So, am attempting to go off of Entecort for the first time in three years. Not having a good time. Can that cause dizziness? I've weaned down very slowly and haven't had one in a week and am just dizzy as all get out. Also, started taking slippery elm bark. It seems to make the D worse. However, just checked and I'm taking the capsule and it has magnesium stearate in it. Can that be what's making the D worse instead of the slippery elm? I know the slippery elm is doing something because I haven't had that pain in my left upper side that has been with me for three years. Just feeling like crap (forgive the pun).
Also am going to try a few probiotics, have taken Culturelle and I think it might have helped a little, but not sure.
Am just so tired of this, and I cannot exist on chicken, sweet potatoes and green beans for the rest of my natural life. Those are literally the three things I have foudn that I can eat. And sorry but I'm just worn out, tired, no energy, all of that and more.
Several issues
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Have you tried an antihistamine? Have you tried a bile acid sequestrant? Sometimes these work, when there is no reason for remaining symptoms. Try them one at a time though, not together, so that you can tell which one might be helping.
If an antihistamine is going to help, you should see some improvement within a day or 2. A bile acid sequestrant may take longer to show results (if bile acid malabsorption is the reason for continuing D).
Tex
If an antihistamine is going to help, you should see some improvement within a day or 2. A bile acid sequestrant may take longer to show results (if bile acid malabsorption is the reason for continuing D).
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Check out this long discussion (6 pages so far) on bile acid malabsorption:
More on Bile Acids (an important piece of the MC puzzle?)
Magnesium sterate shouldn't cause any problems.
Tex
More on Bile Acids (an important piece of the MC puzzle?)
Magnesium sterate shouldn't cause any problems.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Tex, I went and read all of that thread and then called my gastro. He said yes, they have used that Cholestyramine for a while now and are having pretty good results with it, so he has given me a small supply to try out. Thank you for sending me that way. Keep your fingers crossed that this is my problem too, because I can't live on chicken, sweet potatoes and green beans the rest of my life.
You know that I keep my floral gifts small; they are expensive and I'm saving for retirement 
JMulkey,
I'll be very interested to see how you do on the cholestyramine. It may take a few weeks to find out the correct dose.
I hear ya about the limited diet. I have had MC for 15 years now, treated with a very limited diet. So you can imagine my surprise when I have been able to add in new foods since going on cholestyramine. Don't try it immediately, though. Good luck!
Polly
I'll be very interested to see how you do on the cholestyramine. It may take a few weeks to find out the correct dose.
I hear ya about the limited diet. I have had MC for 15 years now, treated with a very limited diet. So you can imagine my surprise when I have been able to add in new foods since going on cholestyramine. Don't try it immediately, though. Good luck!
Polly
Blessed are they who can laugh at themselves, for they shall never cease to be amused.
Thanks DJ, Jen, and Vanessa,
I appreciate the kind words (and the flowers
). I think what inspires me is memories of how sick I was for so long, together with the feeling of utter hopelessness that began when my GI specialist told me there was nothing he could do for me. After I got over that letdown, like most of us, I started looking for solutions, and I reckon I'll continue to look for solutions for as long as I can.
Thanks,
Tex
I appreciate the kind words (and the flowers
). I think what inspires me is memories of how sick I was for so long, together with the feeling of utter hopelessness that began when my GI specialist told me there was nothing he could do for me. After I got over that letdown, like most of us, I started looking for solutions, and I reckon I'll continue to look for solutions for as long as I can.Thanks,
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
I definitely agree with the others
Tex you definitely are a guardian angel on this site. I'm sure many like me have been lifted during a dark hour thanks to your devotion. I appreciate it too as I think we all do. thank you
Jim,
You're most welcome. I hope that very soon your symptoms will be fading away, so that you can begin to enjoy life again.
Tex
You're most welcome. I hope that very soon your symptoms will be fading away, so that you can begin to enjoy life again.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.