MC and 3 children

brandy · Post by **brandy** » Thu Sep 10, 2015 2:18 pm

Hi Martha,

I agree with Tex the deli meats can be questionable. I think there can be contamination at the slicer. Also I'm ok with a little GF rice checks but not alot.

jlbattin · Post by **jlbattin** » Thu Sep 10, 2015 2:34 pm

I agree about the cross contamination. I saw it with my own eyes. I went to King Soopers to get some gluten free deli turkey and watched them slice it on the same machine they had sliced everything else. I did ok with it but that was the last time I'll ever do that unless I know they have a dedicated slicer for gluten free meant.

crervin · Post by **crervin** » Thu Sep 10, 2015 3:35 pm

Sadly, I have been fine with that same deli meat off and on for the last 2 mths. I did eat 2 French fries a couple of weeks ago (not even thinking) out of my daughter's fast food. Oh my, talk about cross contamination. Learning experience, it made me realize how gluten makes me feel. This is strangely different. I'm going to try the questran I just picked up and if no help, I'll sadly avoid all meat for a week. And definitely avoid deli meat! Thank you guys!!!

crervin · Post by **crervin** » Fri Sep 11, 2015 7:04 am

I took half of the questran last night and today my 2nd BM was 6 on bristol scale. I haven't seen that since my gf diet. Now if I can get rid of gas, bloating, and nausea. (I feel like I'm back to square one, before my gf diet.) I remember reading about immune system quirks and maybe BAM is another issue my body is trying to heal. I'm so hoping this is BAM and is my last obstacle for gut healing.....

Thanks for listening to my woefulness!

crervin · Post by **crervin** » Wed Sep 23, 2015 2:11 pm

Sorry I am posting in so many places. Came back to this topic for better retrieval later on.

Thank you Tex about pointing out my D3! I took it an hour ago and notice my gas right now, since you pointed it out!! I found a vegan d3, but it contains rice flour. I haven't determined if rice is a problem yet (day 2 of no rice, sure do miss my vanilla chez), but now believe it has to be that d3. Oh boy, getting a chemical engineering degree and raising 3 kids is far easier than trying to figure all of this out

!

Does anyone know a safe d3 with only d3 in it?

Another question, (since my Enterolab results only showed sensitivity to gluten, eggs, and I know not to eat oats, plus avoiding chicken for now) is it normal to be sensitive to also rice and corn while reacting? I guess I'm scared my Enterolab results were wrong and I will never be able to eat anything again! Has anyone found you reacted to something that Enterolab said you didn't after remission?

jlbattin · Post by **jlbattin** » Wed Sep 23, 2015 2:15 pm

This is the D3 I take:

http://www.iherb.com/Bluebonnet-Nutriti ... gels/11865

It's free of soy, dairy, gluten, rice, and whole lot of other things................I do very well with it!

You can get it other places.....Amazon..........I have a couple of local places also, but I ordered the last bottle from Amazon because my local was out.

Erica P-G · Post by **Erica P-G** » Wed Sep 23, 2015 2:40 pm

Hi Martha,

This is the Vit D3 I have been using, lingual type http://shop.mercola.com/product/vitamin ... 1,44,0.htm has been working very well for me.

Yes, I have been careful with Rice and Corn while healing...not that I think I am reacting to it a lot, I just seem to feel better only eating it sometimes, I started off with Rice, and now I seem to be doing better with Potato. Funny how our bodies wax an wane during this healing period.

Cheers
Erica

crervin · Post by **crervin** » Wed Sep 23, 2015 3:42 pm

Thank you Jari and Erica! I will try to figure out which one. I believe, this is really going to help! I did so well in month 1. I added that d3 plus the questran in month 2. I so hope their removal gets me back to where I was at (with the ability to eat rice too)!

Post by **tex** » Wed Sep 23, 2015 5:05 pm

Martha wrote:Another question, (since my Enterolab results only showed sensitivity to gluten, eggs, and I know not to eat oats, plus avoiding chicken for now) is it normal to be sensitive to also rice and corn while reacting? I guess I'm scared my Enterolab results were wrong and I will never be able to eat anything again! Has anyone found you reacted to something that Enterolab said you didn't after remission?

