MC and 3 children

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Gabes-Apg
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Post by Gabes-Apg »

Martha
My thoughts on the information provided

-for the amount of inflammation that is occurring 6000iu may not be enough Vit D3. I would consider going higher, up to 10,000iu for a couple of weeks at least
- it can take a minimum of 8 weeks of high doses of Magnesium to correct deficiencies how long have you been taking those amounts? (and it may take 12 weeks or so while the high levels of inflammation are still occurring)
- it can take 6 months for gluten antibodies to leave your system, the D will reduce once ALL major triggers are eliminated.

as for your bread it does have some suspect ingredients Xanthum gum, Tapioca, Olive Oil,
Yes in MC world Gluten is a big issue, albeit for many things like Soy can be just as bad. In early days, any item with more than 5 ingredients should be avoided...

There are some here that chronic histamine/mast cell issues need more than over the counter anti-histamines. There are specialists/solutions for this. and medications more specific for Mast Cell issues.
be prepared - a bit like MC there is no quick fix, guaranteed solution for Mast Cell issues. Wellness is attained by minimising as many triggers as possible along with the medications, and the medications can take a while to provide benefit.


The Mast Cell section of this forum has good information

This site provides a good summary that there is different treatment depending on the type of mast cell issue
http://www.evilmastcells.com/MCAD-Treatments.html
Of note it does mention the impact of magnesium deficiency

the tricky part as you will see from the article is that there are multiple types of mast cell activation disorders, and each of them have a different solution.

One item not mentioned on the site, that has helped a few is Methionine
L-methionine is also responsible for the reduction of the level of histamine in the blood, which is why it can positively affect the symptoms of allergies. In addition, it is important for the regulation of the acid-base balance and provides sulphur atoms for various chemical processes.
Based on what you have said so far, I am not sure that MC is your main issue, I think the MC is symptom of histamine intolerance /mast cell
And in line with this, that maybe external triggers, ie pollen, and other enviro elements are more of an issue than food ingredients (albeit inflammatory foods do make it worse)
hence why you were better when on holidays.

Have you checked your home for mold?
are you drinking filtered water?
have you cleaned the filters of vacuum cleaners, air conditioners etc?
do you wear gloves when handling any cleaning products?
do you use dust mite spray/wash for sheets/towels etc

I would visit some of the allergy sites and do some reading on these types of triggers...

if it was me; for now i would limit the intake of the bread, leave the diet as is, increase the Vit D3, keep up high doses of magnesium.
Do a mega investigation of your home environment looking for histamine/allergy triggers
Gabes Ryan

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Gabes-Apg
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Post by Gabes-Apg »

This article is the very chronic extreme state of chemical sensitivity
I am not saying this is the same as you but i did find this outcome very interesting
Science for Toxic Times

For scientists studying the illness, however, that view has changed, in large part due to Miller’s indefatigable research and her groundbreaking finds. According to a July 2012 study of 400 primary care patients (published by Miller and her colleagues in the popular family practice journal Annals of Family Medicine), 22 percent of individuals with chronic health issues suffer from some degree of chemical intolerance. That’s more than one in five — and, says Miller, they are vulnerable to TILT if life happens to toss them too much toxic exposure.
http://discovermagazine.com/2013/nov/13-allergic-life

As I said, this is extreme state of sensitivities, now that your body is kinda trigger into over reacting, you might be reacting to way more than just pollen.
Gabes Ryan

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tex
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Post by tex »

Gabes,

That's an awesome article about TILT.

Thanks for the link,
Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Tor
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Post by Tor »

I agree that TILT is a very interesting concept, and some researchers (well at least one) has pointed out the link between TILT and gluten sensitivity. As we see in this group, it's common to be sensitized to multiple food stuff, not just the one that started the domino game.
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crervin
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Post by crervin »

Thank you Gabes! Very interesting! I will avoid bread. Thank you for the timetable about these supplements, just not enough time yet indeed. I only use dish soap when cleaning mainly 😊 and steam on floors. On very rare occasions I break out cleaning solutions (just don't tell my husband😘). House is 11 years old and in the past have only had seasonal allergies, causing headaches and migraines. I will definitely take chemicals into account and stop using fabric softener on my clothes.....

