Buy one Autoimmune disorder get one free.

Jimbo1968 · Post by **Jimbo1968** » Tue Dec 08, 2015 6:33 pm

Apologies for the rather dry sense of humour. I was having a little trip down symptom memory lane earlier this evening (you guessed it, nothing good on tv tonight) , anyway I've kept a diary of all my medical problems , I've got dates and symptoms all logged. About five weeks before the start of D I remember going to hospital with pains near my breast bone , the doctor asked me about other symptoms and I said my eyes hurt, anyway got the mandatory blood tests and ECG and got sent home . That very same day I was telling a friend my woes and I suffered hoarseness of the voice and pain in voice box, further more over a period of days after that I noticed gum problems etc etc. Anyway this evening I stumbled on Sjogrens syndrome (purely by accident) and it seems my body may have stumbled on it long before my brain was even aware sjogrens existed . Strangely enough it is rare amoungst men.
It feels like I'm collecting autoimmune baseball cards, I've already got psoriasis. For all the dark humour there is a serious point, where does it stop, are we working towards a full set of ai disorders . I'm not sure that this post will get any response or even if it deserves one unless anyone else would like to air their own AI story.

Gabes-Apg · Post by **Gabes-Apg** » Tue Dec 08, 2015 6:48 pm

Jim,
There are a few here with multiple AI issues...

You are not the first, and sadly you won't be the last....
And as we previously discussed, the health system is not geared up to help and support patients in this regard.

Why does it happen? For starters....
Ongoing inflammation
Leaky gut
Nutritional deficiencies
Environmental stress impacting genetics

I have multiple AI issues, and when there was mega inflammation happening, that caused major issues with my kidney.
Thankfully with correcting nutritional deficiencies and imbalances, healing the leaky gut, sticking with the strict low inflammation eating plan, most are quite settled down.

6 years ago I was contract manager for Australian subsidiary of Eurocopter, where they are building helicopters for Australian defence force.

Hence why I try to help and support people to a low inflammation, gut healing stage... To minimise multiple chronic issues down the track.
At the worst stage, I did not work for 9 months. (Was on government benefits as temporary disability) And am only now well enough to work part time. It is very likely to take me another 2 years to heal and recover.

Post by **tex** » Tue Dec 08, 2015 10:24 pm

Jim,

To optimize your resistance against the development of additional AI diseases, it may help to make sure that your vitamin D level is at least mid-way up in the sufficient range (approximately 150–175 nmol/L). If it's not too late, that can help to minimize your risk of developing additional AI diseases more than any other single thing you might do.

Tex

Lilja · Post by **Lilja** » Wed Dec 09, 2015 1:17 am

Jim,

In your profile, under Food Intolerances, you have written "Not known".

If your profile is correct, and you maintain your usual diet, you should start changing it, like we all have done. Especially if you suffer from psoriasis.

If I were you, I would stop having gluten and dairy to start with.

Lilia

Jimbo1968 · Post by **Jimbo1968** » Wed Dec 09, 2015 8:36 am

Hi all dairy and gluten have been stopped for a while now . I'm taking 5000iu of vitamin d3 liquid a day. A doctor recently said to me there's no such thing as food intolerance if you can stop the leaky gut and that the reaction to gluten is only because it's finding its way into blood stream through gut. Is this accurate? Also is there a single blood test to check for susceptibility to auto immune disorders or is it a case of blood tests for each one based on symptoms.

Post by **tex** » Wed Dec 09, 2015 11:59 am

Jim wrote:A doctor recently said to me there's no such thing as food intolerance if you can stop the leaky gut and that the reaction to gluten is only because it's finding its way into blood stream through gut. Is this accurate?

Yes it's true that all food sensitivities are caused by increased intestinal permeability (leaky gut). The problem is that research shows that gluten causes increased intestinal permeability for everyone who eats it. Here is a quote of the conclusions shown in the abstract for the research article you can read at the link below:

Conclusions. Based on our results, we concluded that gliadin activates zonulin signaling irrespective of the genetic expression of autoimmunity, leading to increased intestinal permeability to macromolecules.

The phrase that I have highlighted in red means that everyone (not just celiacs) responds to gluten with increased intestinal permeability.

Therefore, that doctor's suggestion that all one has to do is to "cure" leaky gut, is a moot point . . . it suggests that he was either trying to be funny, or he doesn't really understand the problem. As a long-time fan of Monty Python and other British comics, I long ago learned to appreciate the droll humor of the Brits.

But the bottom line is, if we eat gluten, we will have increased intestinal permeability, and as the condition worsens because of continued exposure to gluten, the permeability eventually becomes so bad that it causes all the symptoms associated with leaky gut.

Gliadin, zonulin and gut permeability: Effects on celiac and non-celiac intestinal mucosa and intestinal cell lines

Jim wrote:Also is there a single blood test to check for susceptibility to auto immune disorders or is it a case of blood tests for each one based on symptoms.

The only one that comes to mind is an Anti-Nuclear Antibody (ANA) test. But this test mostly apples to only certain AI diseases, such as Lupus.

