IF I KNEW THEN WHAT I KNOW NOW
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
- Gabes-Apg
- Emperor Penguin
- Posts: 8332
- Joined: Mon Dec 21, 2009 3:12 pm
- Location: Hunter Valley NSW Australia
T agree with Tex, higher supplementation with Magnesium will help make the Vit D3 more viable/useful in your body.
the RDA/RDI for Magnesium is about 400mg -600mg of ELEMENTAL magnesium (important to check the elemental level of oral magnesium supplements)
to correct deficiency you will need 600mg - 800mg per day for at least 8 weeks.
When starting higher doses of magnesium, as it helps clear toxins, you may have a slight increase in weeing and pooping,
it can get worse before it gets better, dont give up.
the good part, as you fix the the magnesium deficiency you will start to have more energy.
take it slow increasing the dosage when starting oral supp. Start on small 1/4 dose for a few days, and if all is ok, increase to 1/2 dose, wait a few days/week, and if all is good, increase gradually again...
the RDA/RDI for Magnesium is about 400mg -600mg of ELEMENTAL magnesium (important to check the elemental level of oral magnesium supplements)
to correct deficiency you will need 600mg - 800mg per day for at least 8 weeks.
When starting higher doses of magnesium, as it helps clear toxins, you may have a slight increase in weeing and pooping,
it can get worse before it gets better, dont give up.
the good part, as you fix the the magnesium deficiency you will start to have more energy.
take it slow increasing the dosage when starting oral supp. Start on small 1/4 dose for a few days, and if all is ok, increase to 1/2 dose, wait a few days/week, and if all is good, increase gradually again...
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
Tex
I had been taking 300 mg of Drs Best magnesium for about 1 and a half weeks with no problem.
A week ago last Wed. I went back to my dermatologist he didn't get it all so he used liquid nitrogen again.
Thursday I was in A flare WD.So I started on pepto yesterday I ate chicken and noodles with San j Tamari which had been no problem with before.Before I was finished eating I was running to the john WD BIG TIME.yesterday I started the pepto treatment 8 per day and I ate white rice with coconut oil today still WD.Do you recall of anyone reacting to liquid nitrogen and or was I not healed enough for oral mag.
I am back to my starting point with CC THIS MONSTER CAME BACK TO LIFE.
I don't want to call my GI I don't want to go back on Entcort have been wanting to do the Entrolab test this fall.
Terry
I had been taking 300 mg of Drs Best magnesium for about 1 and a half weeks with no problem.
A week ago last Wed. I went back to my dermatologist he didn't get it all so he used liquid nitrogen again.
Thursday I was in A flare WD.So I started on pepto yesterday I ate chicken and noodles with San j Tamari which had been no problem with before.Before I was finished eating I was running to the john WD BIG TIME.yesterday I started the pepto treatment 8 per day and I ate white rice with coconut oil today still WD.Do you recall of anyone reacting to liquid nitrogen and or was I not healed enough for oral mag.
I am back to my starting point with CC THIS MONSTER CAME BACK TO LIFE.
I don't want to call my GI I don't want to go back on Entcort have been wanting to do the Entrolab test this fall.
Terry
No one here has ever mentioned reacting after a nitrogen skin treatment. Maybe the stress caused a flare, and you're sensitive to soy, which could be perpetuating the reaction.
Tex
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Terry,
To prevent any risk of problems, I usually break up my magnesium supplementation during the day, just to be on the safe side. I usually take 300 mg of magnesium after breakfast (200 mg of magnesium citrate plus 100 mg of magnesium glucinate), and I take an additional 100 mg of magnesium glycinate after my noon meal, and if I want more, I take another 100 mg of magnesium glycinate after supper.
For many of us, pollen allergies trigger MC symptom in the spring or fall, or both, so that's another possibility. That would be a mast cell problem. When mast cells are overactive, it helps to avoid high-histamine foods, and foods that promote the release of histamines (there's a link to a list of such foods in one of the articles at the links below.