As I'm at walmart looking for the chlortabs and no children are in the background, it dawns on me corn starch in the Allegra, high fructose corn syrup in benedryl, corn starch in chlortabs, and lactose in Zyrtec. I'm really in a brain fog, okay 4 fogs including kids....

What are the symptoms of corn intolerance? What if it's only been antihistamine intolerance occasionally (if I miss a dose) but corn the whole time? Would Pepcid help with the symptoms of corn intolerance (top care brand I'm using doesn't have corn starch only pregelatinized starch?)? When I switched to vegan d3, I believe it doesn't bother me now.

Can anyone recommend an antihistamine without these problem ingredients? Unisom has Dibasic Calcium Phosphate , FD&C Blue No. 1 Aluminum Lake , Magnesium Stearate , Microcrystalline Cellulose , Sodium Starch Glycolate. I take it at night.

One more thing, I tested negative to corn on the enterolab results, so I'm trying to get a dr to test me for selective IgA and IgD deficiencies. I tested positive to a fructose breath test years ago?? Popcorn gives me gas, but I would think corn is hard for anyone (like lactose) while you are reacting, am I correct? Is there a test for corn that I can do, to see what it does to me (if I get brave)?

So hope I'm getting somewhere with this!

Thanks again guys. This really helps for me to talk it out on here with you all! It helps me to figure out where to go so I'm not wasting days.
Martha E.

Philippians 4:13

Jul 2008 took Clindamycin for a Sinus infection that forever changed my life
Dec 2014 MC Dx
Jul 15, 2015 Elimination Diet
Aug 17, 2015 Enterolab Test
Dec 2015 Reflux
Sept 2016 IC
brandy
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Post by brandy »

What are the symptoms of corn intolerance?
My symptoms were a huge amount of brain fog from eating corn chips. From eating corn on cob my symptoms were WD.

Agree with Gabes, ditch the bread for awhile. Rice, potato and/or sweet potato is safer.

Consider ditch Earth Balance Soy Free for awhile. (I know it tastes really good.) It has a lot of ingredients. If you stay with it make sure you use only the Soy Free version (will say on front.) EVOO is safer. I recommend the California brand it comes in a green bottle at grocery or health store. Down the road you may be ok with ghee but I would not try that for many months.

Glad you had a good vacation.

Brandy
crervin
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Post by crervin »

Thank you Brandy, good suggestions. Will make your corrections! I'm going to continue welchol for a few more days, to finish my bottle out and see what 3 pills do....
Martha E.

Philippians 4:13

Jul 2008 took Clindamycin for a Sinus infection that forever changed my life
Dec 2014 MC Dx
Jul 15, 2015 Elimination Diet
Aug 17, 2015 Enterolab Test
Dec 2015 Reflux
Sept 2016 IC
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Gabes-Apg
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Post by Gabes-Apg »

Martha,
I purchased chlorpheniramine maleate 4mg -totally free of any MC type additives, via puritans pride, online. Advance pharmaceutical Inc brand.
The tablets are only 4mg, which means they last a couple of hours. You can have up to 6 tablets in a 24hr period

This is an old school antihistamine, that I know worked well for Tex, and myself and a few others... Not expensive.
Gabes Ryan

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crervin
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Post by crervin »

Great!! I will order it! Thank you Gabes

Going to have to discontinue unisom too, it's causing problems.....
Martha E.

Philippians 4:13

Jul 2008 took Clindamycin for a Sinus infection that forever changed my life
Dec 2014 MC Dx
Jul 15, 2015 Elimination Diet
Aug 17, 2015 Enterolab Test
Dec 2015 Reflux
Sept 2016 IC
crervin
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Post by crervin »

I noticed in some products, they list their ingredients as starch and others list corn starch. Is there a rule of thumb for this? Or do I need to contact each individual drug company? The Chlorpheniramine maleate from Puritan's Pride says starch, so hoping it's not derived from corn.

