I have recently been diagnosed with Lymphocytic Colitis. I have the D for 3 straight months. I got up one day and it just started. It appeared I had the flu but after a few days it didn't stop so on day 9 I finally saw a doctor and the testing started.
I have chosen not to take Budesonide but am using PEPTO Bismal as needed. I had a upper and lower GI done with a biopsy which is when I was told it was Colitis and also I have stomach erosion, which if not treated was told I would have ulcers. I am taking Esomeprazole Magnesium. I am looking at diet as an alternative to medication. I found your colitis group and was encouraged. Do you feel there is a connection between my two conditions? Also I have taken medication (prescription and over the counter) for arthritis for about 35 years or better. I read that could be the cause of the colitis. I am in the process of starting to eliminate foods from my diet. Looking at more of a Paleo diet. I am looking for comments and helpful suggestions.
New to condition
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
New to condition
Looking for health and wellness to all no matter what ailment they have to deal with.
Hi and welcome to the group 
There is lots to learn about Microscopic colitis as it encompasses LC an CC and quite a few others that aren't as easy to detect too.
To start with I joined this group back in May 2015 and have started a post http://www.perskyfarms.com/phpBB2/viewtopic.php?t=21173 with quite a bit of useful information, if one has time to read a little bit, it attends to the basics and how to get back on our feet (which takes a bit of time mind you) especially since most Drs are not really equipped to help us after a certain point in all the testings.
You'll learn that a bland diet consisting of a few safe foods and a couple supplements VitD3 5000mg tab and Elemental Magnesium (topically applied at this point) is the starting foundation needed at this time. Please read my post, as you begin to familiarized yourself with what works and what doesn't for you things will start to fall into place as far as healing goes.
If you haven't already you will need to start a Gluten, Dairy, Soy and perhaps Egg free diet as soon as possible.
Warmly,
Erica
PS, I did not take meds I have started to get good healing under my belt diet alone
There is lots to learn about Microscopic colitis as it encompasses LC an CC and quite a few others that aren't as easy to detect too.
To start with I joined this group back in May 2015 and have started a post http://www.perskyfarms.com/phpBB2/viewtopic.php?t=21173 with quite a bit of useful information, if one has time to read a little bit, it attends to the basics and how to get back on our feet (which takes a bit of time mind you) especially since most Drs are not really equipped to help us after a certain point in all the testings.
You'll learn that a bland diet consisting of a few safe foods and a couple supplements VitD3 5000mg tab and Elemental Magnesium (topically applied at this point) is the starting foundation needed at this time. Please read my post, as you begin to familiarized yourself with what works and what doesn't for you things will start to fall into place as far as healing goes.
If you haven't already you will need to start a Gluten, Dairy, Soy and perhaps Egg free diet as soon as possible.
Warmly,
Erica
PS, I did not take meds I have started to get good healing under my belt diet alone
To Succeed you have to Believe in something with such a passion that it becomes a Reality - Anita Roddick
Dx LC April 2012 had symptoms since Aug 2007
Dx LC April 2012 had symptoms since Aug 2007
Hello Goesalot............
A very warm welcome to the group. Sorry to hear about your diagnosis - we all know what that feels like on here. You are very wise to think of changing diet as a route to recovery. Most of us on the forum believe it's very important.
I'm fairly new to all this MC myself but did notice you have arthritis and take different medications. One of the big antagonists for my MC (not officially diagnosed) was my NSAID anti-inflammatory drug Ketoprofen. I'm doing without any additional pain medication hoping my increased collagen intake will help my joints.
After stopping Ketoprofen and starting the elimination diet I made progress and the WD stopped.
A very warm welcome to the group. Sorry to hear about your diagnosis - we all know what that feels like on here. You are very wise to think of changing diet as a route to recovery. Most of us on the forum believe it's very important.
I'm fairly new to all this MC myself but did notice you have arthritis and take different medications. One of the big antagonists for my MC (not officially diagnosed) was my NSAID anti-inflammatory drug Ketoprofen. I'm doing without any additional pain medication hoping my increased collagen intake will help my joints.
After stopping Ketoprofen and starting the elimination diet I made progress and the WD stopped.
