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We started reading Dr. Shoemaker’s book Mold Warriors together. We found the list of the symptoms. She read them and said, “Oh, I have ice pick pains” and “Oh, I have all the mental symptoms of the brain fog and I’ve been urinating and my stomach’s been hurting.” She was about to see a GI person to get a workup for stomach pains.
She was presenting to me as a psychiatrist with confusion, severe brain fog and an increase in her depression. But she actually had multiple symptoms and had seen many doctors now. Nobody had been able to help her with anything.
We read a little further in Dr. Shoemaker’s book, and I said, “Cholestyramine seems pretty innocuous to use, I’ll try it for you.” So I gave her a prescription for cholestyramine and told her to take it three to four times a day.
She came back three weeks later and I was looking at a different person. It was a very startling experience. She was on time for her appointment, looking alert and put together. She was coherent and neatly dressed. It was like a really different person.
The only thing that had been changed was adding cholestyramine. It was very impressive to me that something that I was calling pre-dementia had been eradicated.
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
Wow that's amazing. I think that cholestyramine was working better for me than the Salofalk is. Perhaps if I had increased my dose of cholestryramine to three a day it would have been better. Food for thought. Thanks Gabes
I was surprised to read cholestryamine might help with yeast/mold infections. I hadn't read that before. It is kind of interesting, or interesting to me reading about the potential conditions associated with mold, or other infection mentions that tend to receive little interest from main stream medicine. Of late I've been reading about the potential link between mold, leading to cancer, lupus, MtDNA alterations, and voltage levels in the body. A little on the alternative side, but enjoyable interesting read.
dont believe it is 'alternative' at all. there are some really good articles about it. and some really good podcasts etc
it also makes ALOT of sense, that with nutritional deficiencies, the stresses of our current lifestyles that our bodies can not cope with these biotoxins.
my reading thus far is that gentetics deteriorate/change over long period of time, and are not the main root cause. There are other major influences that are making their impact on our DNA and causing the increase in health conditions and/or that the conditions be chronic and not mild.
one article i read yesterday even raised the idea that it is an excess of biotoxins that contributes to bad reactions to vaccines.
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
Yes, agree about the mold ideas not being alternative and interesting. I should have mentioned the voltage part, increased oxygen as being in the alternative corner. That is what I was thinking more but didn't express it in what I wrote.
Note that the author had "traditional" medical education/training: U of MD medical school (my alma mater) and Hopkins residency. It's good to see more docs crossing over into unexplored areas.
Polly
Blessed are they who can laugh at themselves, for they shall never cease to be amused.
Good luck Bearcat. Please keep us posted on how well it works for you.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
tex wrote:Good luck Bearcat. Please keep us posted on how well it works for you.
Tex
I discussed EnteroLab with my GI specialist. Of course, he wasn't very receptive to the concept. I asked him if I had unrealistic expectations of being able to eat whatever I want and take standard medications to get back to normal. He said no, it wasn't unrealistic. As we were finishing up the office visit, he said, "leave it to the pharmacist to be the difficult patient."
As if all his other MC patients snap right out of it and remain in remission after following his treatment guidelines.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
I asked him if I had unrealistic expectations of being able to eat whatever I want and take standard medications to get back to normal. He said no, it wasn't unrealistic.
wow - the GI doctors hold that much credibility in the meds for MC
Bearcat I hope you find the med /med combo that can allow you to eat whatever you want.
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
I asked him if I had unrealistic expectations of being able to eat whatever I want and take standard medications to get back to normal. He said no, it wasn't unrealistic.
wow - the GI doctors hold that much credibility in the meds for MC
Bearcat I hope you find the med /med combo that can allow you to eat whatever you want.
Well I know better than eating whatever I please. I've learned that long ago! :) It was just a question I made to him after talking about the Enterolab testing. Entocort wasn't doing the trick so I'm hoping the Colestipol/lomotil combination will do the trick.
So it has now been 21 days since I started colestipol. I've been taking 1g BID and also a lomotil once daily in the morning. So far, I've had minimal gas and virtually no bouts of diarrhea or non-solid stool. It's difficult to determine which is the culprit to my improvement, but given the short duration of lomotil activity I must assume it is the colestipol. I've also been eating a regular diet - gluten, dairy, soy, etc etc. The only thing I haven't had much of is egg, which was my highest response rate with the EnteroLab testing.
So far so good. Are you having any arthritis-type symptoms?
I've forgotten, are you taking budesonide?
Thanks for the update.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