It's hidden in everything. Sodium starch glycolate has to be derived from corn because my unisom gave me gas all night.

My 3 tablets of welchol actually worked yesterday almost to constipation. If I can get rid of the cornstarch I believe I'm on the road. But I need antihistamines.
Martha E.

Philippians 4:13

Jul 2008 took Clindamycin for a Sinus infection that forever changed my life
Dec 2014 MC Dx
Jul 15, 2015 Elimination Diet
Aug 17, 2015 Enterolab Test
Dec 2015 Reflux
Sept 2016 IC
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tex
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Post by tex »

Martha,

While starch can be derived from many sources, in this country, the accepted convention is that unless specified otherwise, just plain "starch" in an ingredient list stands for corn starch (because these days, that's what it's almost always made from).
For purposes of labeling in accordance with Section 403(i) of the Federal Food, Drug, and Cosmetic Act, and Section 4(a)(1) of the Fair Packaging and Labeling Act, the term "starch" is considered the common or usual name for starch made from corn; alternatively, the name "cornstarch" may be used.
http://www.fda.gov/ICECI/ComplianceManu ... 074605.htm

Starch glycolates can be made from rice, potato, wheat, or corn, but presumably they are typically made from corn, unless otherwise specified.

Antihistamines made without corn starch are almost as scarce as hen's teeth. You may be interested in the article at this link:

http://www.livecornfree.com/2010/06/cas ... yrtec.html

That's certainly good news on the Welchol. :thumbsup:

By the time we resolve all our issues, we become expert food detectives.

Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
crervin
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Post by crervin »

My response is good grief! I'm so hoping this corn intolerance is like lactose and it's only for now. I have a gut feeling it isn't due to my breath test. Well I did a test today, I took equate benedryl capsules just to see what happens (since it says "starch") and so far so good. I just pulled out children's equate liquid Zyrtec and it's probably hidden, but I don't recognize corn. It does have sucralose. Adult Zyrtec has "starch", going to try it tomorrow to see what happens. I'm just thankful it isn't a true allergy! Whoever is allergic to corn, I feel for them! I'm starting to think it's worse than soy....

Thank you so Tex, I'm on the right road! That's a big thank you to everyone here!!

Thank you, thank you
Martha E.

Philippians 4:13

Jul 2008 took Clindamycin for a Sinus infection that forever changed my life
Dec 2014 MC Dx
Jul 15, 2015 Elimination Diet
Aug 17, 2015 Enterolab Test
Dec 2015 Reflux
Sept 2016 IC
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tex
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Post by tex »

If it's any consolation, I avoided corn for about a year while I was recovering, and now I can tolerate it in any quantity without any issues. I certainly agree though that avoiding it is quite an adventure, because it's in virtually all processed foods and pharmaceutical products.

As always, you're most welcome,
Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
crervin
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Post by crervin »

Hey guys question about BMs and color.....ever since I started my diet, I have yellowish BMs. I started thinking it was my diet (rice, turkey, potatoes). Course today I googled it (guess I'm trying to worry about something today) and it says possible liver problems to see a dr. Anyone have any input on this? Even when my BMs are forming they are yellowish brown. I have started recently incorporating small amts of green beans.

Thank you!
Martha E.

Philippians 4:13

Jul 2008 took Clindamycin for a Sinus infection that forever changed my life
Dec 2014 MC Dx
Jul 15, 2015 Elimination Diet
Aug 17, 2015 Enterolab Test
Dec 2015 Reflux
Sept 2016 IC
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tex
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Post by tex »

Martha,

Stool color is primarily determined by bile content (amount) and transit time (among other things). Normal amounts of bile and normal transit times result in the characteristic brown color of "normal" BMs. Excess bile can alter the intensity of the color. Stool color begins as greenish and slowly transforms to yellowish, and finally to brownish if transit time is normal. Shorter transit times result in yellowish color. Rapid transit time can result in either greenish or yellowish stool, depending on bile content.

Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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