Psoriatic Arthritis
Hypertension
Hashimoto Thyroiditis
Allergies
Severe Atopic Reactions
HIT
Elimination Diet Start : 1/9/15
Hypertension
Hashimoto Thyroiditis
Allergies
Severe Atopic Reactions
HIT
Elimination Diet Start : 1/9/15
Welcome to the group, so sorry you are going through this. Starting month 4 of bland diet and it has really helped me. If you have any questions don't hesitate to ask! Everyone on here has helped me more in 4 months than 7 years of dr visits.
Martha E.
Philippians 4:13
Jul 2008 took Clindamycin for a Sinus infection that forever changed my life
Dec 2014 MC Dx
Jul 15, 2015 Elimination Diet
Aug 17, 2015 Enterolab Test
Dec 2015 Reflux
Sept 2016 IC
Philippians 4:13
Jul 2008 took Clindamycin for a Sinus infection that forever changed my life
Dec 2014 MC Dx
Jul 15, 2015 Elimination Diet
Aug 17, 2015 Enterolab Test
Dec 2015 Reflux
Sept 2016 IC
Welcome to our Internet family. I have some bad news. The Esomeprazole Magnesium you are taking is clear evidence that your doctor doesn't have the foggiest idea how to treat microscopic colitis. Proton pump inhibitors are a very common cause of MC, and most people are unable to reach remission from their symptoms if they are taking a PPI. That treatment needs to be changed to an H2 blocker. H2 blockers can be used to reduce the acid production almost as well as a PPI, and H2 blockers carry a much, much lower risk of making your MC worse. You are probably correct that your arthritis medications (especially NSAIDs) may have initially caused your MC, but the PPI will perpetuate the symptoms and probably prevent any type of treatment from being effective to bring remission.
Here are some diet suggestions to help get you started:
The main key to recovery is to totally avoid all gluten, dairy, and soy while you are recovering. Some of us also have to avoid eggs. You might not be sensitive to soy, or eggs, but it's safest to avoid them and then test them back into you diet later to see if you can tolerate them after you are in remission.
The key to the shortest recovery time is to keep the diet simple and bland, with a few simple foods known to be safe, cooked at home, while avoiding commercially-processed foods. After we have been in remission for a few months or more, then it's usually safe to try to reintroduce (one at a time) fruits and more vegetables, and even raw fruits and vegetables, but it's way too soon to be considering that when you are just starting out on your path to recovery.
The following meats are safe for most of us: turkey, lamb, duck, goose, pheasant, quail, rabbit, venison, or other wild-type meats (except for bison — most bison have DNA from domestic cattle). Only a small percentage of us is sensitive to beef, chicken, or pork, but a few of us are, and by eliminating those foods, you can maximize your chances of successfully recovering in a minimum amount of time.
Most of us (but not everyone) can tolerate carrots, squash, and sweet potatoes, and almost as many of us can tolerate Irish potatoes, also. Vegetables such as well-cooked broccoli and green beans are also usually safe, but broccoli can cause gas problems for some of us. It's important to minimize fiber and sugar (especially fruit sugar) while we are recovering, and absolutely all artificial sweeteners should be totally avoided.
Again, welcome aboard, and please feel free to ask anything.
Tex
Here are some diet suggestions to help get you started:
The main key to recovery is to totally avoid all gluten, dairy, and soy while you are recovering. Some of us also have to avoid eggs. You might not be sensitive to soy, or eggs, but it's safest to avoid them and then test them back into you diet later to see if you can tolerate them after you are in remission.
The key to the shortest recovery time is to keep the diet simple and bland, with a few simple foods known to be safe, cooked at home, while avoiding commercially-processed foods. After we have been in remission for a few months or more, then it's usually safe to try to reintroduce (one at a time) fruits and more vegetables, and even raw fruits and vegetables, but it's way too soon to be considering that when you are just starting out on your path to recovery.
The following meats are safe for most of us: turkey, lamb, duck, goose, pheasant, quail, rabbit, venison, or other wild-type meats (except for bison — most bison have DNA from domestic cattle). Only a small percentage of us is sensitive to beef, chicken, or pork, but a few of us are, and by eliminating those foods, you can maximize your chances of successfully recovering in a minimum amount of time.
