EnteroLab Test Results — This Is A Game Changer
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
EnteroLab Test Results — This Is A Game Changer
Hi All,
And it's a bummer, to boot.
I just received my (latest) EnteroLab results.
Unlike the experience of others, compared with my previous results from 3 and 3/4 years ago, and those from over 10 years ago, my antibody levels to gluten and casein have declined significantly. But 10 years ago I was not sensitive to soy (verified by an EneroLab test result) — now I have joined the ranks of those who are soy-sensitive.
So it's good news on the integrity of my diet to avoid gluten and casein, but bad news on the soy. So here are all 3 sets of results:
Note: These first tests were done almost 3 years after adopting a gluten-free, dairy-free diet. I did not order tests for gluten or casein, because at the time I was sure that I was sensitive to them, and I was avoiding them. These test results were received on May 22nd, 2005.
Microscopic Fecal Fat Score 294 Units (Normal Range 300 Units)
Fecal anti-ovalbumin (chicken egg) IgA antibody 5 Units (Normal Range 10 Units)
Fecal Anti-Saccharomyces cerevisiae (dietary yeast) IgA 6 Units (Normal Range 10 Units)
Fecal Anti-Soy IgA 8 Units (Normal Range 10 Units)
Note: These tests were done over 9 years after adopting a gluten-free diet, after dairy had been reintroduced into the diet, because I seemed to tolerate casein. Obviously, trace amounts of gluten had to be contaminating the diet. These test results were received on January 3rd, 2012.
Fecal Anti-gliadin IgA 62 Units (Normal Range is less than 10 Units)
Fecal Anti-casein (cow’s milk) IgA 24 Units (Normal Range is less than 10 Units)
HLA-DQB1 Molecular analysis, Allele 1 0201
HLA-DQB1 Molecular analysis, Allele 2 0501
Serologic equivalent: HLA-DQ 2,1 (Subtype 2,5)
And here are my most recent results, received today, September 17, 2015:
Fecal Anti-gliadin IgA 11 Units (Normal Range is less than 10 Units)
Fecal Anti-casein (cow’s milk) IgA 6 Units (Normal Range is less than 10 Units)
Fecal anti-ovalbumin (chicken egg) IgA antibody 4 Units (Normal Range 10 Units)
Fecal Anti-Soy IgA 20 Units (Normal Range 10 Units)
Note that my anti-gliadin and anti-casein antibodies have declined (as expected) in response to my diet corrections, during the past 3 3/4 years. I'm not concerned about the 11 units shown for gluten, because anti-gliadin antibodies decline very slowly, and it takes years for them to decay back down to a normal level, so I believe that my level is probably on track. The antibodies against soy is a new issue that has developed in the past 10 years. I suppose the level would be higher, except that I generally try to avoid soy (even though I thought that I was not sensitive to it). So most of the exposure has been through trace amounts in vitamin supplements.
But during the past month or so, I have occasionally eaten pork chops fried in Crisco (someone else's cooking), and looking back, that is about when the backaches and stiff neck upon awaking became noticeable. So obviously that will have to stop, and that also answers my question about whether a soy sensitivity can cause joint aches and pains, similar to gluten and casein.
I assumed that I would be throwing out a lot of supplements, but when I checked my current stock, lo and behold, the only 1 that contains soy is the Fish Oil I have been using. Why would fish oil contain soy? It's in there in the form of natural tocopheryls.
So the transition to completely soy-free should be as easy as falling off a log for me. But I find it very disturbing that I would develop a soy sensitivity, somewhere during the 10-year period since the previous test.
Unfortunately this is very strong evidence that, just as others have suspected, we can indeed develop new food sensitivities as time passes. Prior to these test results, I had always assumed (hoped) that couldn't/wouldn't happen, because I had never seen test results to confirm that it had actually happened. This test result changed all that.
Tex
And it's a bummer, to boot.
I just received my (latest) EnteroLab results.
Unlike the experience of others, compared with my previous results from 3 and 3/4 years ago, and those from over 10 years ago, my antibody levels to gluten and casein have declined significantly. But 10 years ago I was not sensitive to soy (verified by an EneroLab test result) — now I have joined the ranks of those who are soy-sensitive.
