How long did it take for GF to make a difference?

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Meggie1129
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How long did it take for GF to make a difference?

Post by Meggie1129 »

I am on Endocort/Lomotil which worked immediately after I switched from Pepto/Lomotil (which also worked immediately). I am averaging one solid BM each morning. I know GF will possibly help me remain in remission, but how long did it take you to know GF was working, either with meds or without? How did you know?
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tex
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Post by tex »

If the Entocort stops the symptoms, then you won't know, until you wean off it. After the Entocort is stopped, if the healing progress is not sufficient, the symptoms will relapse. Most people here find it necessary to remain on the Entocort for at least 6 months or more before they can safely wean off it and rely on the diet changes to maintain their remission. IOW, it typically takes from 6 months to a year for the diet to bring remission, with or without Entocort. But of course if Entocort is used during that time, then there will be no symptoms as long as it is used.

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Erica P-G
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Post by Erica P-G »

HI Meggie,

speaking for myself, I did not take meds (oh how I wanted to in the beginning but I didn't) and by being GF, DF, SoyF and EggF for a good almost 4 months which would have put me around the beginning of September, I feel it took that long for the gluten to be removed enough to allow pretty normal BMs for the last 3 weeks now :grin:

I will continue to live GF though because its not that hard for me to live without it, and soy seems to mess with me so I probably wont be introducing that into my food groups either. I will toy with the idea that if I am out eating somewhere and there is a little dairy or egg in something I can deal with its consequences but not the Gluten or Soy.

So for me it took less than 6 months to tell....med free ofcourse.
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Dx LC April 2012 had symptoms since Aug 2007
Meggie1129
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Question

Post by Meggie1129 »

Erica P-G
Hi! Thanks for posting a response about going gluten free. I know you said you are also avoiding soy and egg. When you say egg do you mean like cooked egg, or things that have egg in it? Also, how do you avoid soy when you go out? I feel like that is practically impossible? What are your typical meals /diet now?
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Erica P-G
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Post by Erica P-G »

Hi Meggie,
For right now All Egg the protein in the egg whether it's alone or cooked in something I will not eat yet. Maybe I can try it once every so often but I'm going to keep eating safe foods for me for a while, perhaps a year or more. I'll be introducing over cooked veggies way before the egg 😄

The soy is tough, and I haven't ventured out to any restaurant just yet. I will need to do my homework when that time comes. I'm hopeful, let's put it that way, that I will be able to at least enjoy a salad one day.

You are right Soy is in way to many things, stuff it really doesn't need to be in with many items I look at. For now I make a bone broth soup in a crockpot, I use Cornish hen bones after I cook it an set the meat aside in the fridge. I use gluten free rice noodles Tikiyada brand and I am able to eat over cooked carrots an celery plus sea salt to taste. That has been my staple for healing. I also am eating steamed white rice and potato along with a hefty helping of chicken, turkey an some times bacon. I drink water, coconut milk and cashew milk. I have a Rice Chex Cinnamon with turkey sausages usually for breakfast, but don't let what you eat deter you from eating it whenever you feel like it.

While on meds you'll need to stick to this bland diet in order for you to heal. Along with a VitD3 and Magnesium supplement program. It all works together. 😉
Cheers
Erica
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Nsol
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sweet potatoes

Post by Nsol »

trying to decide if those can be tolerated or eliminated? is it common for CC folks to react to sweet potatoes?
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tex
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Post by tex »

No, most of us can tolerate sweet potatoes just fine.

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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Gigi
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Post by Gigi »

I would like to add that how long it takes may depend on how gluten sensitive you are and how long it takes for you to realize where gluten may be hiding and how much you can or cannot tolerate. My experience was that once I went off of gluten I became more sensitive to even small amounts. And for me there was a learning curve. For instance it took me awhile to understand that even small amounts of gluten in something like french fries fried in a non dedicated frier at a restaurant could be enough to cause a reaction for me. Same for tortilla chips at a Mexican restaurant. At a year I am doing well. No meds but gluten free, soy free and mostly egg free. I eat eggs on occasion and make sure they are pastured and soy free. I also mostly I also eat duck eggs but only sporadically. In addition I avoid dairy but not strictly. I also am on a major supplement protocol for methylation deficiencies. So it's been just over a year for me but gluten free has not been my only strategy.

Gigi
LC diagnosed July 2014
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