Most of us (but not everyone) can tolerate carrots, squash, and sweet potatoes, and almost as many of us can tolerate Irish potatoes, also. Vegetables such as well-cooked broccoli and green beans are also usually safe, but broccoli can cause gas problems for some of us. It's important to minimize fiber and sugar (especially fruit sugar) while we are recovering, and absolutely all artificial sweeteners should be totally avoided.
Again, welcome aboard, and please feel free to ask anything.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Hi there. Just like you say I woke up one morning too with Diarrhea that wouldn't go away. I could stem the tide with Imodium but it would soon be back.
Be careful using PPI's as I feel these may have been the cause of my problem in first place. At the very least something like 20% of users complain of Diarrhea , a good proportion of those being explosive watery.
There's some good people on this site with good advice. Good luck
Be careful using PPI's as I feel these may have been the cause of my problem in first place. At the very least something like 20% of users complain of Diarrhea , a good proportion of those being explosive watery.
There's some good people on this site with good advice. Good luck
egg allery
At the same time that my D started I also started throwing up from eggs, Ezekiel and some supplements that I had been taking. To this point I was eating eggs every morning for breakfast. I tried 1/2 banana this week but my stomach didn't like that at all. Even though I didn't get D from it Ifelt like any moment I would and also felt the burning sensation that comes after you have had the runs for a period of time.
Looking for health and wellness to all no matter what ailment they have to deal with.
So sorry for your diagnosis! It's definitely a frustrating journey, but you've hit the support jackpot with this forum. :) Glad to hear that you are looking toward diet to aid in healing- it will make everything else that you do much more effective. I, too, have been resistant to budesonide and am giving everything else a fair trial first. I really hope the Pepto works for you! Are you doing the 8 pills a day? It has been effective for many people- would be great if you find some relief with it. Hang in there, and welcome!
Lucy
Lucy
2005- Crohn's dx (later changed to "IBS")
2010 to present- Recurrent miscarriages (9)
2012 to present- Elevated thyroid antibodies and TNF-a
2012- tested compound heterozygous for MTHFR mutation
2015- LC dx
2010 to present- Recurrent miscarriages (9)
2012 to present- Elevated thyroid antibodies and TNF-a
2012- tested compound heterozygous for MTHFR mutation
2015- LC dx
Hello and welcome to our group. I have LC as well and like you, I woke up one day and there it was. I did the Pepto treatment which stopped the D and then I did not take any medication but changed my diet. Read the forums on here and Tex's book listed in the upper right hand corner was a big help to me. Sometimes it's by trial and error, our bodies are all different and what one person is able to tolerate may cause issues for someone else. But rest assured you have come to the right place for support and help in dealing with this disease.
Marcia
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My mission in life is not merely to survive, but to thrive and to do so with some passion, some compassion, some humor and some style. - M. Angelou
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My mission in life is not merely to survive, but to thrive and to do so with some passion, some compassion, some humor and some style. - M. Angelou
I am not taking 8 pepto a day because at this time my D has stopped. I however have a lot of gas and a lot of bloating when I eat. I always feel like I should go but at this time it is not D but it is also not normal. I have an upset stomach a lot. I doctor wants me on the medication for awhile to see if it heals my stomach. Tex said on his post that the medication really wasn't for the LC. If I don't take it how can my stomach heal?
Ruth (goesalot)
Ruth (goesalot)
Looking for health and wellness to all no matter what ailment they have to deal with.
-
Gabes-Apg
- Emperor Penguin
- Posts: 8332
- Joined: Mon Dec 21, 2009 3:12 pm
- Location: Hunter Valley NSW Australia
Ruth
Great news that the D has stopped.
the healing process is two stages,
firstly you have to reduce the inflammation ( medications help with this) and secondly have the right combo of nutrients to assist the gut to heal. (medications dont help with this part)
based on the replies of others above, this is why the bland, low amount of ingredients eating plan (avoiding gluten and dairy) is important as it does help to reduce the inflammation and it has some of the nutrients we need to heal
as inflammation can deplete Vit D3 levels, and Vit D3 is essential to healing, we suggest Vit D3 supplementation and magnesium supplementation.