So it's good news on the integrity of my diet to avoid gluten and casein, but bad news on the soy. So here are all 3 sets of results:
Note: These first tests were done almost 3 years after adopting a gluten-free, dairy-free diet. I did not order tests for gluten or casein, because at the time I was sure that I was sensitive to them, and I was avoiding them. These test results were received on May 22nd, 2005.
Microscopic Fecal Fat Score 294 Units (Normal Range 300 Units)
Fecal anti-ovalbumin (chicken egg) IgA antibody 5 Units (Normal Range 10 Units)
Fecal Anti-Saccharomyces cerevisiae (dietary yeast) IgA 6 Units (Normal Range 10 Units)
Fecal Anti-Soy IgA 8 Units (Normal Range 10 Units)
Note: These tests were done over 9 years after adopting a gluten-free diet, after dairy had been reintroduced into the diet, because I seemed to tolerate casein. Obviously, trace amounts of gluten had to be contaminating the diet. These test results were received on January 3rd, 2012.
Fecal Anti-gliadin IgA 62 Units (Normal Range is less than 10 Units)
Fecal Anti-casein (cow’s milk) IgA 24 Units (Normal Range is less than 10 Units)
HLA-DQB1 Molecular analysis, Allele 1 0201
HLA-DQB1 Molecular analysis, Allele 2 0501
Serologic equivalent: HLA-DQ 2,1 (Subtype 2,5)
And here are my most recent results, received today, September 17, 2015:
Fecal Anti-gliadin IgA 11 Units (Normal Range is less than 10 Units)
Fecal Anti-casein (cow’s milk) IgA 6 Units (Normal Range is less than 10 Units)
Fecal anti-ovalbumin (chicken egg) IgA antibody 4 Units (Normal Range 10 Units)
Fecal Anti-Soy IgA 20 Units (Normal Range 10 Units)
Note that my anti-gliadin and anti-casein antibodies have declined (as expected) in response to my diet corrections, during the past 3 3/4 years. I'm not concerned about the 11 units shown for gluten, because anti-gliadin antibodies decline very slowly, and it takes years for them to decay back down to a normal level, so I believe that my level is probably on track. The antibodies against soy is a new issue that has developed in the past 10 years. I suppose the level would be higher, except that I generally try to avoid soy (even though I thought that I was not sensitive to it). So most of the exposure has been through trace amounts in vitamin supplements.
But during the past month or so, I have occasionally eaten pork chops fried in Crisco (someone else's cooking), and looking back, that is about when the backaches and stiff neck upon awaking became noticeable. So obviously that will have to stop, and that also answers my question about whether a soy sensitivity can cause joint aches and pains, similar to gluten and casein.
I assumed that I would be throwing out a lot of supplements, but when I checked my current stock, lo and behold, the only 1 that contains soy is the Fish Oil I have been using. Why would fish oil contain soy? It's in there in the form of natural tocopheryls.
So the transition to completely soy-free should be as easy as falling off a log for me. But I find it very disturbing that I would develop a soy sensitivity, somewhere during the 10-year period since the previous test.
Unfortunately this is very strong evidence that, just as others have suspected, we can indeed develop new food sensitivities as time passes. Prior to these test results, I had always assumed (hoped) that couldn't/wouldn't happen, because I had never seen test results to confirm that it had actually happened. This test result changed all that.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Wow, Tex, that's really interesting. It's a never ending learning process for us, I guess.
Soy is in EVERYTHING. It takes me hours in the grocery store as I read every label of everything I pick up! It was interesting when I was visiting with my doctor yesterday (and I never told him that I didn't plan to take 1800 mg. of calcium a day). I just asked him what kind of calcium he recommended and then told him that I would have to find something that was gluten, dairy, soy, and egg free. He looked at me kind of funny and said, "I can't think of any reason at all they would put dairy and soy in something except for leavening agents or something like that. That was rather eye opening to me as I just responded with, "Soy is in absolutely EVERYTHING, and if it doesn't have soy, it usually has one of the other things I can't have." Our doctors not only don't really know how to treat our disease, but they don't know much about what's in our foods and supplements. Or maybe like us, prior to MC, just didn't really have a reason to care what was in what we ate and took in the form of supplements.
