilize the calcium already in their diet. Most of us need more vitamin D than you are getting (like 2 or 3 times as much). And you probably need at least twice as much magnesium. However, as Erica pointed out, you may already be taking all the oral magnesium that you may be able to tolerate without causing D.
In fact, I wonder when you started taking the caltrate with magnesium. Was it by any chance just before the D started? The form of magnesium used in most supplements is the cheap type that is poorly absorbed and tends to cause D in higher doses. If the magnesium is in the form of magnesium oxide or magnesium citrate, it can be a problem for many of us, because both become a laxative if enough is taken. Magnesium glycinate is the safest oral form. But the safest way to take additional magnesium is applied to the skin, because it cannot cause D that way.
Yes, Reclast is a bisphosphonate, but Prolia is a monoclonal antibody and Forteo is a parathyroid hormone. They would probably be much safer options than the Reclast. Unfortunately though, too much parthyroid hormone can cause cramping, nausea, and D.
If gluten is somehow sneaking into your diet, it can prevent vitamin D and magnesium from being able to utilize the calcium you are taking to make stronger bones. That's another reason why I suspect the possibility of cross-contamination. IOW, you are taking enough calcium, vitamin D and magnesium to improve bone density by at least some degree, and obviously that's not happening, so something is preventing it from happening, and that something is probably gluten, because celiacs have more osteoporosis problems than anyone.
You're most welcome,
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Hi,
I have been taking a Calcium supplement for many years, I was instructed to when I was diagnosed with osteoporosis.
I know I've taken this particular one for a few years. I remember taking calcium with just d3 and then I started taking the current one that has magnesium in it. I don't know when or why I switched.
When I had the 1st reclast infusion I don't believe that I was diagnosed or had symptoms of CC yet, definitely by the 2nd one I did but didn't realize that it was the same ingredient as fosamax.
Diagnosed in around 1992 - 1993 with Hpylori infection
Diagnosed in 2003 with IBS
Diagnosed in 2003 with osteoporosis and eczema
Diagnosed in 2006 with oral lichen planus
Diagnosed in 2009 with underactive thyroid and fibromyalgia
Diagnosed in 2011 with CC
Diagnosed in 2014 with osteoarthritis
Just thought I'd include a timeline.
Thanks,
Susanne
I have been taking a Calcium supplement for many years, I was instructed to when I was diagnosed with osteoporosis.
I know I've taken this particular one for a few years. I remember taking calcium with just d3 and then I started taking the current one that has magnesium in it. I don't know when or why I switched.
When I had the 1st reclast infusion I don't believe that I was diagnosed or had symptoms of CC yet, definitely by the 2nd one I did but didn't realize that it was the same ingredient as fosamax.
Diagnosed in around 1992 - 1993 with Hpylori infection
Diagnosed in 2003 with IBS
Diagnosed in 2003 with osteoporosis and eczema
Diagnosed in 2006 with oral lichen planus
Diagnosed in 2009 with underactive thyroid and fibromyalgia
Diagnosed in 2011 with CC
Diagnosed in 2014 with osteoarthritis
Just thought I'd include a timeline.
Thanks,
Susanne
Aldi's
SuziQ - Aldi's is part of the Trader Joe's companies. They are based out of Germany. For no absolute reason, I trust European gluten free labels more than I trust the US. I have tried Aldi's GF products with no issues. Deb
Susanne,
You're probably aware that bisphosphonates are on the list of medications known to trigger MC.
And I agree with Deb — The Trader Joe's name is as good as gold when it comes to GF foods, so that probably applies to Aldi's, also.
Tex
You're probably aware that bisphosphonates are on the list of medications known to trigger MC.
And I agree with Deb — The Trader Joe's name is as good as gold when it comes to GF foods, so that probably applies to Aldi's, also.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.