It's not impossible, but certainly not normal to react to a food after a negative test result at EneroLab. This raises the possibility of selective IgA deficiency. Approximately 1 in 500 people in the general population has selective IgA deficiency, meaning that the person's immune system is incapable of producing normal amounts of immunoglobulin A. For people who are sensitive to gluten, the risk increases to about 1 in 300. For those who have selective IgA deficiency, any IgA-based tests will carry a risk of false negative results. IOW, if the immune system cannot produce normal amounts of IgA, then antibody levels measured on IgA-based tests will be lower than normal.

This not only applies to the EnteroLab stool tests, but it also applies to the celiac blood tests used by physicians to screen for celiac disease. We have more than a few members here who have either this condition, or a more serious condition where the ability to produce other types of immunoglobulins (such as IgG, IgM, etc.) is also compromised.

Doctors have a simple blood test that can be used to rule out selective IgA deficiency. Do you know if you have ever been checked for selective IgA deficiency?

Tex

crervin · Post by **crervin** » Wed Sep 23, 2015 5:45 pm

Not that I know of. This wouldn't be in normal blood work, would it? Trying to get in for a physical at PCP plus to see if he would check vitamins. Maybe I can get him to throw in an IgA blood test. Wish me luck!

It's possible even though I showed results for gluten and eggs, guess it depends how deficient?

I had this fear when I was ordering the test.

Post by **tex** » Wed Sep 23, 2015 7:35 pm

Right, it's not something normally ordered, unless there's a special reason. Some doctors order the test at the same time that they order the blood tests to rule out celiac disease, but not all of them order it. If your doctor ordered the celiac blood tests, then a test for IgA might be included with those results, if you have them.

Yes, even those who are IgA deficient, typically produce some IgA antibodies, but the level is below normal. As a result, some test results at EnteroLab will still be high enough to qualify for a positive result, but others will fall below the threshold for a positive result (which requires a score of 10 or more), even though that food would trigger a positive result if the client's immune system were capable of producing normal amounts of IgA. There's no question that the gluten and egg results are correct, but all the negative results would be suspect. They could easily be off by a factor of 5 or 10, or more.

And since the blood tests are far less sensitive than the stool tests, if the celiac blood tests were ordered, they will almost always show a negative result for an IgA-deficient patient, regardless of actual celiac disease status.

Tex

crervin · Post by **crervin** » Sat Oct 03, 2015 6:47 pm

Just curious has anyone experienced problems swallowing after they ate even when you don't have any allergies to food? I ate only plain mahi tonight and almost thought I was having anaphlatic shock. It wasn't very bad, so I'm not sure. I took a meclizine because I had been experiencing nausea. I hadn't eaten much all day and was stressed with D off and on. I took a welchol 3 hours earlier and thought the nausea was from that....really scary hope that doesn't happen again. I'm taking allegra, benedryl, and unison throughout the days.

I'm experiencing crazy things now that I'm off gluten!

crervin · Post by **crervin** » Mon Oct 12, 2015 7:34 pm

Advice Please!

Day 12 of welchol, currently taking 2x 625 mg at night. The first day I increased to 2 pills from 1, formed BM. Then next day D....

In general I'm having 3 WD every morning. The welchol causes "sand" in my BMs.

Just got back from Beach (while there I maintained this same diet I had at home, except fish the first night), while there got better for few days. Back on road, histamine intolerance again.

My current diet includes:

Breakfast---- turkey (frozen into patties, that I fry frozen), jasmine rice (frozen, that i cook ahead and freeze, heat in microwave), green tea

Lunch----vegan bread (1 slice toasted, frozen), vegan butter, organic honey

Supper--baked potatoe, vegan butter (earth something), deli gluten free turkey (frozen, that I fry in olive oil), occasionally I replace the turkey for New York strip, ribeye, or t-bone (grilled with salt)

Snacks---rice cakes with GF almond butter (1 tsp, very little) or organic honey, cape cod GF potatoe chips

Sometimes I drink sprite, ginger ale (homade) or Pepsi (not a whole can), and lots of water. Sadly, I recently had to give up coffee, it caused stomach upset too. Even though my love of coffee is huge, I wish I did that from the get go....