This has been so eye opening for me. I've learned so much about nutrition and in many ways, wish I'd known some of this stuff a few years back.
Like you, I was thinking that once we were in remission and pretty much healed that things would even out and stay status quo, but I guess not. Good luck!
Soy is in EVERYTHING. It takes me hours in the grocery store as I read every label of everything I pick up! It was interesting when I was visiting with my doctor yesterday (and I never told him that I didn't plan to take 1800 mg. of calcium a day). I just asked him what kind of calcium he recommended and then told him that I would have to find something that was gluten, dairy, soy, and egg free. He looked at me kind of funny and said, "I can't think of any reason at all they would put dairy and soy in something except for leavening agents or something like that. That was rather eye opening to me as I just responded with, "Soy is in absolutely EVERYTHING, and if it doesn't have soy, it usually has one of the other things I can't have." Our doctors not only don't really know how to treat our disease, but they don't know much about what's in our foods and supplements. Or maybe like us, prior to MC, just didn't really have a reason to care what was in what we ate and took in the form of supplements.
This has been so eye opening for me. I've learned so much about nutrition and in many ways, wish I'd known some of this stuff a few years back.
Like you, I was thinking that once we were in remission and pretty much healed that things would even out and stay status quo, but I guess not. Good luck!
Jari
Diagnosed with Collagenous Colitis, June 29th, 2015
Gluten free, Dairy free, and Soy free since July 3rd, 2015
Diagnosed with Collagenous Colitis, June 29th, 2015
Gluten free, Dairy free, and Soy free since July 3rd, 2015
That's so true, but it's really not the fault of physicians so much as the misguided souls who decide on med school curricula. Courses on diet and nutrition and the effects of diet on various body systems definitely need to be added to the training offered in med schools. That would change the course of most treatment programs in the future. And that's exactly why it will probably never happen — because Big Pharma will do everything they can to make sure that it never happens.Jari wrote:Our doctors not only don't really know how to treat our disease, but they don't know much about what's in our foods and supplements.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Good point! There's a silver lining to every cloud.Louis wrote:Or you are like me and already react to every food there is. So atleast im not at risk of developing new food sensitives
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
You are so right. I was so aware of that yesterday and also my last trip to the doctor when discussing blood pressure medicine. My doctor didn't really want to talk about diet or anything like that, and yesterday, I could tell he was not impressed when I told him that I used my essential oils on my spider bite. Their goal is to get medication into as many hands as possible. Those drug companies are in their back pockets. If it's not a prescription medicine, they don't want to discuss it! How sad!And that's exactly why it will probably never happen — because Big Pharma will do everything they can to make sure that it never happens.
Jari
Diagnosed with Collagenous Colitis, June 29th, 2015
Gluten free, Dairy free, and Soy free since July 3rd, 2015
Diagnosed with Collagenous Colitis, June 29th, 2015
Gluten free, Dairy free, and Soy free since July 3rd, 2015
Well gee Tex....
This is a bummer....I guess I will now stop hoping that one day I might be able to have an egg again or a piece of cheese, I've written off Gluten and Soy (Soy is in flippin EVERYTHING grrr). But what do we eat?? That's the million dollar question, it appears we have the ability to become sensitive to just about every thing we eat at some point because of how much of it we have to eat to survive.
But on a bright note, knowledge is power and these types of results lets us know something instead of being in the dark. If I come across something other than Gluten, and it affects me that day or for the next few days I think I will be able to live with that. I don't plan to live in a bubble, and I really feel for those that seem react to everything, I sure hope we can figure out why that has to happen and get down to what causes our bodies to go into fight or flight mode to many things.
I sure play it by ear to many of the things I decide to eat (all Erica safe of course for the time being), I suppose rotation of foods may be a key factor in keeping the reaction at bay regardless of our bodies wanting to build up antigens to the things we eat.
