Question for Those Who Have Taken Budesonide and Other

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jlbattin
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Question for Those Who Have Taken Budesonide and Other

Post by jlbattin »

I am just a little over 3 months in.........I started with 9 mg (3 capsules), and awhile back, I had to drop to 6 mg (2 capsules), and about a week and a half or so ago, I had to drop to 3 mg (1 capsule). I was beginning to get constipated. Now, I'm feeling like that may be happening again. I have read that the "ideal" time frame for taking it is about 6 months (is there such a thing as "ideal"?)..........

To taper off this time, I'm guessing that I would need to take it every other day for awhile, and then maybe 1 every 3 days...........

Am I tapering too quickly? At this rate, I might be off of it before the 6 months is up........

Here's the weird thing..............every new food I've tried over the last 3-4 weeks has caused me a little distress the first time I ate it (only a little bloating and pain) and then when I ate it the second time, nothing. I eat it just fine. I've had no diarrhea at all in a long time, and no food causes it at this time (even when I have a little stomach distress. Seemed like maybe my body just wasn't used to having anything different in it, so the first time caused a little minor distress, and then after that, I was fine..............

The weirdest thing is that I stopped my Benicar around the same time frame. I'm wondering if the Benicar caused my MC to begin with, and now that I'm off of it, my symptoms are disappearing.

I'm not going to try any gluten, dairy, soy, or egg to test that theory.....I've come too far and am not about to gain back the weight I've lost (that needed to be lost)............I'm just excited that things are seeming to settle down............

I would welcome some advice about the Budesonide though............

Any thoughts?
Jari


Diagnosed with Collagenous Colitis, June 29th, 2015
Gluten free, Dairy free, and Soy free since July 3rd, 2015
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tex
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Post by tex »

Jari,

There is no one-size-fits-all best taper schedule. The optimum time to reduce the dose is when your body tells you it's time to reduce the dose.

Regarding the introduction of new foods — when we totally avoid certain foods for a while, our digestive system tends to throttle down the ability to produce certain enzymes that are no longer needed. If we begin to eat those foods again, the body has to sort of reprogram the enteric nervous system to allow for the proper digestion of those foods again, by reactivating the necessary upstream sensory perception, and coordinating that with the actual production of the specific enzymes indicated by the foods that stimulate the sensory system, so that when the chyme (partially-digested food) arrives in the small intestine, the enzymes needed to finish digesting it will be there, in sufficient quantities to get the job done.

That's why foods should be initially introduced in small amounts, and the "dose" increased slightly each day, to allow the enzyme production ability of the small intestine begin to function normally again. If we introduce certain foods too soon (while there is still too much inflammation in the small intestine), it may not be possible for the proper enzymes to be produced in sufficient quantities to allow adequate digestion of those foods.

Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Post by Lilja »

Jari,

I had my last Entocort (3 mg) tablet in June this year.

Tex helped me setting up a taper plan, which I started in February:

First month: 1 tablet every other day
Second month: 1 tablet every third day
Third month: 1 tablet every fourth day
Fourth mont: 1 tablet every fifth day
Fifth month: 1 tablet every sixth day

It was a perfect plan; no C, no D. Two BMs each morning since then.
:grin:

Lilia
Collagenous Colitis diagnosis in 2010
Psoriasis in 1973, symptom free in 2014
GF, CF and SF free since April, 2013
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Post by brandy »

I got off at 4.5 months (but I had side effects so kind of rushed it.) Recommend totally listen to your body.
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