Not sure if you have read any of the posts aimed at new people, or Erica's post that she provided the link to.. what you will learn is that MC is for life, and we have to come up with the right management plan that provides long term minimal symptoms. There is no quick fix or medication to make it go away forever.
In the post Erica has provided the link for, there is good discussions about Gut Healing, how to do it, and how long it takes...
grab a cuppa (dairy free i hope) and do some reading. and ask questions...
take care
Great news that the D has stopped.
the healing process is two stages,
firstly you have to reduce the inflammation ( medications help with this) and secondly have the right combo of nutrients to assist the gut to heal. (medications dont help with this part)
based on the replies of others above, this is why the bland, low amount of ingredients eating plan (avoiding gluten and dairy) is important as it does help to reduce the inflammation and it has some of the nutrients we need to heal
as inflammation can deplete Vit D3 levels, and Vit D3 is essential to healing, we suggest Vit D3 supplementation and magnesium supplementation.
Not sure if you have read any of the posts aimed at new people, or Erica's post that she provided the link to.. what you will learn is that MC is for life, and we have to come up with the right management plan that provides long term minimal symptoms. There is no quick fix or medication to make it go away forever.
In the post Erica has provided the link for, there is good discussions about Gut Healing, how to do it, and how long it takes...
grab a cuppa (dairy free i hope) and do some reading. and ask questions...
take care
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
Ruth,
Did your doctor say what he believes is the cause of your "stomach erosion". "Stomach erosion" isn't actually erosion. It's inflammation of the mucosal lining of the stomach. This is exactly what happens with the lining of the intestines of a patient who has LC. If the inflammation in the stomach is caused by a C. diff infection, then you would need to be taking more than just esomeprazole, because esomeprazole will not get rid of a C. diff infection by itself. So I have a hunch that your doctor doesn't know why your stomach is inflamed. When doctors don't know what's causing stomach problems, they prescribe a proton pump inhibitor (such as what you are taking) because they don't know what else to do.
LC can affect any part of the digestive tract, and apparently your stomach is involved, in addition to your intestines. The inflammation can be caused by certain drugs, and it can also be caused by food sensitivities. It is very likely that if you are very careful with your diet, and you avoid all of your food sensitivities, your stomach will heal as your intestines heal.
Your intestines cannot heal if you are taking a PPI, because PPIs are known to trigger LC. But your GI specialist will surely argue that this is incorrect, because he does not realize that LC can affect the stomach the same way that it inflames the intestines.
I can't advise you not to follow your doctors advice (because I'm not a doctor). All I can tell you is what I would do if I were in that situation, and I wanted to heal my entire digestive system, as soon as possible.
Tex
Did your doctor say what he believes is the cause of your "stomach erosion". "Stomach erosion" isn't actually erosion. It's inflammation of the mucosal lining of the stomach. This is exactly what happens with the lining of the intestines of a patient who has LC. If the inflammation in the stomach is caused by a C. diff infection, then you would need to be taking more than just esomeprazole, because esomeprazole will not get rid of a C. diff infection by itself. So I have a hunch that your doctor doesn't know why your stomach is inflamed. When doctors don't know what's causing stomach problems, they prescribe a proton pump inhibitor (such as what you are taking) because they don't know what else to do.
LC can affect any part of the digestive tract, and apparently your stomach is involved, in addition to your intestines. The inflammation can be caused by certain drugs, and it can also be caused by food sensitivities. It is very likely that if you are very careful with your diet, and you avoid all of your food sensitivities, your stomach will heal as your intestines heal.
Your intestines cannot heal if you are taking a PPI, because PPIs are known to trigger LC. But your GI specialist will surely argue that this is incorrect, because he does not realize that LC can affect the stomach the same way that it inflames the intestines.
I can't advise you not to follow your doctors advice (because I'm not a doctor). All I can tell you is what I would do if I were in that situation, and I wanted to heal my entire digestive system, as soon as possible.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.