The thing I hope doesn't happen is we build up antigens to the point that many foods have to be OFF the list due to reactions of any sort, that will worry me if we get to that point. Yes indeed I sure hope we have a scientist in the group that can pair up things and ideas in a lab and start on this particular conundrum, we need research on this and soon.
I'm also on board about the Big Pharma....am so tired of Drs. thinking the "Pill, Cream, Potion" will be that magic cure
This is a bummer....I guess I will now stop hoping that one day I might be able to have an egg again or a piece of cheese, I've written off Gluten and Soy (Soy is in flippin EVERYTHING grrr). But what do we eat?? That's the million dollar question, it appears we have the ability to become sensitive to just about every thing we eat at some point because of how much of it we have to eat to survive.
But on a bright note, knowledge is power and these types of results lets us know something instead of being in the dark. If I come across something other than Gluten, and it affects me that day or for the next few days I think I will be able to live with that. I don't plan to live in a bubble, and I really feel for those that seem react to everything, I sure hope we can figure out why that has to happen and get down to what causes our bodies to go into fight or flight mode to many things.
I sure play it by ear to many of the things I decide to eat (all Erica safe of course for the time being), I suppose rotation of foods may be a key factor in keeping the reaction at bay regardless of our bodies wanting to build up antigens to the things we eat.
The thing I hope doesn't happen is we build up antigens to the point that many foods have to be OFF the list due to reactions of any sort, that will worry me if we get to that point. Yes indeed I sure hope we have a scientist in the group that can pair up things and ideas in a lab and start on this particular conundrum, we need research on this and soon.
I'm also on board about the Big Pharma....am so tired of Drs. thinking the "Pill, Cream, Potion" will be that magic cure
To Succeed you have to Believe in something with such a passion that it becomes a Reality - Anita Roddick
Dx LC April 2012 had symptoms since Aug 2007
Dx LC April 2012 had symptoms since Aug 2007
- Gabes-Apg
- Emperor Penguin
- Posts: 8332
- Joined: Mon Dec 21, 2009 3:12 pm
- Location: Hunter Valley NSW Australia
wow!!
that small amount of soy intake has caused this result - freaky hey!!
I have said for years that i should set up a website 'soy is evil'
Jari
due to the gaps in the health system, in Australia, the nutritionist/dietitian approach for AI issues / Chronic health issues is growing
People who are tired of constant symptoms are approaching wholistic/functional doctors and practitioners.
5 years ago there was one compounding pharmacy in the larger area, now there is 6. People are realising the value of individual approach, getting the right supps/creams that suit their issues.
that small amount of soy intake has caused this result - freaky hey!!
I have said for years that i should set up a website 'soy is evil'
Jari
due to the gaps in the health system, in Australia, the nutritionist/dietitian approach for AI issues / Chronic health issues is growing
People who are tired of constant symptoms are approaching wholistic/functional doctors and practitioners.
5 years ago there was one compounding pharmacy in the larger area, now there is 6. People are realising the value of individual approach, getting the right supps/creams that suit their issues.
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
- drdebc
- Adélie Penguin
- Posts: 150
- Joined: Thu Nov 08, 2012 9:15 pm
- Location: On a lake in the N GA mountains
Soy Soy Soy Don't Get Me Started!
Dear Wayne,
I will go on my soy rant.
I am SO sorry for you re: the soy issue. As other folks have posted, soy is in EVERYTHING manufactured in this nation. However, that is not the case world-wide. It is a conspiracy! There is absolutely zero consideration for the fact that some people are allergic to soy.
I too had to discard the fish oil I used to take.
I too spend hours in the grocery store attempting to read tiny labels. Hopefully the soy free hints in the first newsletter will assist you. I started my soy free liberation with an Internet search and by typing in the things I couldn't live without like ground horseradish without soy beans. That way, I located soy free brands and fortunately, my local grocery store carried Boar's Head.
At least, thanks to the non-gluten fad, it is possible to purchase non-gluten bread, pizza, pie crust mixes (Breads from Anna is my favorite) and it can be mixed with egg substitutes, almond milk VS dairy. However, forget buying non-gluten bread-because it has eggs and dairy.
In contrast, they sneak soy into everything we ingest!!!