Here is some basic information about mast cells, and how mast cell issues are associated with microscopic colitis:
What are mast cells?
How are mast cells associated with microscopic colitis?
How do I know if mast cells are causing problems for me?
How are mast cell issues treated?
Tex
To prevent any risk of problems, I usually break up my magnesium supplementation during the day, just to be on the safe side. I usually take 300 mg of magnesium after breakfast (200 mg of magnesium citrate plus 100 mg of magnesium glucinate), and I take an additional 100 mg of magnesium glycinate after my noon meal, and if I want more, I take another 100 mg of magnesium glycinate after supper.
For many of us, pollen allergies trigger MC symptom in the spring or fall, or both, so that's another possibility. That would be a mast cell problem. When mast cells are overactive, it helps to avoid high-histamine foods, and foods that promote the release of histamines (there's a link to a list of such foods in one of the articles at the links below.
Here is some basic information about mast cells, and how mast cell issues are associated with microscopic colitis:
What are mast cells?
How are mast cells associated with microscopic colitis?
How do I know if mast cells are causing problems for me?
How are mast cell issues treated?
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Tex
Last winter I was diagnosed with allergic rinunitis have been on 180 mg Allegra since then.
I discovered this spring tomato juice increased my histamine release so no tomatoes.
We live in the country on 3 acres 2 of the fields surrounding our property was never planted and became 2 fields of tall weeds I noticed this weekend the weeds are dieing must be the problem.
Every morning I get up my head feels like crap yes too much histamine release and yes you are correct must be mast cells.
I have A follow up in Oct. with my PCP she said maybe more blood work do you think I should get A app sooner and any specific test I should ask for?
Thanks for all your help
Terry
Last winter I was diagnosed with allergic rinunitis have been on 180 mg Allegra since then.
I discovered this spring tomato juice increased my histamine release so no tomatoes.
We live in the country on 3 acres 2 of the fields surrounding our property was never planted and became 2 fields of tall weeds I noticed this weekend the weeds are dieing must be the problem.
Every morning I get up my head feels like crap yes too much histamine release and yes you are correct must be mast cells.
I have A follow up in Oct. with my PCP she said maybe more blood work do you think I should get A app sooner and any specific test I should ask for?
Thanks for all your help
Terry
Terry,
The only test I'm aware of for monitoring histamine levels is a test for tryptase. There's no way to measure histamine directly, but when mast cells release histamine, they also release tryptase enzyme, so measuring tryptase levels provides an indirect way to check the relative histamine level.
But this test was developed for patients who have mastocytosis. Normally, tryptase levels are not elevated enough to be significant unless there has been a significant mast cell degranulation event. When that happens, the tryptase level typically peaks in approximately 1–2 hours, and then begins to decline. After about a day (sometimes sooner, sometimes later), the tryptase level will be back down to normal. So the ideal window of opportunity for checking tryptase is from about 2 hours after the event until maybe a half day later (or less).
IOW, it's almost impossible to schedule a tryptase test ahead of time that would provide any useful information. It has to be done in response to a mast cell reaction, and within the time frame mentioned.
Some members here find that taking Benedryl (in addition to the Allegra or some other antihistamine in the morning) at bedtime helps to prevent those morning symptoms. IOW, for significant mast cell issues, normal labeled antihistamine doses may not be sufficient, and/or sometimes a combination of antihistamines is much more effective.
Allergists prescribe up to 4 times the labeled dose of antihistamines for treating chronic urticaria. Lower doses are ineffective in such cases. So this establishes a precedent for using above-label doses. Of course it's always a good idea to never use any more of any medication than is actually needed to do the job. For example, 10 times the labeled dose for antihistamines can cause toxic effects in many/most cases, so we certainly wouldn't want to go that far overboard.