I'm taking 2000units d3 x3, Allegra in mornings, benedryl throughout the day, 264 mg of magnesium oil x3, magnesium deordinant, magnesium lotion, and unisom at night.

If the gas/cramps/explosive D are really bad I take a Pepcid. Then an hour later my gut calms, not completely and causes D in the am. Going to change to chlortabs tomorrow when I can get them. Pepto or Imodium won't stop the D caused from this (I should say, it postpones it, but doesn't give me a formed BM)...

Here's my questions and appreciate all advice:

1. Do I continue welchol and try 3 tablets at night (that's the highest dose suggested) or stop it? I could try again at a later time, possibly in winter when I have lower histamines??

2. How on God's green earth do I get this histamine intolerance under control? Who knows if that's what it even is???

3. It's going to be 3 months since I've been GF (but not complete bland diet) is it possible I haven't had enough time and my D is still from that? And it will take a lot longer for me to form a BM?

4. Does my diet look bland enough? This is what I'm going to follow for awhile now?

3. Will I ever go back to drinking coffee? No don't answer, I know the answer

!

Thank you guys so much for listening! I'm so happy to hear about everyone doing so well, it continues to give me hope! Please keep those stories coming!

Post by **tex** » Mon Oct 12, 2015 9:28 pm

Hi Martha,

I'm hoping that Polly or someone else who has experience with bile acid sequestrants can advise you on the Welchol. I have a few random observations about some of your comments.

Martha wrote:Just got back from Beach (while there I maintained this same diet I had at home, except fish the first night), while there got better for few days. Back on road, histamine intolerance again.

It's not uncommon to see improvement while on vacation, only to see the improvement disappear as the vacation ends. Our best guess is that this effect may be due to the stress reduction (a temporary reprieve from the demands of stressful daily schedules).

Martha wrote:Lunch----vegan bread (1 slice toasted, frozen), vegan butter, organic honey

Many/most of us have problems with baked goods and/or commercially-processed products. Was the bread free of soy and tapioca flour? How about gums? Some flours are notorious for cross-contamination with gluten — millet comes to mind, for example. That wasn't spelt bread by any chance, was it? Spelt is an ancient grain from the same genus (Triticum) as wheat. It's a weaker source of gluten, but still a major problem for anyone sensitive to gluten.

It's certainly possible that you may just need more healing time. Without medications that work effectively, it typically takes longer than a few months for most of us to reach remission (by diet changes alone). It's also possible that the first hard freeze may bring significant improvement. Those of us who have histamine problems seem to cross-react with pollen.

I wouldn't completely write off coffee. It's possible that you may be able to drink it again after your digestive system has done enough healing.

Tex

crervin · Post by **crervin** » Mon Oct 12, 2015 9:57 pm

Thank you Tex, that really helps me and yay about the coffee. I'm almost thinking why wake up, there's no coffee and 3 kids to carpool!

I love reading all of your posts! I'm hoping to help my grandmother will all the info you give. I think she is low in magnesium. She has had nerve pain for years in her right leg, so hope magnesium helps her! She eats a lot of chocolate!

The bread is actually from a woman that has celiac disease. She opened this bakery up after she was diagnosed. She sales her flour there as well. She kept telling me about the cross contamination at the health food stores that sale GF flour.....

Vegan
INGREDIENTS: GFAB Organic Flour Blend (Rice Flours, Buckwheat), Filtered Water, Olive Oil, Organic Agave Inulin, Tapioca Flour, Potato Starch, Yeast, Organic Blue Agave Nectar, Xanthan Gum, Aluminum/Gluten Free Baking Powder (Contains Corn Starch), Baking Soda, Sea Salt