Makes me want to start a movement against soy!
Deb
I will go on my soy rant.
I am SO sorry for you re: the soy issue. As other folks have posted, soy is in EVERYTHING manufactured in this nation. However, that is not the case world-wide. It is a conspiracy! There is absolutely zero consideration for the fact that some people are allergic to soy.
I too had to discard the fish oil I used to take.
I too spend hours in the grocery store attempting to read tiny labels. Hopefully the soy free hints in the first newsletter will assist you. I started my soy free liberation with an Internet search and by typing in the things I couldn't live without like ground horseradish without soy beans. That way, I located soy free brands and fortunately, my local grocery store carried Boar's Head.
At least, thanks to the non-gluten fad, it is possible to purchase non-gluten bread, pizza, pie crust mixes (Breads from Anna is my favorite) and it can be mixed with egg substitutes, almond milk VS dairy. However, forget buying non-gluten bread-because it has eggs and dairy.
In contrast, they sneak soy into everything we ingest!!!
Makes me want to start a movement against soy!
Deb
Retired marketing Higher Ed PhD striving to heal myself with a minimal amount of prescription meds.
Diagnosed w/collagenous MC, Barrett's Esophagus, Celiac, Hypothyroidism.
Diagnosed w/collagenous MC, Barrett's Esophagus, Celiac, Hypothyroidism.
What Might We All Learn From This?
Gee, TEX, that Soy business must've been a really surprising aspect of your Lab Results. Do you take any daily Multi-Vits as Supplements, other than your Fish Oils, that might also have Soy under some weirdly disguised name?
Kinda makes one feel a bit leery of Everything we ingest, if I'm honest.
So, how do you proceed forward? I know you said you have generally avoided soy in foods, but do you need to read labels even on your daily staples, now? Meats and such? Milk alternatives? Do you already know where the sneaky soy sources are to be found?
Sheesh...wish I could help somehow. You are always just such a great help to us. Let us know if we can do any research for you that might be of assistance.
TREESE
Kinda makes one feel a bit leery of Everything we ingest, if I'm honest.
So, how do you proceed forward? I know you said you have generally avoided soy in foods, but do you need to read labels even on your daily staples, now? Meats and such? Milk alternatives? Do you already know where the sneaky soy sources are to be found?
Sheesh...wish I could help somehow. You are always just such a great help to us. Let us know if we can do any research for you that might be of assistance.
TREESE
Diagnosed with Collagenous Colitis, June 2015.
Diagnosed Dec 2020 with Celiac Disease during 1st Flare up.
Spine Surgery 2010. Chronic Pain. FAITH!!
Diagnosed Dec 2020 with Celiac Disease during 1st Flare up.
Spine Surgery 2010. Chronic Pain. FAITH!!
Deb and Treese,
Thanks. I'm lucky that the only processed foods I ever eat are Almond milk, corn tortillas, and Corn Chex. So the only question there is the mixed tocopherols in the Corn Chex. I'll need to check that out, unless someone here has already done that and can provide some insight.
Linda,
Thanks for the tip. I could certainly do without the fish oil, because I also take flaxseed oil, but since you have located a source, I'll try to round some up.
Gracias,
Tex
Thanks. I'm lucky that the only processed foods I ever eat are Almond milk, corn tortillas, and Corn Chex. So the only question there is the mixed tocopherols in the Corn Chex. I'll need to check that out, unless someone here has already done that and can provide some insight.
Linda,
Thanks for the tip. I could certainly do without the fish oil, because I also take flaxseed oil, but since you have located a source, I'll try to round some up.
Gracias,
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
- drdebc
- Adélie Penguin
- Posts: 150
- Joined: Thu Nov 08, 2012 9:15 pm
- Location: On a lake in the N GA mountains
Tex,
Glad you discovered that the fish oil had soy.
Do you have any condiments in your refrigerator? If so, please check them. I ended up having to throw out nearly all of mine.
Glad you discovered that the fish oil had soy.
Do you have any condiments in your refrigerator? If so, please check them. I ended up having to throw out nearly all of mine.
Retired marketing Higher Ed PhD striving to heal myself with a minimal amount of prescription meds.
