MC , I didn't wake up with it, I had warnings

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Jimbo1968
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MC , I didn't wake up with it, I had warnings

Post by Jimbo1968 »

I've been working my mind around the fact that my leaky bowel could have caused me deficiencies that have been causing me secondary problems. However over a month and half before the diarrhea started with me I was admitted to hospital with stomach/chest pains and numbness and pins and needles in my arms and legs and other random problems. This also happened to me the week that diarrhea started just before it all got going. Surely, especially at the earlier point my gut hadn't yet leaked my vitamins and minerals as D hadn't started ?? This lead me to believe that maybe the MC is not causal but a symptom itself of a broader problem. I'm more asking a question than making a statement and hope that people will point out the floor in my thinking or/and discuss their own lead up symptoms to MC.
Possibly the true and root failing being the bodies inability to resist AI disorders? I not looking to rewrite the record books , I'm sure that I'm missing something here in my over simplistic view of the problem.
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JFR
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Post by JFR »

This is my quick answer to a complicated question. I believe that medicine got stuck in the germ theory of disease, one germ, one disease, one cure. The problem with this theory is that the body is a system and when things go wrong we can't always pinpoint one single cause and even when we can pinpoint the germ that caused the disease it doesn't always manifest itself the same in every body and some bodies may harbor the germ but never manifest the disease. And of course not all diseases can be traced back to germs. In other words MC could very easily be just one manifestation of some underlying cause that also causes other problems in the body. Diseases aren't things; they're ideas, names given to clusters of sign and symptoms to help clarify medical thinking, but ideas change and diseases get reclassified so that one disease becomes many or many get subsumed under one while others disappear and new ones emerge. Diseases are simplifications of complex processes and the fact that MC is the name given to a cluster of symptoms does not mean it isn't interconnected to a whole host of other problems, as most of us know all too well. Dr Terry Wahls traces autoimmune diseases back to mitochondrial dysfunction which then manifests as different diseases in different people, or maybe more correctly different sets of symptoms in different people. Who knows? What is clear is that medical science still has a lot to learn.

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Jimbo1968
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Post by Jimbo1968 »

Jean you articulated the point far better than I could've managed. It is interesting to think about but also quite disturbing as it raises the question as to the door being left open for a host of other related problems.

Do you or anyone else out there recall pre MC warnings your body was giving you before all the Diarrhea started.
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Gabes-Apg
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Post by Gabes-Apg »

Jim,
2 years before the MC Dx, I had period of major fatigue and brain fog, which progressed to a serious keratisis in my eye that would not respond to treatment. I had my usual IBS symptoms that I had been having on and off for 20 years. It was at this time I was referred to the senior immunologist, and despite all the tests, his only conclusion was that I must have had contact with with bat urine in a cave in Papua New Guinea, had some weird bacteria and prescribed doxycycline.

Noting that at this stage I had been avoiding gluten (80% of the time) and was lactose free and ate lots of raw vege salads etc for the previous 7 years before this event. I also took a various supplements as my best friend is a naturopath and had regular acupuncture to deal with inflammation / adrenal fatigue etc.

After that I had two seperate minor incidents of diarrhoea and stomach pain for about a week, that poop tests were not able to ascertain a reason for.

After 3 x bowel surgery and digestion issues all my life, ( issues with pain, fluctuating D & C, fatigue, bloating, gas, ) I was kinda blasé about digestion issues.

6 years ago (this week) I was Dx'd with MC
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Post by Lilja »

Jim,

With me it started under my feet, pins and needles. The D came as "thrown" at me some months after the feet pains. The fatigue, brainfog etc came a good while after D started. And then everything just fell apart. This was 5 years ago.

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Psoriasis in 1973, symptom free in 2014
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Post by Blueberry »

I've often thought I was born with it. I've been told when very young I had a good amount of digestive problems. Then I outgrew them. At the age of 15 was when I began experiencing MC symptoms, and by the age of 19 I was ill every day. Not long after that I received the MC colitis diagnosis. I've often though a host of health problems outside of gut issues could be associated with the condition for me, from dental issues, blood shot eyes, odd bleeding, feeling chilled, spelling problems, muscle fatigue pains, - all of which go away once I'm well to the gut for an extended period of time. My eyes also turn bright blue in color. That's been the hard part for me I suspect, not only getting the gut well for an extended period of time, but also what ever food(s) cause me issues can be eaten for a period of time without causing problems. It seems to take time for the damage to occur.
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Post by Jimbo1968 »

The brain fog is bad , its difficult to function at work when you can't think clearly, it's really frustrating especially when you tie it in with fatigue which only makes matters worse.
I was always a poor traveler as a child and got car sick, even as an adult unless I was driving I'd end up with motion sickness, well just before MC the motion sickness was also happening as a driver too and has progressively got worse since.
Thank you all for sharing your pre experiences , I hope that we can get others to join in and share there's
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tex
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Post by tex »

Jim wrote:I was always a poor traveler as a child and got car sick, even as an adult unless I was driving I'd end up with motion sickness
That was me, too, plus frequent indigestion, C, and pollen allergies. A few years before my MC symptoms began (D that wouldn't stop), my teeth suddenly developed about a zillion cavities virtually overnight (one month I had great teeth, a few months later they were a disaster area).

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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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