Frankly, I would be very surprised if your doctor would be able to provide much help with mast cell problems. This is a relatively new area that hasn't had nearly enough research to provide practical guidelines for medical practitioners in general. Currently the only experts on mast cell issues, especially those associated with IBDs, are located at Brigham and Women's Hospital in Boston, or they were trained there under the direction of Dr. Mariana Castells. However, while those physicians are mastocytosis experts, they are not necessarily well versed in less serious versions of mast cell issues, such as those associated with IBDs. IOW, members here who have consulted with some of them have had mixed results.
You're most welcome. I hope that some of this is helpful.
Tex
The only test I'm aware of for monitoring histamine levels is a test for tryptase. There's no way to measure histamine directly, but when mast cells release histamine, they also release tryptase enzyme, so measuring tryptase levels provides an indirect way to check the relative histamine level.
But this test was developed for patients who have mastocytosis. Normally, tryptase levels are not elevated enough to be significant unless there has been a significant mast cell degranulation event. When that happens, the tryptase level typically peaks in approximately 1–2 hours, and then begins to decline. After about a day (sometimes sooner, sometimes later), the tryptase level will be back down to normal. So the ideal window of opportunity for checking tryptase is from about 2 hours after the event until maybe a half day later (or less).
IOW, it's almost impossible to schedule a tryptase test ahead of time that would provide any useful information. It has to be done in response to a mast cell reaction, and within the time frame mentioned.
Some members here find that taking Benedryl (in addition to the Allegra or some other antihistamine in the morning) at bedtime helps to prevent those morning symptoms. IOW, for significant mast cell issues, normal labeled antihistamine doses may not be sufficient, and/or sometimes a combination of antihistamines is much more effective.
Allergists prescribe up to 4 times the labeled dose of antihistamines for treating chronic urticaria. Lower doses are ineffective in such cases. So this establishes a precedent for using above-label doses. Of course it's always a good idea to never use any more of any medication than is actually needed to do the job. For example, 10 times the labeled dose for antihistamines can cause toxic effects in many/most cases, so we certainly wouldn't want to go that far overboard.
Frankly, I would be very surprised if your doctor would be able to provide much help with mast cell problems. This is a relatively new area that hasn't had nearly enough research to provide practical guidelines for medical practitioners in general. Currently the only experts on mast cell issues, especially those associated with IBDs, are located at Brigham and Women's Hospital in Boston, or they were trained there under the direction of Dr. Mariana Castells. However, while those physicians are mastocytosis experts, they are not necessarily well versed in less serious versions of mast cell issues, such as those associated with IBDs. IOW, members here who have consulted with some of them have had mixed results.
You're most welcome. I hope that some of this is helpful.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Tex
Surprised you mentioned mastocytosis I looked it up it yesterday its been on my mind do I or don't I have enough of the symtoms I don't know
Was doing some checking on antihistamines so many things I cant take with Lisinopril for hbp came across sodium cromoglycate to prevent the release of histamines from mast cells it is sometimes used to treat allergic rhinitis.
http://drugs.webmd.boots.com/drugs/drug ... icate.aspx
Terry
Surprised you mentioned mastocytosis I looked it up it yesterday its been on my mind do I or don't I have enough of the symtoms I don't know
Was doing some checking on antihistamines so many things I cant take with Lisinopril for hbp came across sodium cromoglycate to prevent the release of histamines from mast cells it is sometimes used to treat allergic rhinitis.
http://drugs.webmd.boots.com/drugs/drug ... icate.aspx
Terry
If you think that you might have mastocytosis, one of the doctors on this list might be able to make a diagnosis, but unfortunately none are close to you.
http://www.perskyfarms.com/phpBB2/viewtopic.php?t=14421
We have several members who have mastocytosis, but they no longer post regularly.
Tex
http://www.perskyfarms.com/phpBB2/viewtopic.php?t=14421
We have several members who have mastocytosis, but they no longer post regularly.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Tex
Well I made it through the pollen season it really threw my whole system out of whack now I know what other members go through during pollen season (it sucks).
I had my followup with my NP Wed.for my allergies and anxiety.