Diagnosed w/collagenous MC, Barrett's Esophagus, Celiac, Hypothyroidism.
Diagnosed w/collagenous MC, Barrett's Esophagus, Celiac, Hypothyroidism.
Tex,
So sorry to hear that! I never would have thought that trace amounts of soy could result in a reaction until it happened to me about a month ago. I wanted to switch to a liquid vitamin D and was told that the supplement did not contain soy (the assistant of my naturopathic physician had called the company to ask about soy and they said that there was no soy in it). The first day I took 6 drops I had a rumble and weird feeling in my belly. But hey, that happens often, so I did not think much about it. The second day I took 6 drops, I had WD. I then called the company and asked about each specific ingredient, and in particular the tocopherol. It turns out that the tocopherol was based on "highly refined soybean oil that most people don't react to". Well, I guess I am not "most people". 6 tiny drops on two days is all it took for WD. I wish they would have been honest with the assistant when she called them. On the other side, I now know that trace amounts are all it takes.
I have also noticed that if I go out to a restaurant and bring my own (special order) pure olive oil with me for the chef to use, I don't get sick. If they use the "extra virgin olive oil" that they have at the restaurant, I do get sick. Most supermarket olive oil has soybean oil or other cheap vegetable oils mixed in (not declared anywhere) and the FDA even stopped testing olive oil because they found fraud all the time. Again, no regard to people who are allergic to soy. It makes it so, so difficult to avoid soy. I totally agree with Gabes and Deb, soy is evil! And it is in everything the average consumer consumes.
Linda,
My naturopathic physician wanted me to take fish oil but the one she recommended had soy in it when I called the company, so I declined taking it. I checked out the ProThera. I am not sure how many different kinds they offer or which one you are taking, but the ones I found also contain soy, the Omega-3 Mini has "natural mixed tocopherol vitamin E from soy":
https://www.protherainc.com/prod/proddetail.asp?id=OM3
and the ProThera Maine Fish Oil (300/200) has "vitamin E (as d-alpha tocopherol) from soy":
https://www.protherainc.com/prod/proddetail.asp?id=MAR
Is there a different one without soy?
Love,
Patricia
So sorry to hear that! I never would have thought that trace amounts of soy could result in a reaction until it happened to me about a month ago. I wanted to switch to a liquid vitamin D and was told that the supplement did not contain soy (the assistant of my naturopathic physician had called the company to ask about soy and they said that there was no soy in it). The first day I took 6 drops I had a rumble and weird feeling in my belly. But hey, that happens often, so I did not think much about it. The second day I took 6 drops, I had WD. I then called the company and asked about each specific ingredient, and in particular the tocopherol. It turns out that the tocopherol was based on "highly refined soybean oil that most people don't react to". Well, I guess I am not "most people". 6 tiny drops on two days is all it took for WD. I wish they would have been honest with the assistant when she called them. On the other side, I now know that trace amounts are all it takes.
I have also noticed that if I go out to a restaurant and bring my own (special order) pure olive oil with me for the chef to use, I don't get sick. If they use the "extra virgin olive oil" that they have at the restaurant, I do get sick. Most supermarket olive oil has soybean oil or other cheap vegetable oils mixed in (not declared anywhere) and the FDA even stopped testing olive oil because they found fraud all the time. Again, no regard to people who are allergic to soy. It makes it so, so difficult to avoid soy. I totally agree with Gabes and Deb, soy is evil! And it is in everything the average consumer consumes.
Linda,
My naturopathic physician wanted me to take fish oil but the one she recommended had soy in it when I called the company, so I declined taking it. I checked out the ProThera. I am not sure how many different kinds they offer or which one you are taking, but the ones I found also contain soy, the Omega-3 Mini has "natural mixed tocopherol vitamin E from soy":
https://www.protherainc.com/prod/proddetail.asp?id=OM3
and the ProThera Maine Fish Oil (300/200) has "vitamin E (as d-alpha tocopherol) from soy":
https://www.protherainc.com/prod/proddetail.asp?id=MAR
Is there a different one without soy?
Love,
Patricia