One test result that is associated with all AI diseases is vitamin D deficiency, but most doctors wouldn't consider that to be an appropriate test for determining AI disease vulnerability. It's worth noting however, than most patients who continue to live with vitamin D deficiency for a significant length of time, apparently experience the triggering of certain genes, because in many cases, even if they eventually correct their vitamin D deficiency, certain AI diseases develop anyway. So obviously the faster we eliminate a vitamin D deficiency, the better off we are, because that may prevent additional undesirable genetic events.

Tex

crervin · Post by **crervin** » Wed Dec 09, 2015 1:16 pm

Oh dear, got to get back on vitamin d.....now to find another one.

Gabes-Apg · Post by **Gabes-Apg** » Wed Dec 09, 2015 1:21 pm

Crevin
i use this product from Iherb
looks to be corn free

http://au.iherb.com/Now-Foods-Vitamin-D ... Caps/10056

Gabes-Apg · Post by **Gabes-Apg** » Wed Dec 09, 2015 1:23 pm

Also
as Vit D3 is made from Lanolin, using pure lanolin as a moisteriser on the skin will help with Vit D levels...

crervin · Post by **crervin** » Wed Dec 09, 2015 1:52 pm

Thank you Gabes!

crervin · Post by **crervin** » Wed Dec 09, 2015 2:19 pm

Just wondering about other AI diseases besides MC.......does having one of those cause another or is that just with our disease?

Gabes-Apg · Post by **Gabes-Apg** » Wed Dec 09, 2015 2:37 pm

having auto immune condition (or conditions) put strain on nutrients (like Vit D magnesium Vit B's other minerals etc) due to the ongoing inflammation, stress on adrenal system, constant stress on immune system, interupted methylation cycle, endocrine system, gut, etc etc

the combo of the gut issues (leaky gut) and increased toxins in the body also increase the strain and deplete key nutrients so that cells can not operate properly and rebuild properly which also affects all the 'systems' (lymph endocrine nervous etc)

ongoing inflammation is toxic, and life threatening, it affects heart, kidney, brain, liver, gut etc etc

for many, if they do not listen to their bodies when the symptoms begin, adopt the right low inflammation eating plan and lifestyle, fix key deficiencies, then health issues will continue to happen.
when in this really inflammed strained state, the body can not cope with virus's, parasites, excess bacteria etc so that is why people get chronic fatigue and chronic flares of AI issues.

I have started reading Wahls protocol - she did not CURE MS, but she managed to get the inflammation levels down, and the cells healthy enough that her body functioned well enough, to get out of a wheel chair and live life.

jlbattin · Post by **jlbattin** » Wed Dec 09, 2015 3:13 pm

Gabes,

I've been following her in her Facebook posts and find some of the things really interesting. Are you reading her book? I was considering it so I'll see what you think before I dive in.........

Gabes-Apg · Post by **Gabes-Apg** » Wed Dec 09, 2015 3:20 pm

Jari
I happened across the book a while ago at a library book sale, it was $1 so i bought it

Jean has read it, the other day my functional doctor mentioned Dr Wahls ted talk about mitrochondria, so it was the 'push' to start reading the book.
quite a bit is in line what we discuss here, low inflammation, healthy eating and lifestyle plan, fix nutrient deficiencies and imbalances to optimise cell health.

I am only into the first couple of sections, I will let you know further review once i have read some more.

JFR · Post by **JFR** » Wed Dec 09, 2015 3:58 pm

I really like the Wahls protocol but like everything else out there you have to adjust her suggestions to fit your own needs. One of the positive things about her approach is that she recognizes food intolerances and even mentions Enterolab as something that could be useful for some people. For most of us here the big stumbling block to following her protocol is that she calls for a diet heavy on vegetables to get adequate micronutrients. Of course that heavy a fiber load is more than most of us can handle. I've reached a point where the fiber does not seem to bother me but that was a long time coming. She has 3 levels of her protocol and in her most stringent level, called paleo plus, the amount of vegetables she recommends is somewhat less but still anyone following the protocol would have to adjust relative to their individual needs. For me one of the issues with her protocol is that the carb count is somewhat higher than the under 50 grams (closer to 30 grams) a day that I eat. She believes that eating so few carbs does not allow for enough of the vital micronutrients. There are other low carb proponents out there that disagree. This is one of those questions for which there seems to be no clear answer. It is possible to quibble with the details of her plan or how well it fits one's individual situation but I believe that her approach is sound and her ability to have so radically improved her own health is more than impressive. She says something that I too believe. The particular diagnosis that a person might have is much less important than understanding the underlying cause which she identifies as inflammation and the health of the mitochondria, the part of the cell responsible for energy production.

One caveat about what I just wrote. I'm a big picture kind of person and the details of the science generally don't stay with me, only the punchline. So there might be mistakes in what I just wrote. It's been a while since I read her book. She is also doing independently funded scientific studies to test her protocol on people with MS (not sure whether any of her studies have looked at anything other than MS)

Jean