She told me that they (the big hospital group in the city 50 miles away that now controls my area ) Wants all the PCP that have patients on A controlled substance to switch them to A different drug unless there is A medical reason why they can not.(My Clonazepam)
So she asked about Wellbutrin (I had taken it many years ago and got off it don't rember the reason)So I told her there was one other that would be safe that if she could goggle this group she could look up the name she did and told me that Elavil was A old drug and no one prescribed it any more (She does not like old school I found out later from A coworker)
So here we go started Wellbutrin today and lower dose of Clonazepam to start weaning off (To much stress lately time to calm my self down
And let my gut heal ) Just thought I would post today.
Terry
Well I made it through the pollen season it really threw my whole system out of whack now I know what other members go through during pollen season (it sucks).
I had my followup with my NP Wed.for my allergies and anxiety.
She told me that they (the big hospital group in the city 50 miles away that now controls my area ) Wants all the PCP that have patients on A controlled substance to switch them to A different drug unless there is A medical reason why they can not.(My Clonazepam)
So she asked about Wellbutrin (I had taken it many years ago and got off it don't rember the reason)So I told her there was one other that would be safe that if she could goggle this group she could look up the name she did and told me that Elavil was A old drug and no one prescribed it any more (She does not like old school I found out later from A coworker)
So here we go started Wellbutrin today and lower dose of Clonazepam to start weaning off (To much stress lately time to calm my self down
And let my gut heal ) Just thought I would post today.
Terry
Tex
Thanks for your concern
Its the first time I weaned off one drug and started A new drug at the same time so far I just felt drowsy at first. I just started getting active
1 hour ago.
I wish we had more choices for anxiety drugs .
I lured my NP to this group she don't seem to mind that I look things up for my medical, hoping she gets back this site to check it out.
Terry
Thanks for your concern
Its the first time I weaned off one drug and started A new drug at the same time so far I just felt drowsy at first. I just started getting active
1 hour ago.
I wish we had more choices for anxiety drugs .
I lured my NP to this group she don't seem to mind that I look things up for my medical, hoping she gets back this site to check it out.
Terry
Tex
That went south.
Friday started Bupropion 150mg 1x Clonazepam .25 2x felt tired for A few hrs.
Saturday same dose 1hr or so later WD all day big flare.
Sunday no Bupropion back to Clonazepam .50 sick after first dose went back to bed for 2 hrs felt terrible and WD did not even get dressed until
4:30pm .
I sent A message to my PCP letting her know what happened and that I would see how I felt on Monday.
Monday much better sent message to PCP she replied that's great have A nice day.
I have no idea why I reacted to Bupropion but we all different.
Terry
That went south.
Friday started Bupropion 150mg 1x Clonazepam .25 2x felt tired for A few hrs.
Saturday same dose 1hr or so later WD all day big flare.
Sunday no Bupropion back to Clonazepam .50 sick after first dose went back to bed for 2 hrs felt terrible and WD did not even get dressed until
4:30pm .
I sent A message to my PCP letting her know what happened and that I would see how I felt on Monday.
Monday much better sent message to PCP she replied that's great have A nice day.
I have no idea why I reacted to Bupropion but we all different.
Terry
Hey Terry,
Just my two cents worth....I'm coming off of klonopin 0.5 mg using a dry micro taper method. In other words I'm taking 6 months to come off this pill. I got a gram scale on amazon and started shaving 0.001g off the weight off the pill daily with a nail file.
This might sound extreme but for me it works. Our systems are so delicate and it takes the body awhile to adjust. If the Dr. Is forcing you off of a benzo too quickly it can wreak havoc on all fronts. Feel free to ask anything if need be.
Just my two cents worth....I'm coming off of klonopin 0.5 mg using a dry micro taper method. In other words I'm taking 6 months to come off this pill. I got a gram scale on amazon and started shaving 0.001g off the weight off the pill daily with a nail file.
This might sound extreme but for me it works. Our systems are so delicate and it takes the body awhile to adjust. If the Dr. Is forcing you off of a benzo too quickly it can wreak havoc on all fronts. Feel free to ask anything if need be.
Vanessa