Please Advise - Added Calories Needed

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TREESE
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MAYO

Post by TREESE »

DEB, that Mayo Recipe sounds easy enough...thanks!

Is Vinegar safe for us or must it be Apple Cider Vinegar?
Diagnosed with Collagenous Colitis, June 2015.
Diagnosed Dec 2020 with Celiac Disease during 1st Flare up.
Spine Surgery 2010. Chronic Pain. FAITH!!
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tex
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Post by tex »

Any distilled vinegar is safe. 100% distilled vinegar is made from distilled alcohol and all “pure” distilled alcohol is gluten free.

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
TREESE
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Condiments and Such

Post by TREESE »

Vinegar is safe...Good!

And I take it Mustard is safe, too, from the Recipe for that home-made Mayo it was suggested I try? Any Mustard?

What was UN-Safe in Regular Store Mayo?

Is there a Safe Ketchup?

If one is NOT Cassein sensitive, might Cheddar Cheese also be Safe?

TREESE
Diagnosed with Collagenous Colitis, June 2015.
Diagnosed Dec 2020 with Celiac Disease during 1st Flare up.
Spine Surgery 2010. Chronic Pain. FAITH!!
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tex
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Post by tex »

Always check the label on any mustard used, because there may be much more than just ground mustard seeds in there. Also, be sure that you can tolerate mustard. Spicy foods/condiments don't work for many of us while we are recovering.

Most mayo contains eggs. Some contains soybean oil.l Check the label.

Tomatoes are a citrus fruit. So if you can tolerate citric acid, you can probably tolerate tomatoes, but many of us cannot, while we are recovering. Yes, there are safe brands, if you can tolerate tomatoes. Check the labels.

Yes, if you are not sensitive to casein, you should be able to tolerate aged cheeses such as cheddar, because they are low-lactose products. Soft cheeses such as cottage cheese may contain enough lactose to cause problems, because everyone is lactose-intolerant while their gut is inflamed.

Remember that the key to a smooth and expedited recovery is a bland, safe recovery diet. A recovery diet for MC is not a gourmet delight. Gourmet diets come later.

Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
TREESE
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BLAND Is Grand

Post by TREESE »

:hammerhead: It's my Italian Hard Head that's the problem...hee hee.

BLAND Is Grand! Got it, Tex, Thanks!!

TREESE
Diagnosed with Collagenous Colitis, June 2015.
Diagnosed Dec 2020 with Celiac Disease during 1st Flare up.
Spine Surgery 2010. Chronic Pain. FAITH!!
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Post by Lucy_B »

I feel for you, Treese- same boat here! I get really scared about my weight sometimes and worry that I'll never be a healthy size again. But the worrying is definitely not helpful, lol. Recently I've been working on just accepting that I'm underweight for the moment but that I'll get back to normal eventually when my gut heals up. It definitely helps to try and minimize the worry. But I know it's hard. :) Anyhoo, about the shake you mentioned- I've had some success recently with one that contains banana, coconut milk, coconut oil, cashew butter (if you can do nuts), and collagen protein. It packs a nice punch with about 600 calories, and I haven't had any issues tolerating it. Now that I seem to have relapsed, though (from Lialda), it might be a different story. ;-) From what I understand, bananas are high in histamine, so some people have issues with them. But I haven't found that to be the case for me. Yet...
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Post by Lucy_B »

Oh, and bacon is also key in my diet. I can tolerate sausage, as well. And ground lamb is another good fatty option that makes great meatballs. Let's see, what else...definitely potatoes and rice with lots of coconut oil (or bacon fat). Plus rice cakes, rice Chex (with almond milk), etc. I also eat cashew butter. Maybe I shouldn't, I'm not sure. But it's pretty low in fiber and a very high density food, calorie wise.
TREESE
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Relapsed, Lucy?!

Post by TREESE »

Lucy, hello, and thank you for your kind assistance! You said you relapsed from LIALDA?! Not sure I understood what you meant. Can you explain?

About Shakes - I can't do Walnuts or Cashews, but the Almond Butter seems to be fine to add to a Shake. I use 8oz. of Water, a chunk of Banana, some shredded Coconut Flakes, and a touch of Honey and make it glass at a time in my Blender for in between meals. Or, I add it to my Rice Chex in place of Almond Milk. Once it's in the refrig a while, it thickens up nicely.

What Brand of BACON do your get? Does it matter what's in it or is Bacon just bacon, regardless? I have been eating Ground Turkey mixed with GF Bread Crumbs and rolled into sausage links. That seems to work for me, also. I have it with 2 pieces of GF Bread and some pure Maple Syrup. I use Coconut Oil to fry it all up in, for a GF French Toast experience. Pretty darn good, actually!

Thanks, Lucy!
TREESE
Diagnosed with Collagenous Colitis, June 2015.
Diagnosed Dec 2020 with Celiac Disease during 1st Flare up.
Spine Surgery 2010. Chronic Pain. FAITH!!
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Post by Lucy_B »

Hey, Treese! I'm not sure if it's a relapse or what. All I know is that I was doing okay (not great) at 2 - 4 semi-formed stools daily but then went to 10 - 15 totally liquid ones after starting 4.8 g of Lialda. It was basically like being back at square one...probably the worst WD I've had since my colonoscopy, lol. Here's the thread that talks about it: http://www.perskyfarms.com/phpBB2/viewt ... c&start=15 I haven't taken any more for 36 hours and am already noticing some improvement. I see that you use it- do you feel like it helps? If so, I'd be happy to send you my supply! ;-) I really hate to waste it, seeing as it's such an expensive drug. I was really hopeful that it would work for me, as I know it's helped others. I guess we're all different when it comes to this stuff. As for bacon, I just get whatever uncured, nitrite-free stuff is on sale at the grocery store (I generally shop at Kroger and sometimes Whole Foods or Trader Joe's). I always check labels to make sure there's nothing weird added. The one I usually get contains salt, a negligible amount of sugar, and celery powder.
TREESE
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LIALDA Repurcussions

Post by TREESE »

Holy Cow, Lucy...that thread really was eye-opening! I'm so sorry you are going through this. Lialda seems to be ok with me. My Doc upped my dose from 2 daily to 4, but I only take 3 because I just felt too skinny to handle 4 well.

Do you think it could also be related to what you're eating? I know when I first got diagnosed with CC, it was white rice and boiled chicken for a while, a lot of water, and 2 Lialda's a day. No bacon or shakes or Anything else. Then, I got the Entero Lab Tests for food sensitivities and things began to fall into place. Have you gotten them or considered getting them?

When were you Diagnosed with CC?

TREESE
Diagnosed with Collagenous Colitis, June 2015.
Diagnosed Dec 2020 with Celiac Disease during 1st Flare up.
Spine Surgery 2010. Chronic Pain. FAITH!!
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Lucy_B
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Post by Lucy_B »

Hey, Treese! I actually have LC (lymphocytic colitis)- was diagnosed at the beginning of June after having symptoms for about 3 months prior to that. I don't think the recent flare up was related to diet, as I wasn't eating anything out of the ordinary for me. Although, it's hard to say...bodies are weird. At any rate, I've noticed significant improvement since stopping the Lialda, so I'm assuming it was to blame. My doc suggested backing down to two pills a day instead of 4, but I was too spooked to even try that. I'm really glad it's working for you! No, I haven't done the Enterolab testing yet. I probably need to, but it's somewhat cost-prohibitive (as my insurance won't cover a dime of it) and I'm already hemorrhaging money on other stuff. I will probably bite the bullet eventually. Although, I have to be honest- I'm terrified that every single food will come back as a problem, lol.
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